Re:need advice dealing with school - VERY LONG

February 6, 2010

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Your son needs at minimum a 504 but will most likely qualify for an IEP. , 6

and in Kindy has an IEP and has had it since preschool. In our case got the

IEP initially for 'significant' developmental delays and speech issues...it is

now for his physical disabilities (his developmental delays were actually his

undiagnosed arthritis), severe speech impairment, and nystagmus/vision issues.

However he too had/has some major sensory issues. In my research I have found

SPD alone is not always a reason for an IEP but you can get accommodations for

it from an IEP.

Google wrights law and ask for a copy of your school districts disabled

child/special needs education policy...I found ours on the Internet...all 250+

pages of it. Schedule a meeting with whoever is in charge of your schools

'special needs' program. Prior to that meeting get documentation from your

pediatrician, rheumatologist, any thearapists, and any other professional who

works with and knows your child. I wrote letters that used the terminology used

in the school districts policy to describe my child and his issues, as well as

what specific accommodations we needed (you can google 504 accommodations jra,

spd, whatever and get tons of ideas) and had the doctor transfer to his

letterhead and sign.

At the IEP meeting I presented informational packets to each participant. In our

case I was and am very lucky...our school was very cooperative...I was able to

get almost everything without a fight. I fully believe a lot was based on my

prepreparation and not going in like a lion..lol! Right now I will guess that

most schools are dealings with severe budget cuts and you will fight an uphill

battle...but it's a battle worth fighting. I know when I inquired about having

my daughter evaluated (she has ADHD and I had some other concerns until we

tweaked her medication) earlier this year I was told it would be a year if I

waited for the school to do it. However I found out I could use outside

professionals and started down that road.

Sent from my iPhone

February 6, 2010

Whoops I wasn't quite done...anyway you need to continue what you are

doing...work with and educate your childs educators. Know that many schools

fight but it is the law. One other resource if you have an iPhone is the IEP

app...I have heard it is a great resource.

Hang in there...most schools probably have not dealt with a child like ours.

ans , 6, poly (04/09) plus a bunch of other 'stuff'

>

> ,

>

> Your son needs at minimum a 504 but will most likely qualify for an IEP. ,

6 and in Kindy has an IEP and has had it since preschool. In our case got

the IEP initially for 'significant' developmental delays and speech issues...it

is now for his physical disabilities (his developmental delays were actually his

undiagnosed arthritis), severe speech impairment, and nystagmus/vision issues.

However he too had/has some major sensory issues. In my research I have found

SPD alone is not always a reason for an IEP but you can get accommodations for

it from an IEP.

>

> Google wrights law and ask for a copy of your school districts disabled