Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Thank you > Tom, > > I'm sorry I do not have the information you are requesting; but I wanted to > welcome you to . Perhaps one of our other members will be able to > assist you. Good luck in your search. Again, welcome. > > > > ----- Original Message ----- > From: <hedde@t...> > <@y...> > Sent: Sunday, September 09, 2001 6:04 PM > Subject: [] hi > > > > Hi, everyone, Much of my family has CMT. Myself (46), my daughter > > (13) my neice (22), my mother, her brother and 2 of his 4 children. > > I wasn't officialy diagnosed until I was 25 years old. Up until that > > timne I was clumsy but very active, I worked on a quarter horse farm > > training and showing horses. At about age 30 I was not able to do the > > manial labor needed so I decided to find another profession. I > > returned to college and got married. I completed my degree in > > elemetary education and I am presently teaching special education. > > My daughter had reconstructive surgeery on both her feet last > > December at the Shrine Hosp. in Chicago. She is doing better, it > > helped straighten her toeing in problem. She is not wearing AFO's > > but she does have trouble with her hips. The hips can go out at any > > time and we have to take her to a chropractor to get her adjusted. I > > have been wearing AFO's full time for the last 10 years, I am still > > active, golf, and coach. I have been haveing more and more pain in > > my back. I was taking ibpropohan but the doctor told me that > > continued use could cause kidney problems. Does anyone know of a > > Indiana or midwest doctor that is up on CMT? The Shrine is great for > > Lydia but they do not work on adults.thank you all > > Tom > > > > > > > > Stay Positive! Stay healthy! > > Foundation: http://www..org > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Tom, I'm sorry I do not have the information you are requesting; but I wanted to welcome you to . Perhaps one of our other members will be able to assist you. Good luck in your search. Again, welcome. ----- Original Message ----- From: <hedde@...> < > Sent: Sunday, September 09, 2001 6:04 PM Subject: [] hi > Hi, everyone, Much of my family has CMT. Myself (46), my daughter > (13) my neice (22), my mother, her brother and 2 of his 4 children. > I wasn't officialy diagnosed until I was 25 years old. Up until that > timne I was clumsy but very active, I worked on a quarter horse farm > training and showing horses. At about age 30 I was not able to do the > manial labor needed so I decided to find another profession. I > returned to college and got married. I completed my degree in > elemetary education and I am presently teaching special education. > My daughter had reconstructive surgeery on both her feet last > December at the Shrine Hosp. in Chicago. She is doing better, it > helped straighten her toeing in problem. She is not wearing AFO's > but she does have trouble with her hips. The hips can go out at any > time and we have to take her to a chropractor to get her adjusted. I > have been wearing AFO's full time for the last 10 years, I am still > active, golf, and coach. I have been haveing more and more pain in > my back. I was taking ibpropohan but the doctor told me that > continued use could cause kidney problems. Does anyone know of a > Indiana or midwest doctor that is up on CMT? The Shrine is great for > Lydia but they do not work on adults.thank you all > Tom > > > > Stay Positive! Stay healthy! > Foundation: http://www..org > > > Quote Link to comment Share on other sites More sharing options...
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