Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Hi all, My name is Kim. My daughter will be 5 next month and she has had Still's for almost 3 years now. It took a long time to get a diagnosis with her not only because it is hard to diagnose but because she also has Down syndrome, Autism and other health issues so no one was sure until her joints got bad. Her reuhmatologist had never seen a rash quite like her was and her labs were more off than he had ever seen either. I have tried so many things to help heal her from this horrible disease and have not had much success. I took her to homeopathic doctors, chiropractors, did herbs and almost every diet change possible. I did have the most success with an herbal combo called Zyflammend. It actually worked for her for almost a year and then the dose ended up being double that of an adult and we had to cave in and give her the drugs again. She had been on Anakinra for a year now and has not had one flare during that time. I hate drugs and try hard to natural things when ever possible. Today she started to get hives again and I am so freakin mad about it. I am exhausted over this fight with her and with all her other problems that she had is is overwhelming. I believe that there is a way to treat this naturally but just don't know what direction to go and don't have the money to pay someone to do it for me and even if I did I don't know who could help anyway. My question is has anyone ever had success with alternative treatments? Has anyone ever tried a fast either water or juice fast to help heal this disease? I know a lot of about health and fasting and have seen and heard of it doing amazing things for many with disease but for a child it is just a different story. There are clinics who do medically supervised fasting but I don't want to just jump in until I hear others experiences with it (if any). I'm sure it seems drastic and most people would rather just do what the doctors say but I have seen too many problems with traditional drugs and their side effects and want to see what else there is. I will of course continue to give her the medication they have prescribed until I find another way, don't get me wrong. Anyway blah blah, I'm sure I'm going in circles but just am desperate to not have to increase the drugs with such horrible side effects. Please let me know your experiences if you have had any with alternative treatments thank you Kim Quote Link to comment Share on other sites More sharing options...
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