Opthalmologist appt last MOnday

[Guest guest]

My son (undiagnosed) did go to the pediatric ophthalmologist last Monday.

I was surprised how quick the visit was, but the assistant did check the

pressure with a device she ran over his eye, and the doc did use the slit lamp.

His eyes are healthy. Great really, the biggest worry I had was him losing

sight. The boy reads like crazy. 6-7 large books a week!

So I guess we are at a point that I decide whether to pursue a diagnosis or not.

Before the vision issue, I had assumed that whatever form he may have was mild

and the symptoms could be treated. That is what I had been doing for the past

year or two. Ibuprofen when he came down stiff in the mornings, or anytime he be

irritable or want to lie around. Usually after an hour or so he would be better.

Since we have no pediatric rheumatologist here in town, it is a much more

difficult thing to plan an excursion 3 hours away during the week. I am a little

concerned when I think that possible puberty in the near things may get worse.

Thanks for all the input you all have given me. It has helped immensely.

Kim

[Guest guest]

so glad there is no uveitis!!! That is great news! I may have already told

you this so I apologize if I did but morning stiffness is not a normal thing.

If he has JRA and even if it may be " mild " there is something going on with his

joints and over time it could deteriorate them. Your son may also not realize

how bad he feels since he doesn't know any better. If you try a dmard like MTX

you may be surprised at how well he feels and that will stop the destruction of

the joints! Just something to think about.

& Grant (13, psoriatic/uveitis)

>

> My son (undiagnosed) did go to the pediatric ophthalmologist last Monday.

>

> I was surprised how quick the visit was, but the assistant did check the

pressure with a device she ran over his eye, and the doc did use the slit lamp.

> His eyes are healthy. Great really, the biggest worry I had was him losing

sight. The boy reads like crazy. 6-7 large books a week!

>

> So I guess we are at a point that I decide whether to pursue a diagnosis or

not.

> Before the vision issue, I had assumed that whatever form he may have was mild

and the symptoms could be treated. That is what I had been doing for the past

year or two. Ibuprofen when he came down stiff in the mornings, or anytime he be

irritable or want to lie around. Usually after an hour or so he would be better.

>

> Since we have no pediatric rheumatologist here in town, it is a much more

difficult thing to plan an excursion 3 hours away during the week. I am a little

concerned when I think that possible puberty in the near things may get worse.

>

> Thanks for all the input you all have given me. It has helped immensely.

>

> Kim

>

[Guest guest]

Kim,

I understand your hesitation about moving forward with getting a diagnosis and

the travel 3 hours to the rheumy. But I also am so glad that I did what we

needed to do when Jaye had her first major flare. We know that she was

having trouble with it all along for quite some time prior to diagnosis. It was

just one of those things that we could deal with and not severe pain and only

minor swelling for short periods of time that we always attributed to something

else. Life certainly is not perfect now and we still struggle but for the most

part we have Jaye's arthur under control. I love it that Jaye has

very little stiffness if any most days. She has much more energy then she did

before. Jaye has other health issues and we attributed much of her

exhaustion to that and her other med's but now know it was the arthritis that

was holding her back from doing alot of the things she wanted to do. I am so

glad that the opthamologist gave you a good report and that you feel good about

that. If your son has been dealing with this for a long time he may not even

realize how bad he is feeling. Last fall Jaye had a flare and I allowed

them to put her on prednisone. She felt so good and told me then that she never

realized now bad she had been feeling but that was her normal feeling. She is

not on the pred now but we had her on it for a while and then got her started on

Methotrexate and then slowly weined her off the pred. She felt better while on

the pred then she does now but we know we do not like that med and refuse to

keep it up as long as we can. Let us know if you go ahead and make the appt with

the rheumy. We have to make the three hour drive to Kansas City in May and we

will make a fun trip out of it.

Veri & Jaye 16 poly

Opthalmologist appt last MOnday

My son (undiagnosed) did go to the pediatric ophthalmologist last Monday.

I was surprised how quick the visit was, but the assistant did check the

pressure with a device she ran over his eye, and the doc did use the slit lamp.

His eyes are healthy. Great really, the biggest worry I had was him losing

sight. The boy reads like crazy. 6-7 large books a week!

So I guess we are at a point that I decide whether to pursue a diagnosis or not.

Before the vision issue, I had assumed that whatever form he may have was mild

and the symptoms could be treated. That is what I had been doing for the past

year or two. Ibuprofen when he came down stiff in the mornings, or anytime he be

irritable or want to lie around. Usually after an hour or so he would be better.

Since we have no pediatric rheumatologist here in town, it is a much more

difficult thing to plan an excursion 3 hours away during the week. I am a little

concerned when I think that possible puberty in the near things may get worse.

Thanks for all the input you all have given me. It has helped immensely.

Kim