Re: JIA Webinar playing now

[Guest guest]

Bummer. I'm from Michigan and can't seem to register because of the postal

address not being from Canada. Please share the information with the group

after the event. Thank you!

On Sat, Mar 27, 2010 at 12:07 PM, ne Y <susannefountain@...>wrote:

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> JIA Webinar playing now. It has been very informative so far.

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> still time to register and listen in.

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> http://jawebinar.arthritis.ca/

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> ne

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[Guest guest]

try this link

Thats too bad. I'm sorry that you cant get on it. I will try and convey

information when it is over.

http://www2.webcastcanada.ca/arthritis/web-march27-eng.php

_________________________________________________________________

Take your contacts everywhere

http://go.microsoft.com/?linkid=9712959

[Guest guest]

Ok, so I'm posting some of the info that I took notes on while watching the

webinar. there was so much info there was no way to remember everything. But the

webinar will be posted in April on the Canadian Arthritis Society site so you

should be able to see it then. It was really informative so I encourage

especially newly diagnosed to watch it if possible.

Please if I have interpreted something wrong or have the wrong info, reply and

correct me ) I would like to hear any opinions or experiences with any of this

information.

- Oligo can turn into another " sub type " of arthritis. Poly cannot. Poly will

stay Poly.

- You can be sytemic with out having the actual pain of arthritis for years and

before getting all the symptoms (fever, rash etc). (My daughter is not systemic

so I'm not sure what this means.)

- It is the TNF cells that make you feel achy and tired when flared. It is the

Biologics that block the TNF.

- Biologics (Remicade, Humira etc) block TNF cells from telling your immune

system to attack joints causing arthritis, but they will also tell your Immune

system to ignore cancer cells as well in the process (Eeeek scary!.)

- MTX is a type of chemotherapy and possible side effects MAY include- nausea,

mouth sores, diarrhea, hair loss, liver damage, problems with bone marrow. ( I

have read that in rare cases it can cause Aplastic anemia)

- " outgrowing " JIA depends on severity at diagnosis. the more joints involved

the less chance that a child will outgrow it.

- getting a cold or the flu can trigger a flare because it triggers a response

form the Immune system. So keeping Immunizations up to date is important.

- When trying to come off of any of the medications it is important to do it

VERY VERY slowly.

ne & na 6 (Poly & Uveitis - MTX & remicade )

From: susannefountain@...

Date: Sat, 27 Mar 2010 10:30:55 -0600

Subject: RE: JIA Webinar playing now

try this link

Thats too bad. I'm sorry that you cant get on it. I will try and convey

information when it is over.

http://www2.webcastcanada.ca/arthritis/web-march27-eng.php

__________________________________________________________

Take your contacts everywhere

http://go.microsoft.com/?linkid=9712959

[Guest guest]

I'm so glad that you found it informative. I really thought it was great. I

never understood how the MTX and Remicade actually worked in the body and this

explained it so well. Arthritis is all so confusing, and knowledge is power for

me. I guess they are posting the Webinar on the website (Canadian Arthritis

Society)in April. I will be watching it again for sure as there was just so much

information in it.

ne & na (Poly & Uveitis remicade & MTX)

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> I thought that this was one of the best " introduction to biologics " that I

have ever heard. I might add that I have heard many speakers, mostly at the

AJAO Conferences in the US, but they way this one was presented was wonderful.

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> Many thanks to the person who passed this along to the group!

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> Widdis

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