Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 My 5 year old Abby is pauci extended, not systemic, but has been on MXT for about 9 months at a dose of 20mg to start and now at 20.5 now. I guess jaws don't respond as well as the other joints. She has also gained weight so the rheumy increased it. She has responded well to the med. We inject her once a week in her sleep and she doesn't even wake up anymore. She is on folic acid as well and has had no side effects. Sent from my iPhone On May 2, 2010, at 6:11 AM, wrote: The Juvenile Arthritis Forum Messages In This Digest (14 Messages) 1a. OT - BPPV From: veristroud@... 1b. Re: OT - BPPV From: and Schulz 1c. Re: OT - BPPV From: Beth Yohnk 1d. Re: OT - BPPV From: veristroud@... 1e. Re: OT - BPPV From: veristroud@... 2a. Re: introduction; any advice on living with systemic day to day?? From: nn 2b. Re: introduction; any advice on living with systemic day to day?? From: nn 2c. Re: introduction; any advice on living with systemic day to day?? From: nn 2d. Re: introduction; any advice on living with systemic day to day?? From: nn 2e. Re: introduction; any advice on living with systemic day to day?? From: Price 2f. Re: introduction; any advice on living with systemic day to day?? From: Amy Hendrickson 2g. Re: introduction; any advice on living with systemic day to day?? From: redfeather03@... 2h. Re: introduction; any advice on living with systemic day to day?? From: Price 3a. @ Ford From: Joann Bullock View All Topics | Create New Topic Messages 1a. OT - BPPV Posted by: " veristroud@... " veristroud@... veri_stroud Sat May 1, 2010 4:32 am (PDT) I am in need of information and know there must be at least one person on this list with some help for me. Does anyone know much about BPPV - Benign Paroxysmal Positional Vertigo? I have recently been diagnosed with this and am struggling. The only people I have found with any knowledge about this are my doctors. Which I am thankful they have the knowledge but itis difficult to talk to them every day. they have all the book knowledge but not the personal experience. I have several other things going on within my body at this time as well and am convinced that they are connected although the doctor seems to think they are not. HMmmm. I am just not sure where to turn. Jaye is quite concerned and has become Dr. Mom and given direct insturctions on getting an MRI done and other things. She told me that now I have to listen to her and do what needs to be done. She is more impatient with my testing then I think I may have been with her stuff. She told me that I made her this way, she learned all she knows from me. She also told me that she thinks she could probably become a doctor with less schooling then most. She is quite funny. Any input is appreciated. Thanks Veri Quote Link to comment Share on other sites More sharing options...
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