Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Hi all - I am about to get fitted for AFO's ( my first pair) and was wondering what shoes are available(for orthotics). I know finding " fashionable " shoes will be difficult, but was hoping for ideas. I know that tennis shoes won't be a problem, but I need shoes for work (business casual) Thanks! ________________________________________________________________________ ________________________________________________________________________ Message: 3 Date: 30 Aug 2001 16:00:03 -0000 From: Subject: Poll results for The following poll is now closed. Here are the final results: POLL QUESTION: August is Inventory time! A business that does not occasionally take inventory usually goes broke, so this poll is about how we are doing with ! September 21, our list/group will turn 3 years old. Check as many items as you want. All responses are anonymous and results will be sent to everyone August 30 when the poll closes. Your comments and feedback are also welcomed directly sent to the Moderator at liliwigg@... CHOICES AND RESULTS - Don't change a thing! Keep up the good work! I need this list!, 15 votes, 4.67% - The links, files, photos, CMT information is terrific!, 18 votes, 5.61% - I would like to have scheduled 'topic' chats at least once a month., 13 votes, 4.05% - I like the polls., 18 votes, 5.61% - I feel the polls are dumb., 1 votes, 0.31% - I wish more people would participate in the polls., 14 votes, 4.36% - I like the Sunday Inspiration concept., 13 votes, 4.05% - I do not like the Sunday inspirations., 3 votes, 0.93% - Monday for smile/joke day is not working and should be dropped., 2 votes, 0.62% - I feel we should keep joke day for a bit longer., 12 votes, 3.74% - Having all messages archived has helped me so much as I search for specific information., 17 votes, 5.30% - I am new and have so many questions about CMT - I don't know where to begin., 4 votes, 1.25% - This group is great! I have learned MUCH more than I ever dreamed of!, 19 votes, 5.92% - I wish members would make sure 'subject lines' of posts stick to the subject!, 12 votes, 3.74% - I wish members would 'cut and paste' messages they are responding to and not send the entire former message out again., 14 votes, 4.36% - I wish the new members would introduce themselves and share about their CMT., 12 votes, 3.74% - I wish the 'silent' members would participate in our discussions., 13 votes, 4.05% - Sometimes I feel members post too much of their 'opinions' on topics rather than share from their personal 'experience'., 7 votes, 2.18% - The OnLine Monthly Newsletter is a great idea! Keep it coming!, 16 votes, 4.98% - I am glad this list is FREE of charge to all., 22 votes, 6.85% - The news articles, research and information from medical journals that members post is interesting and helps me understand the many facets of CMT much better., 19 votes, 5.92% - Starting the Foundation was a great idea! Keep it going!, 18 votes, 5.61% - other: please email liliwigg@..., 2 votes, 0.62% - I love this list and learn so much about CMT here, I enjoy hearing hope people live with their CMT, 20 votes, 6.23% - I wish more people would share about their CMT; there is a lot of personal experience here!, 17 votes, 5.30% For more information about this group, please visit For help with , please visit http://help./help/us/groups/ ________________________________________________________________________ ________________________________________________________________________ Message: 4 Date: Thu, 30 Aug 2001 16:39:35 -0000 From: " Molly " <masonie@...> Subject: Re: Roller skating -Rose marie Me too, I used to roller skate and was quite good, took 2 semesters in college even!! The last time I skated I was pregnant and not very balanced, I also felt a lot of weakness in my thighs. I'm not sure if that was CMT, pregnancy or advanced age(32)LOL. Most of my CMT manifestations are in my hands and diaphragm, I imagine that with the same loss of strength in my feet/ankles that I would not be able to skate. Molly ________________________________________________________________________ ________________________________________________________________________ Message: 5 Date: Thu, 30 Aug 2001 10:37:45 +0200 From: " Paolo Vinci " <p.vinci@...> Subject: Re: Question about living ina 2 story home IT DEPENDS ON THE STAGE OF YOUR DISEASE, ON THE SHOES/ORTHOTICS YOU WEAR WHILE GOING UP AND DOWN, AND ON THE PRESENCE OF A HANDRAIL. I TOO LIVE IN A 2 STOREY HOUSE AND THERE ARE MORE THAN 16 STEPS, BUT I HAVE BILATERAL HANDRAILS SO I CAN ABSORB SHOCKS WHILE GOING DOWNSTAIRS AND PUSH MYSELF WITH THE ARMS WHILE GOING UPSTAIRS. I THINK THAT GOING UP AND DOWN MANY TIMES A DAY HAS HELPED ME TO REMAIN ACTIVE, IMPROVING MY CARDIOVASCULAR FUNCTIONALITY. HOWEVER, IF I EXCEED, MY KNEE PAIN WORSENS (BUT I AM STAGE 6). PAOLO VINCI > I saw someone post that living in a two story home can aggravate > the CMT. i have had increased muscle weakness over the years, > and have lived in a two story home for the past 2 years. first a > home in the country, and then the home I moved into when my husband > and i separated. I picked it because the stairs were not steeap and > the rent was SUPER cheap 310.00 a month for a 4 bedroom house with 2 > baths a fenced back yard, and a living room dining room and large > kitchen. My main thing was I was plannng on foster parenting and > wanted the xtra bedrooms for that. hubby lives here with me now, and > I absolutely love this house. I had thought that until we could > afford to buy one i would stay here, prolly the next 2 or 3 years, > but now i am worried about the stairs.i don't want to stay somewhere > and have my disease get worse becassue of it. I love this place, > but it is not worth worsening my disease. Can any of you tell me if > i am in danger of doing that? > > i have to go up 16 steps to get to the upstairs where the bathtub, > my bedroom my daughters bedroom and the computer room are. it does > wear me out to go up and down them, but I haev not noticed any more > pain then normal, althoguh my pain has increased alo tover the past > year.(i thought it was from stress due to 7 month separation) We > also have 2 steps to climb to get into the house. Please let me > know what you all know about this. > > thanks April > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 I find Rockports are usually pretty good, they have a removeable inner sole. I find I need a wide opening (to get my foot in), and a high rear (so the AFO doesn't pull out). Ray > ---------- > From: Garth DeVries > Reply > Sent: 02 September 2001 06:15 > > Subject: [] AFO's and shoes > > Hi all - I am about to get fitted for AFO's ( my first pair) and was > wondering what shoes are available(for orthotics). I know finding > " fashionable " shoes will be difficult, but was hoping for ideas. I know > that > tennis shoes won't be a problem, but I need shoes for work (business > casual) > Thanks! > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: 30 Aug 2001 16:00:03 -0000 > From: > Subject: Poll results for > > > The following poll is now closed. Here are the > final results: > > > POLL QUESTION: August is Inventory time! A business > that does not occasionally take > inventory usually goes broke, so this > poll is about how we are doing with > ! September 21, our list/group will > turn 3 years old. Check as many items as > you want. All responses are anonymous > and results will be sent to everyone > August 30 when the poll closes. Your > comments and feedback are also welcomed > directly sent to the Moderator at > liliwigg@... > > CHOICES AND RESULTS > - Don't change a thing! Keep up the good work! I need this list!, 15 > votes, > 4.67% > - The links, files, photos, CMT information is terrific!, 18 votes, 5.61% > - I would like to have scheduled 'topic' chats at least once a month., 13 > votes, 4.05% > - I like the polls., 18 votes, 5.61% > - I feel the polls are dumb., 1 votes, 0.31% > - I wish more people would participate in the polls., 14 votes, 4.36% > - I like the Sunday Inspiration concept., 13 votes, 4.05% > - I do not like the Sunday inspirations., 3 votes, 0.93% > - Monday for smile/joke day is not working and should be dropped., 2 > votes, > 0.62% > - I feel we should keep joke day for a bit longer., 12 votes, 3.74% > - Having all messages archived has helped me so much as I search for > specific information., 17 votes, 5.30% > - I am new and have so many questions about CMT - I don't know where to > begin., 4 votes, 1.25% > - This group is great! I have learned MUCH more than I ever dreamed of!, > 19 > votes, 5.92% > - I wish members would make sure 'subject lines' of posts stick to the > subject!, 12 votes, 3.74% > - I wish members would 'cut and paste' messages they are responding to and > not send the entire former message out again., 14 votes, 4.36% > - I wish the new members would introduce themselves and share about their > CMT., 12 votes, 3.74% > - I wish the 'silent' members would participate in our discussions., 13 > votes, 4.05% > - Sometimes I feel members post too much of their 'opinions' on topics > rather than share from their personal 'experience'., 7 votes, 2.18% > - The OnLine Monthly Newsletter is a great idea! Keep it coming!, 16 > votes, 4.98% > - I am glad this list is FREE of charge to all., 22 votes, 6.85% > - The news articles, research and information from medical journals that > members post is interesting and helps me understand the many facets of CMT > much better., 19 votes, 5.92% > - Starting the Foundation was a great idea! Keep it going!, 18 > votes, > 5.61% > - other: please email liliwigg@..., 2 votes, 0.62% > - I love this list and learn so much about CMT here, I enjoy hearing hope > people live with their CMT, 20 votes, 6.23% > - I wish more people would share about their CMT; there is a lot of > personal > experience here!, 17 votes, 5.30% > > > > For more information about this group, please visit > > > For help with , please visit > http://help./help/us/groups/ > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Thu, 30 Aug 2001 16:39:35 -0000 > From: " Molly " <masonie@...> > Subject: Re: Roller skating -Rose marie > > Me too, I used to roller skate and was quite good, took 2 semesters > in college even!! The last time I skated I was pregnant and not very > balanced, I also felt a lot of weakness in my thighs. I'm not sure > if that was CMT, pregnancy or advanced age(32)LOL. Most of my CMT > manifestations are in my hands and diaphragm, I imagine that with the > same loss of strength in my feet/ankles that I would not be able to > skate. > > Molly > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Thu, 30 Aug 2001 10:37:45 +0200 > From: " Paolo Vinci " <p.vinci@...> > Subject: Re: Question about living ina 2 story home > > IT DEPENDS ON THE STAGE OF YOUR DISEASE, ON THE SHOES/ORTHOTICS YOU WEAR > WHILE GOING UP AND DOWN, AND ON THE PRESENCE OF A HANDRAIL. > I TOO LIVE IN A 2 STOREY HOUSE AND THERE ARE MORE THAN 16 STEPS, BUT I > HAVE > BILATERAL HANDRAILS SO I CAN ABSORB SHOCKS WHILE GOING DOWNSTAIRS AND PUSH > MYSELF WITH THE ARMS WHILE GOING UPSTAIRS. > I THINK THAT GOING UP AND DOWN MANY TIMES A DAY HAS HELPED ME TO REMAIN > ACTIVE, IMPROVING MY CARDIOVASCULAR FUNCTIONALITY. HOWEVER, IF I EXCEED, > MY > KNEE PAIN WORSENS (BUT I AM STAGE 6). > PAOLO VINCI > > > I saw someone post that living in a two story home can aggravate > > the CMT. i have had increased muscle weakness over the years, > > and have lived in a two story home for the past 2 years. first a > > home in the country, and then the home I moved into when my husband > > and i separated. I picked it because the stairs were not steeap and > > the rent was SUPER cheap 310.00 a month for a 4 bedroom house with 2 > > baths a fenced back yard, and a living room dining room and large > > kitchen. My main thing was I was plannng on foster parenting and > > wanted the xtra bedrooms for that. hubby lives here with me now, and > > I absolutely love this house. I had thought that until we could > > afford to buy one i would stay here, prolly the next 2 or 3 years, > > but now i am worried about the stairs.i don't want to stay somewhere > > and have my disease get worse becassue of it. I love this place, > > but it is not worth worsening my disease. Can any of you tell me if > > i am in danger of doing that? > > > > i have to go up 16 steps to get to the upstairs where the bathtub, > > my bedroom my daughters bedroom and the computer room are. it does > > wear me out to go up and down them, but I haev not noticed any more > > pain then normal, althoguh my pain has increased alo tover the past > > year.(i thought it was from stress due to 7 month separation) We > > also have 2 steps to climb to get into the house. Please let me > > know what you all know about this. > > > > thanks April > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 Hi : I also wear Rockports - the Pro for women. They are a lace- up walking shoe and come in black, taupe/cream, and white. I wore the black ones with dress slacks for years while I was working. I mail order mine from eshoesale.com for $59 a pair. (I will say that the first time I ordered, they sent me men's shoes! So now I speak to a rep and specify 'womens'.) Melody > I find Rockports are usually pretty good, they have a removeable inner sole. > I find I need a wide opening (to get my foot in), and a high rear (so the > AFO doesn't pull out). > > Ray > > > > ---------- > > From: Garth DeVries > > Reply @y... > > Sent: 02 September 2001 06:15 > > @y... > > Subject: [] AFO's and shoes > > > > Hi all - I am about to get fitted for AFO's ( my first pair) and was > > wondering what shoes are available(for orthotics). I know finding > > " fashionable " shoes will be difficult, but was hoping for ideas. I know > > that > > tennis shoes won't be a problem, but I need shoes for work (business > > casual) > > Thanks! > > > > > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 3 > > Date: 30 Aug 2001 16:00:03 -0000 > > From: @y... > > Subject: Poll results for > > > > > > The following poll is now closed. Here are the > > final results: > > > > > > POLL QUESTION: August is Inventory time! A business > > that does not occasionally take > > inventory usually goes broke, so this > > poll is about how we are doing with > > ! September 21, our list/group will > > turn 3 years old. Check as many items as > > you want. All responses are anonymous > > and results will be sent to everyone > > August 30 when the poll closes. Your > > comments and feedback are also welcomed > > directly sent to the Moderator at > > liliwigg@s... > > > > CHOICES AND RESULTS > > - Don't change a thing! Keep up the good work! I need this list!, 15 > > votes, > > 4.67% > > - The links, files, photos, CMT information is terrific!, 18 votes, 5.61% > > - I would like to have scheduled 'topic' chats at least once a month., 13 > > votes, 4.05% > > - I like the polls., 18 votes, 5.61% > > - I feel the polls are dumb., 1 votes, 0.31% > > - I wish more people would participate in the polls., 14 votes, 4.36% > > - I like the Sunday Inspiration concept., 13 votes, 4.05% > > - I do not like the Sunday inspirations., 3 votes, 0.93% > > - Monday for smile/joke day is not working and should be dropped., 2 > > votes, > > 0.62% > > - I feel we should keep joke day for a bit longer., 12 votes, 3.74% > > - Having all messages archived has helped me so much as I search for > > specific information., 17 votes, 5.30% > > - I am new and have so many questions about CMT - I don't know where to > > begin., 4 votes, 1.25% > > - This group is great! I have learned MUCH more than I ever dreamed of!, > > 19 > > votes, 5.92% > > - I wish members would make sure 'subject lines' of posts stick to the > > subject!, 12 votes, 3.74% > > - I wish members would 'cut and paste' messages they are responding to and > > not send the entire former message out again., 14 votes, 4.36% > > - I wish the new members would introduce themselves and share about their > > CMT., 12 votes, 3.74% > > - I wish the 'silent' members would participate in our discussions., 13 > > votes, 4.05% > > - Sometimes I feel members post too much of their 'opinions' on topics > > rather than share from their personal 'experience'., 7 votes, 2.18% > > - The OnLine Monthly Newsletter is a great idea! Keep it coming!, 16 > > votes, 4.98% > > - I am glad this list is FREE of charge to all., 22 votes, 6.85% > > - The news articles, research and information from medical journals that > > members post is interesting and helps me understand the many facets of CMT > > much better., 19 votes, 5.92% > > - Starting the Foundation was a great idea! Keep it going!, 18 > > votes, > > 5.61% > > - other: please email liliwigg@s..., 2 votes, 0.62% > > - I love this list and learn so much about CMT here, I enjoy hearing hope > > people live with their CMT, 20 votes, 6.23% > > - I wish more people would share about their CMT; there is a lot of > > personal > > experience here!, 17 votes, 5.30% > > > > > > > > For more information about this group, please visit > > > > > > For help with , please visit > > http://help./help/us/groups/ > > > > > > > > > > > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 4 > > Date: Thu, 30 Aug 2001 16:39:35 -0000 > > From: " Molly " <masonie@e...> > > Subject: Re: Roller skating -Rose marie > > > > Me too, I used to roller skate and was quite good, took 2 semesters > > in college even!! The last time I skated I was pregnant and not very > > balanced, I also felt a lot of weakness in my thighs. I'm not sure > > if that was CMT, pregnancy or advanced age(32)LOL. Most of my CMT > > manifestations are in my hands and diaphragm, I imagine that with the > > same loss of strength in my feet/ankles that I would not be able to > > skate. > > > > Molly > > > > > > > > ______________________________________________________________________ __ > > ______________________________________________________________________ __ > > > > Message: 5 > > Date: Thu, 30 Aug 2001 10:37:45 +0200 > > From: " Paolo Vinci " <p.vinci@l...> > > Subject: Re: Question about living ina 2 story home > > > > IT DEPENDS ON THE STAGE OF YOUR DISEASE, ON THE SHOES/ORTHOTICS YOU WEAR > > WHILE GOING UP AND DOWN, AND ON THE PRESENCE OF A HANDRAIL. > > I TOO LIVE IN A 2 STOREY HOUSE AND THERE ARE MORE THAN 16 STEPS, BUT I > > HAVE > > BILATERAL HANDRAILS SO I CAN ABSORB SHOCKS WHILE GOING DOWNSTAIRS AND PUSH > > MYSELF WITH THE ARMS WHILE GOING UPSTAIRS. > > I THINK THAT GOING UP AND DOWN MANY TIMES A DAY HAS HELPED ME TO REMAIN > > ACTIVE, IMPROVING MY CARDIOVASCULAR FUNCTIONALITY. HOWEVER, IF I EXCEED, > > MY > > KNEE PAIN WORSENS (BUT I AM STAGE 6). > > PAOLO VINCI > > > > > I saw someone post that living in a two story home can aggravate > > > the CMT. i have had increased muscle weakness over the years, > > > and have lived in a two story home for the past 2 years. first a > > > home in the country, and then the home I moved into when my husband > > > and i separated. I picked it because the stairs were not steeap and > > > the rent was SUPER cheap 310.00 a month for a 4 bedroom house with 2 > > > baths a fenced back yard, and a living room dining room and large > > > kitchen. My main thing was I was plannng on foster parenting and > > > wanted the xtra bedrooms for that. hubby lives here with me now, and > > > I absolutely love this house. I had thought that until we could > > > afford to buy one i would stay here, prolly the next 2 or 3 years, > > > but now i am worried about the stairs.i don't want to stay somewhere > > > and have my disease get worse becassue of it. I love this place, > > > but it is not worth worsening my disease. Can any of you tell me if > > > i am in danger of doing that? > > > > > > i have to go up 16 steps to get to the upstairs where the bathtub, > > > my bedroom my daughters bedroom and the computer room are. it does > > > wear me out to go up and down them, but I haev not noticed any more > > > pain then normal, althoguh my pain has increased alo tover the past > > > year.(i thought it was from stress due to 7 month separation) We > > > also have 2 steps to climb to get into the house. Please let me > > > know what you all know about this. > > > > > > thanks April > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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