JRA and hotchkins lymphoma

[Guest guest]

Greetings from the hospital bedside. Well, it seems my son has become one of the

few who develop hotchkins lymphoma from taking methotrexate. After only three

weeks of doses, his lymph system is in utter chaos. He's been under more tests

than a " House " episode in the last 48 hours, and we are awaiting the final

results from a boatload of tests to develop a chemo treatment plan sometime

Monday or Tuesday. They are putting a pic-line (sp?) in Monday. We're

overwhelmed but also awed by the caliber of doctors who are coming to his rescue

here. Internationally renowned experts. Still, this is not the field I would

have chosen for my son to distinguish himself . I finally gave in and asked

for sedatives yesterday after not sleeping for three days, and slept 10 hours

last night. Definitely one of those " put on your own oxygen mask before helping

your children " kinds of decisions.

If any of you out there have been through this " quasi-rare " complication, I'd

appreciate hearing from you. Thanks for the many messages of support, it has

meant alot. Compassionate new friends sprung from total strangers...how cool is

that? Best use ever of the internet, I think.

Allie