X-linked CMT Article - Paolo

[Guest guest]

Still in absence of a medical treatment, much can be done to improve

functionality and live a normal life. It can and IT MUST. Not only in Italy.

Dear Paolo - that is the problem. In the UK things are very different.

I've been reading your articles and getting really excited about them because

you are so positive and okay say I do believe what you say but for some of us

it's too late. I can't lie on my tummy because of constriction in my hip and

back. I can't stand up straight and when I try and walk the pain in unbearable

and my legs stiffen up. I can go but I won't. Keep up what you're doing and

please stop others from going through what many of us on this forum are.

Love

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer