Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Hello there. I found this group, and I thought I'd give it a shot. My son was just diagnosed with CMT on Monday. My ex-husband and friend was diagnosed at the same time. I was pretty prepared because I knew something was wrong, but it was still a shock. I've been looking all over the web for information, but I seem to find the same things over and over again. I really don't know what to do or expect at this point and time. We're waiting right now for the genetic testing to come back to confirm the diagnosis, but he's only five, and he's already showing major signs of CMT. He's a real trooper, though. I love him so much. I'm really glad that I found other people that understands this disease for support and a little help. Thank you for being here! Jodi Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.