Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 My son is due to start Orencia on Tuesday. We'll let you know how it goes. On Fri, Jan 29, 2010 at 4:16 PM, <Mathena@...> wrote: > > > We just got back from PCMC, Jordon had yet another round of steroid > Injections, in his wrists, knees, and ankles. He is asleep atm, the entire > ride home he was in a lot of pain, but seems to be better now and hopefully > he wakes up a little better. > His Doctor told us he wants to see Jordon in 4 weeks, and if these > Injections don't work that he will put Jordon on > Orencia(sp?) and also keep him on the his Naproxen & MTX, but that he will > raise Jordon's dose, he gets .8 ml once a week of the MTX at the moment. > > Is anyone on Orencia? is it any good? I've been reading about it online and > reading the pamphlets the doctor gave us, but I would really like some input > from people who are on it or have been on it. > > , Bryon, Jordon, & > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 ok ty -------------------------------------------------- From: " Moy " <jaimelynmoy@...> Sent: Friday, January 29, 2010 3:25 PM < > Subject: Re: Jordon Injections > My son is due to start Orencia on Tuesday. We'll let you know how it goes. > > > On Fri, Jan 29, 2010 at 4:16 PM, <Mathena@...> wrote: > >> >> >> We just got back from PCMC, Jordon had yet another round of steroid >> Injections, in his wrists, knees, and ankles. He is asleep atm, the >> entire >> ride home he was in a lot of pain, but seems to be better now and >> hopefully >> he wakes up a little better. >> His Doctor told us he wants to see Jordon in 4 weeks, and if these >> Injections don't work that he will put Jordon on >> Orencia(sp?) and also keep him on the his Naproxen & MTX, but that he >> will >> raise Jordon's dose, he gets .8 ml once a week of the MTX at the moment. >> >> Is anyone on Orencia? is it any good? I've been reading about it online >> and >> reading the pamphlets the doctor gave us, but I would really like some >> input >> from people who are on it or have been on it. >> >> , Bryon, Jordon, & >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Remember to push the fluids. The one time we didn't and was a little dehydrated from having a stomach bug....she got an extremely painful migraine. I used to buy her a large gatorade to drink the morning of the infusion. And that worked. She only got the headache the one time she didn't drink. We didn't notice any other side effects. Take care and good luck. > > > > > > > We just got back from PCMC, Jordon had yet another round of steroid > > Injections, in his wrists, knees, and ankles. He is asleep atm, the entire > > ride home he was in a lot of pain, but seems to be better now and hopefully > > he wakes up a little better. > > His Doctor told us he wants to see Jordon in 4 weeks, and if these > > Injections don't work that he will put Jordon on > > Orencia(sp?) and also keep him on the his Naproxen & MTX, but that he will > > raise Jordon's dose, he gets .8 ml once a week of the MTX at the moment. > > > > Is anyone on Orencia? is it any good? I've been reading about it online and > > reading the pamphlets the doctor gave us, but I would really like some input > > from people who are on it or have been on it. > > > > , Bryon, Jordon, & > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 He had a lot of pain all weekend from the injections, but he says it is ok now. He has a bleeding disorder also, so before every procedure he gets he has to receive DDAVP so he doesn't bleed out. And because of that he has restricted fluids for the next 24 hours, so we couldn't push any fluids. When they gave him the injection in one of his wrists it started bleeding, but since he had his meds they were able to push pressure on it and it stopped. We have trouble during injection time with his blood glucose going sky high because of the Steroids, we are working closely with his Endroconologist. From: slevindoski Sent: Monday, February 01, 2010 7:21 AM Subject: Re: Jordon Injections Remember to push the fluids. The one time we didn't and was a little dehydrated from having a stomach bug....she got an extremely painful migraine. I used to buy her a large gatorade to drink the morning of the infusion. And that worked. She only got the headache the one time she didn't drink. We didn't notice any other side effects. Take care and good luck. > > > > > > > We just got back from PCMC, Jordon had yet another round of steroid > > Injections, in his wrists, knees, and ankles. He is asleep atm, the entire > > ride home he was in a lot of pain, but seems to be better now and hopefully > > he wakes up a little better. > > His Doctor told us he wants to see Jordon in 4 weeks, and if these > > Injections don't work that he will put Jordon on > > Orencia(sp?) and also keep him on the his Naproxen & MTX, but that he will > > raise Jordon's dose, he gets .8 ml once a week of the MTX at the moment. > > > > Is anyone on Orencia? is it any good? I've been reading about it online and > > reading the pamphlets the doctor gave us, but I would really like some input > > from people who are on it or have been on it. > > > > , Bryon, Jordon, & > > > > Quote Link to comment Share on other sites More sharing options...
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