Re: Our kids sure are special - Veri

[Guest guest]

Veri,

she is indeed quite special!!  She handled a huge disappointment with amazing

grace and maturity. I am convinced that with all our kids go through, they

become mature, compassionate, and selfless in ways that many adults never

achieve.  My spent a week as an LIT (leader in training) at a camp last

summer with 10 girls age 9-10 who either had jra or liver transplants.  One

night they went around the group asking what they would wish for if they had but

one wish...not one girl made a selfish wish, but instead wished things for

others...touching, to say the least.

I am so sorry you are going through loss of insurance for Jaye - how

stressful and worrisome for you as a parent.  I will be praying that Jaye

gets all of the care she needs and without added stress to you. You are a

wonderful mom with a great daughter. 

Sending hugs to you both,

(, 18, poly, pidd)

From: veristroud@... <veristroud@...>

Subject: Our kids sure are special

Date: Friday, January 23, 2009, 6:15 PM

Well Jaye is nearly 15 and as most kids she has been all

excited about getting her drivers permit so she can start to learn to drive. I

have never let any of my kids drive til they turned 15 and so on their birthday

or as close to it as we can we troop down to the drivers license place and begin

the process. Well with Jaye of course things are always a bit different.

We started our process over a month ago getting ready for the ambulatory EEG she

would have to have in order to get the doctor to sign papers for her to get her

license. She has not had a seizure in five years, has been off her meds for

three years now and so we are set and ready. The day of our first appointment we

had very bad weather and on the way I had a flat tire. With ice and snow on the

interstate, I chose to drive a mile and a half on the flat tire before I could

get safely off the highway. I preferred to ruin the tire (which I did) rather

then pull over

and cause an accident. Needless to say we had to reschedule. When we do get to

the appointment for the EEG, we find out that we were no longer on the schedule.

They knew we were coming but somehow the computer lost us. Determined as I was,

we did not leave until Jaye was hooked up to the machine. As we left she

commented that we probably should not go into a bank that day or they might

thinks she had a bomb strapped to her back pack. She has been studying for the

drivers test now for a couple of weeks and on Wednesday I get a call from the

neurologist office to tell me we need another appointment. The results from the

EEG are in, and unfortunatly they are no as we had hoped for. There is seizure

activity. So I debate when to tell and how to tell her. Of course I spend

some time in tears first just because I want so bad for her to be able to do the

things she should be able to do at her age. When I tell her, she just says " Oh

well, it's not

that bad " . Here I am crushed and she is comforting me. We go back to the

neurologist on the day after her birthday to see wha

t we have to do, what med's they will have to give her and how long she will

have to wait to try to get her license, she said, " well it's six months minimum,

right? " ? Her dad lost his job last week so she looses her insurance on January

31st. Now I have to try to get her something through the state so she can have

some insurance. I can't put her on mine at work unless I want to pay over $600

per month and I just can not do that. She sees the rheumy and opthamologist in

February, I guess we will go to those appointments and pray that the state will

come through for us. If not, then we will figure out what to do after that.? I

am so proud of Jaye for not getting upset and throwing a fit. Of course I

would understand if she did and I would probably help her throw the fit for a

bit.? She just takes everything one day at a time and does not get all upset.

She is quite special.?

Veri & Jaye 14 poly