Re: RE: Congrats to the Brides!!

[Guest guest]

Our kiddoes are growing up. Congratulations to both n and " Joe " !! WOW!

and Rob 20 JAS

Wedding news

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> I see that posted it looks like n will be having

> wedding news

> soon so I thought I would let you know that our daughter is

> engaged to be

> married. They are getting married on July 2, 2010. For those

> that don't know

> our story our daughter was diagnosed with JRA after over 6

> months of

> treatment for a knee injury that occurred while dancing. She

> used to perform

> with a traveling group doing ballet on pointe, modern, jazz and

> more. She

> danced with her school dance team. Sadly JRA put an abrupt stop

> to that--she

> was taking 60 mg of Prednisone and all kinds of other icky

> things to get

> through the Nutcracker and realized her dance dreams were now

> over at the

> age of 14. She quickly ran through all the meds available until

> she was able

> to enter a trial for Enbrel which was only minimally successful. After

> ending up in a wheelchair she was switched to Remicaid which was

> much more

> successful but still not great. Now she is on Humira and it has

> been the

> best

> for her.

>

> Of course, it wasn't just that simple. We spent many days at the

> clinic, the

> ER, having injections and emergency surgery. But through it all

> she has come

> through it strong. She graduated with her AA from college days before

> graduating from high school, she was able to play in Carnegie

> Hall (which we

> weren't sure would happen because of her emergency surgery). And

> now she is

> teaching First Grade full time after graduating from college.

> Teaching has

> turned out to be a great field for her because it gives her

> flexibility to

> move around the room as needed, etc. and she has guaranteed weekends

> (although as a first year teacher she does go in to school on

> Saturdays at

> times) and holidays etc off.

>

> I write this to give you hope if you are just starting on this

> journey. It

> may not be an easy journey and your child may not go into remission

> (although I pray they will--our daughter has not been that

> lucky) but they

> will succeed. Don't hold them back and don't let them hold

> themselves back

> because of the disease. I read through some of the emails I have

> saved and

> they made me cry remembering those hard times but there have

> been great

> moments too. I wish you all hope, and the best of tomorrows.

>

> e, mom to " joe " 23 poly+

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