RE:@ Ford

[Guest guest]

Thanks for the reply. She sees Dr. Grom. She liked him but had issues with the

fellow making her feel like they were “over blowing†all the symptoms. I

see Dr Huggins (since Graham left) and have not seen a fellow since our first

appt. I told her she can request to not see a fellow if that makes her feel

better.

She is pursuing this further. got the orthotics for her shoes and is

starting the physical therapy. I was surprised they didn’t give them anything

for the pain/stiffness. She was calling back on Friday and I haven’t talked

with her yet. I hope it all works out for them and they don’t need to join us

here. It saddens me to see her daughter at school, especially since Zoe never

had these issues.

Joann

From: [mailto: ] On Behalf Of

Miria Ford

Sent: Thursday, April 22, 2010 10:40 PM

Subject: Re: Question for a friend that may be heading down the JRA path

May I ask which dr. she is seeing? Izzy sees Dr. and he has been very

good to her. Just hang in there. I know waiting is hard to do. Be firm and stand

your ground to get the answers that you need and deserve. My DD never complains

of pain, but yet she is only 2 1/2. She looks and acts like a normal child, but

I can always tell when she is having a bad day, bc she is crabby and fussy, like

right now, bc it is getting ready to rain. Her regular ped. thought she had

rickets at first, until we got referred to a ped. rheumy. I will keep and

your family in my thouhts. Feel free to email me.

Miria and Izzy, 2 1/2, Poly JRA, Chillicothe, OH

From: Joann Bullock <joann@... <mailto:joann%40pnd.com> >

Subject: Question for a friend that may be heading down the JRA path

<mailto: %40>

Date: Wednesday, April 21, 2010, 10:47 AM

With her daughter.

A little background, is very stiff in the mornings and it takes her a

good hour plus to relax some, her teachers say she looks like Charlie

Chaplin walking into class some days. She is in Montessori, so she does a

lot of works on the floor. She complains of aches but never any real pain.

Her pediatrician referred them straight to Rheumatology at Cincinnati

Children's. Her initial visit, the doc does not believe that she has JRA

but is very hyper-flexible and that her body has tightened up all around her

joints to protect her. He did do a series of blood work but sed rate seems

to be the only inflammation marker he checked. He thinks it is mechanical

and that lots of PT and shoes inserts is what needs.

Below is the " off " test results and my friend is wondering if anyone has any

idea if they could be related to JRA or something else...many of them are

markers for Leukemia, and that is freaking her out, so she is trying to stay

off the internet.

Thanks, I know you are always a great group to turn to for things.

Joann

Zoe-joints still in remission for almost 2 years after only

naturopathic/ homeopathic treatment.

blood values

Joann,

Thanks for you talking me through this!

Here are all the abnormal blood results we got for so far:

ESR (sedrate): 22, high (range=1-10)

SPP(Serum Protein Profiles) and TSH (Thyroid) all within range.

Differential. ..

Lymphs 29, low (range=38-46)

monocytes: 15, high (range= 0-8)

Lymph Absolute: 1.05, low (range= 1.5-7)

CBC with Differential. ..

WBC: 3.7, low (range=5-14. 5)

MCV level: 72.1, low (range= 77-95)

MCH level: 24.3, low (range= 25-33)

If you find out anything helpful, let me know,