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Riley

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,

You need to take 2 packets a day of Imuplus (or Immunocal) for 6 months or 4

packets a day for 30 days to get your functional glut. levels to normal,

then you can drop down to 2. This may be the reason you saw no improvement.

Steve B.

mycoplasama testing

>

>

> Thanks Steve,

> thought you may suggest immunocal.I took it for

> 3 months mid this year,one to two packs per day.I stopped because

> I didn't notice any benefits.In fact during this time I came down with a

> virus that lasted several months.I'm certain it wasn't herxiemers as the

> symptoms were classically viral akin to Glandular

> fever which are not my usual symptoms,it was the first time I

> experienced severe headaches.

> If immunocal is mighty enough to eliminate mycoplasma wouldn't I be

feeling

> much improved?

>

> I'm reluctant to get another test done as it is costly and takes 6 weeks

> but I thought 2 results out of 3 could help me decide.

> My partner suffers with severe rheumatoid arthritis and chronic

> fatigue NOT CFS.This year he had a test for mycoplasma but was negative.I

> was convinced that mycoplasma was the missing link and that we shared this

> nasty bug,not so.

>

> I guess I've become sceptical of this particular lab.There has been

> suggestions made of delays in testing and I've found there service

> less than sufficient.

> Cheers

>

> >,

> >

> >Have you been taking any of the whey protein products. People who

initially

> >test positive for Mycoplasma, EB, CMV, etc. can test negative after being

on

> >the whey for a while. I suppose that means it's working Steve B.

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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  • 8 years later...
Guest guest

Hi,

Some of you remember us from when we were very active on the list and my

daughter Riley was very sick. I wanted to send an update. Riley's arthritis is

still in remission but she was diagnosed with type 1 diabetes on Wednesday. I

know that there are some of you who remember her and would like to know. This

has been very difficult. I guess it is time to add once again to my list of

.

Ellie and Riley 11

poly & type 1 diabetes

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Guest guest

Hi, Ellie. I sure do remember you and Riley. I am sorry to hear of this

latest diagnosis. It stinks that she should have two things to battle

now, although I am so happy to hear that the arthritis remains in

remission. Please check in and let us know how she is doing, Michele

( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of skyleysmom1

Sent: Friday, March 20, 2009 11:54 AM

Subject: Riley

Hi,

Some of you remember us from when we were very active on the list and my

daughter Riley was very sick. I wanted to send an update. Riley's

arthritis is still in remission but she was diagnosed with type 1

diabetes on Wednesday. I know that there are some of you who remember

her and would like to know. This has been very difficult. I guess it is

time to add once again to my list of .

Ellie and Riley 11

poly & type 1 diabetes

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Guest guest

Hi Ellie,

I remember meeting you in San Diego - when I saw the subject line, I thought

that Riley had been doing so well and hoped she wasn't flaring. I am so sorry to

hear of this new challenge - you and Riley will be in our prayers.

Val

Rob's Mom (11, systemic)

Riley

Hi,

Some of you remember us from when we were very active on the list and my

daughter Riley was very sick. I wanted to send an update. Riley's

arthritis is still in remission but she was diagnosed with type 1

diabetes on Wednesday. I know that there are some of you who remember

her and would like to know. This has been very difficult. I guess it is

time to add once again to my list of .

Ellie and Riley 11

poly & type 1 diabetes

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