Re: Problems with stairs

[Guest guest]

Hi Dianne, First I would make a plan with the school for an IEP and set up

home instruction for her. Once that is done when she is doing well or if

they can accommodate her she can go to school. Whenever necessary once in

place they send home instructors. Please educate the home instructors as to

her condition as most haven't a clue and can't understand that if the child

appears well they still can be flaring. Please make sure every railing that

she will use is very, very secure and where able a railing on both sides.

Even when told not to do it, when in a hurry or sometimes when they tire of

being on their butts she may just walk up the stairs anyway. Crutches are

very uncomfortable and unsafe on stairs. When her knees and hip are really

bad and my daughter wants to get out we either use the wheelchair or she has

arm crutches which are much more comfortable and secure. They sell them on

EBay for less that your co-pay most of the time. God Bless.

In a message dated 4/10/2010 5:18:58 P.M. Eastern Daylight Time,

farriord@... writes:

My granddaughter'My granddaughter'<WBR>s rhemy says no more stairs for her

because of hip inflammation that is not responding to drugs. She has stairs

at her school and no elevator. Her Mom is moving the computer to the main

floor and her bedroom is already on the main floor. She spends time at her

dad's and in his house is a split level and the bedrooms and baths are on

the second level. The doctor said she may have to use crutches. Does anyone

have any ideas? I suggested at home she sit on the stairs and scoot up and

down when she has to go up o

Dianne grandma to Nora 15 poly and Emmy 13 poly

[Guest guest]

We have a 504 plan in place.  My daughter and I talked today and came to the

same conclusion, that she needs to have home instruction and go to school maybe

two days a week.  We moved the computer into the dining room from down

stairs.  My daughter has to work Monday and Tuesday and I am talking her 17

month old to the doctor for her Tuesday as a followup to having tubes put in her

ears.  So I was going to try to make an appt. with the 9th grade administrator

to talk about this.  One of the problems with being at home and going to school

is that her Spanish class is an advanced one and they mainly do conversation, so

missing class is makes it hard.  But, we must do what we have to not to do any

more damage to her joints. 

 

I wish she would use a wheelchair when we are out, but she does not want to. 

(being 15).  I will look into the arm crutches.  Thanks for the suggestions. 

Dianne grandma to Nora 15 poly and Emmy 13 poly

From: URnotIM@... <URnotIM@...>

Subject: Re: Problems with stairs

Date: Saturday, April 10, 2010, 10:28 PM

 

Hi Dianne, First I would make a plan with the school for an IEP and set up

home instruction for her. Once that is done when she is doing well or if

they can accommodate her she can go to school. Whenever necessary once in

place they send home instructors. Please educate the home instructors as to

her condition as most haven't a clue and can't understand that if the child

appears well they still can be flaring. Please make sure every railing that

she will use is very, very secure and where able a railing on both sides.

Even when told not to do it, when in a hurry or sometimes when they tire of

being on their butts she may just walk up the stairs anyway. Crutches are

very uncomfortable and unsafe on stairs. When her knees and hip are really

bad and my daughter wants to get out we either use the wheelchair or she has

arm crutches which are much more comfortable and secure. They sell them on

EBay for less that your co-pay most of the time. God Bless.

In a message dated 4/10/2010 5:18:58 P.M. Eastern Daylight Time,

farriordatt (DOT) net writes:

My granddaughter' My granddaughter' <WBR>s rhemy says no more stairs for her

because of hip inflammation that is not responding to drugs. She has stairs

at her school and no elevator. Her Mom is moving the computer to the main

floor and her bedroom is already on the main floor. She spends time at her

dad's and in his house is a split level and the bedrooms and baths are on

the second level. The doctor said she may have to use crutches. Does anyone

have any ideas? I suggested at home she sit on the stairs and scoot up and

down when she has to go up o

Dianne grandma to Nora 15 poly and Emmy 13 poly

[Guest guest]

Hi,

has issues with stairs. We have a 2 Story home and all bedrooms

were upstairs. picked one of the bedrooms upstairs for hers when we

moved in. She found out quickly that there will be times when she can not

make it up to her bedroom. So what we did was allow her to sleep in my

bedroom which is on the level floor and also she put a bedroom in the garage. We

have a 6 bedroom so theres always a place to sleep. We have also gotten

several air beds as sometimes it is better for her.

At her High School when she started we had a issue with it as that

school was not handicapped accessible. 4 story High school and no elevator. I

called a meeting of teachers and others. We found out that she could be put

in a program called Home Bound since there was no way she could go up and

down the stairs to class. The School would not lean on all her classes on 1

floor since it was a bog school. So she went through High School in the Home

bound program. Which worked out great. The Teacher would come to the house

and teach her one on one and she Graduated with more credits than she

needed and was top of her class. Even though she did not go inside that school.

She also was a Perfect addentance honoree as well. She worked at her own

pace which she could do 2 weeks of work in 1 day and learn so much more on

days she was feeling good and on those flaring days she could rest.

With me I do not like heights so I try to avoid stairs if I can see

through them or can see over to see how high I am up lolol. I do not get on

escalators lolol. I will walk around til I see a elevator. Which has helped

with avoiding stairs in the malls.

We have done the sit on the stairs and scoot up them. Which can be a

hassle in itself. So we work around issues which may pop up. So for now if

flares she just sleeps in my bed or heads to the garage. She loves

the top floor bedrooms as she says it has the best views. So we go with the

flow. lolol.

I would set up a appointment with the school and get a IEP or go with

the 504 plan and before the meeting write down what she needs so it can be

written into the plans. If stairs is a issue you can ask for her to be

transferred to a school which is handicapped accessible or ask about the Home

bound program. If you need more info please feel free to email me anytime.

also hates the wheelchair and crutches she did that in Middle

School and it was a hassle. Her middle school though was handicapped

accessible with a elevator. Schools are behind.

Robbin

[Guest guest]

Our school has a separate small wing for special children. It is all on the

first level. They will pick my daughter up in one of the small busses and

try to accommodate her there if necessary. My 15 year old (now sixteen) was

hysterical. To go from doing dance, karate, soccer, cheerleading to having

a small bus pick her up and being in special ed was too big a " pill to

swallow " . She was given an award for French, accepted into AOIT programs and

was to be placed in AP classes. It is difficult enough to put up with the

stares and rude comments of immature high school students when on crutches

and in a wheelchair, I couldn't bring her down that road. If they are

willing to do home instruction I certainly would attempt that first. Mental

attitude is so important when battling this. I have had her in and out of

counseling and have her on a mild anti-depressant now. There are also some

wonderful home schooling groups that meet once a week for some socialization

for

the kids. This one is only and hour and it is a great way to meet some new

people and for them to make some new friends. She lost so many of her

" friends " as they are active.

Nan

In a message dated 4/12/2010 10:34:50 A.M. Eastern Daylight Time,

marnifrank@... writes:

Well there are those chairs that go up and down stairs. As far as the

school, I would look for a new one for the fall. I can not believe that the

school is not handicapped compliant. I didnt think that was legal!

________________________________

From: " _farriord@..._ (mailto:farriord@...) " <_farriord@..._

(mailto:farriord@...) >

_ @groupjra-l_ (mailto: )

Sent: Fri, April 9, 2010 8:15:28 PM

Subject: Problems with stairs

My granddaughter' s rhemy says no more stairs for her because of hip

inflammation that is not responding to drugs. She has stairs at her school and

no elevator. Her Mom is moving the computer to the main floor and her

bedroom is already on the main floor. She spends time at her dad's and in his

house is a split level and the bedrooms and baths are on the second level. The

doctor said she may have to use crutches. Does anyone have any ideas? I

suggested at home she sit on the stairs and scoot up and down when she has to

go up or down the stairs.

Dianne grandma to Nora 15 poly and Emmy 13 poly

[Non-text portions of this message have been removed]

[Guest guest]

Hi Robin,

You gave me the best chuckle! I have the same problem with heights and do

the exact same thing! No elevator .... no me...

Nan

In a message dated 4/12/2010 10:55:01 A.M. Eastern Daylight Time,

Robbin40@... writes:

Hi,

has issues with stairs. We have a 2 Story home and all bedrooms

were upstairs. picked one of the bedrooms upstairs for hers when

we

moved in. She found out quickly that there will be times when she can not

make it up to her bedroom. So what we did was allow her to sleep in my

bedroom which is on the level floor and also she put a bedroom in the

garage. We

have a 6 bedroom so theres always a place to sleep. We have also gotten

several air beds as sometimes it is better for her.

At her High School when she started we had a issue with it as that

school was not handicapped accessible. 4 story High school and no

elevator. I

called a meeting of teachers and others. We found out that she could be

put

in a program called Home Bound since there was no way she could go up and

down the stairs to class. The School would not lean on all her classes on

1

floor since it was a bog school. So she went through High School in the

Home

bound program. Which worked out great. The Teacher would come to the house

and teach her one on one and she Graduated with more credits than she

needed and was top of her class. Even though she did not go inside that

school.

She also was a Perfect addentance honoree as well. She worked at her own

pace which she could do 2 weeks of work in 1 day and learn so much more on

days she was feeling good and on those flaring days she could rest.

With me I do not like heights so I try to avoid stairs if I can see

through them or can see over to see how high I am up lolol. I do not get

on

escalators lolol. I will walk around til I see a elevator. Which has

helped

with avoiding stairs in the malls.

We have done the sit on the stairs and scoot up them. Which can be a

hassle in itself. So we work around issues which may pop up. So for now if

flares she just sleeps in my bed or heads to the garage. She loves

the top floor bedrooms as she says it has the best views. So we go with

the

flow. lolol.

I would set up a appointment with the school and get a IEP or go with

the 504 plan and before the meeting write down what she needs so it can be

written into the plans. If stairs is a issue you can ask for her to be

transferred to a school which is handicapped accessible or ask about the

Home

bound program. If you need more info please feel free to email me anytime.

also hates the wheelchair and crutches she did that in Middle

School and it was a hassle. Her middle school though was handicapped

accessible with a elevator. Schools are behind.

Robbin

[Non-text portions of this message have been removed]

[Guest guest]

Well there are those chairs that go up and down stairs.  As far as the school,

I would look for a new one for the fall.  I can not believe that the school is

not handicapped compliant.  I didnt think that was legal!

________________________________

From: " farriord@... " <farriord@...>

Sent: Fri, April 9, 2010 8:15:28 PM

Subject: Problems with stairs

 

My granddaughter' s rhemy says no more stairs for her because of hip

inflammation that is not responding to drugs. She has stairs at her school and

no elevator. Her Mom is moving the computer to the main floor and her bedroom is

already on the main floor. She spends time at her dad's and in his house is a

split level and the bedrooms and baths are on the second level. The doctor said

she may have to use crutches. Does anyone have any ideas? I suggested at home

she sit on the stairs and scoot up and down when she has to go up or down the

stairs.

Dianne grandma to Nora 15 poly and Emmy 13 poly

[Guest guest]

suffers mostly in her hips and knees as well.  When she is flaring it

is just too painfull for her to go to school  She hates going on the cruthces

and worse, the wheelchair.  I keep her at home and ask the teachers for her

work.  They have been really good this year.  She has missed a lot of

school.  I think hips are really bad becuase sheer movement or sitting through

classes is soooo painful.

________________________________

From: " URnotIM@... " <URnotIM@...>

Sent: Sat, April 10, 2010 6:28:32 PM

Subject: Re: Problems with stairs

 

Hi Dianne, First I would make a plan with the school for an IEP and set up

home instruction for her. Once that is done when she is doing well or if

they can accommodate her she can go to school. Whenever necessary once in

place they send home instructors. Please educate the home instructors as to

her condition as most haven't a clue and can't understand that if the child

appears well they still can be flaring. Please make sure every railing that

she will use is very, very secure and where able a railing on both sides.

Even when told not to do it, when in a hurry or sometimes when they tire of

being on their butts she may just walk up the stairs anyway. Crutches are

very uncomfortable and unsafe on stairs. When her knees and hip are really

bad and my daughter wants to get out we either use the wheelchair or she has

arm crutches which are much more comfortable and secure. They sell them on

EBay for less that your co-pay most of the time. God Bless.

In a message dated 4/10/2010 5:18:58 P.M. Eastern Daylight Time,

farriordatt (DOT) net writes:

My granddaughter' My granddaughter' <WBR>s rhemy says no more stairs for her

because of hip inflammation that is not responding to drugs. She has stairs

at her school and no elevator. Her Mom is moving the computer to the main

floor and her bedroom is already on the main floor. She spends time at her

dad's and in his house is a split level and the bedrooms and baths are on

the second level. The doctor said she may have to use crutches. Does anyone

have any ideas? I suggested at home she sit on the stairs and scoot up and

down when she has to go up o

Dianne grandma to Nora 15 poly and Emmy 13 poly

[Guest guest]

As I posted earlier.  Jess (13) wont go to school in her wheel chair and

generally wont go on crutches either.  Kids are cruel and they don't seem to

understand.  One day she is fine, the next she can't walk.  They tend to tease

and think she wants attention.  It is sad, like she doesn't endure enough!  I

jsut keep her home.

________________________________

From: Dianne Farrior <farriord@...>

Sent: Sun, April 11, 2010 6:05:39 PM

Subject: Re: Problems with stairs

 

We have a 504 plan in place.  My daughter and I talked today and came to the

same conclusion, that she needs to have home instruction and go to school maybe

two days a week.  We moved the computer into the dining room from down

stairs.  My daughter has to work Monday and Tuesday and I am talking her 17

month old to the doctor for her Tuesday as a followup to having tubes put in her

ears.  So I was going to try to make an appt. with the 9th grade administrator

to talk about this.  One of the problems with being at home and going to school

is that her Spanish class is an advanced one and they mainly do conversation, so

missing class is makes it hard.  But, we must do what we have to not to do any

more damage to her joints. 

 

I wish she would use a wheelchair when we are out, but she does not want to. 

(being 15).  I will look into the arm crutches.  Thanks for the suggestions. 

Dianne grandma to Nora 15 poly and Emmy 13 poly

From: URnotIMaol (DOT) com <URnotIMaol (DOT) com>

Subject: Re: Problems with stairs

@group s.com

Date: Saturday, April 10, 2010, 10:28 PM

 

Hi Dianne, First I would make a plan with the school for an IEP and set up

home instruction for her. Once that is done when she is doing well or if

they can accommodate her she can go to school. Whenever necessary once in

place they send home instructors. Please educate the home instructors as to

her condition as most haven't a clue and can't understand that if the child

appears well they still can be flaring. Please make sure every railing that

she will use is very, very secure and where able a railing on both sides.

Even when told not to do it, when in a hurry or sometimes when they tire of

being on their butts she may just walk up the stairs anyway. Crutches are

very uncomfortable and unsafe on stairs. When her knees and hip are really

bad and my daughter wants to get out we either use the wheelchair or she has

arm crutches which are much more comfortable and secure. They sell them on

EBay for less that your co-pay most of the time. God Bless.

In a message dated 4/10/2010 5:18:58 P.M. Eastern Daylight Time,

farriordatt (DOT) net writes:

My granddaughter' My granddaughter' <WBR>s rhemy says no more stairs for her

because of hip inflammation that is not responding to drugs. She has stairs

at her school and no elevator. Her Mom is moving the computer to the main

floor and her bedroom is already on the main floor. She spends time at her

dad's and in his house is a split level and the bedrooms and baths are on

the second level. The doctor said she may have to use crutches. Does anyone

have any ideas? I suggested at home she sit on the stairs and scoot up and

down when she has to go up o

Dianne grandma to Nora 15 poly and Emmy 13 poly