Guest guest Posted September 3, 2010 Report Share Posted September 3, 2010 I am so angry and frusterated! and I dont know what to do! as I said when I joined a couple weeks ago my son is 5 years old he has been suffering horribly since june horribly (first unknown rashes and fevers started 10 monthes ago) he Finally got diagnosed about a month ago we are still with primary doctor (he has state paid medical because we cant afford health insurance) who is running test after test which is good I understand that it has to be done but in the mean time all she will give him is motrin (3 times a day)and tylenol (4 times a day)in between motrin doses. the iron for anemia and dimmatapp at bedtime to try to prevent him from screamming in agony 4-5 times a night.... every night! oh he also has pleuritis and now he has horrible stomache pains no less than 4 times a day (probably from all the motrin but who am i to guess!?) I have asked 2 times now for a referral to a specialist and they say well lets wait on the test results ( a total of 18 blood test have been taken in past 1 1/2 weeks) in the mean time the school calls me at work EVERYDAY this week ( after about 3-4 hours into school day) to come get him because he is in so much pain all he can do is cry and the school staff calls me with this patronozing voice i know they believe he is exagerating which makes me angry because I know better! and everyday this week I have taken him in to clinic screamming to the top of his % year old lungs in pain and HE IS SUFFERING UNBEARABLY at times AND I am about to get fired! and he doesnt understand why no one will help him!? and frankly.... niether do I!!!!!! how can I get them to listen? to understand? to care!? Jordan's mommy, Quote Link to comment Share on other sites More sharing options...
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