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My five year old, nie, was diagnosed with jra when he was 14 months old. His

symptoms are under control with a shot of Enbrel once a week. But he started

kindergarten this year and has been sick a lot already. Every time he's sick

with a fever, we miss a shot. We seem to be on a two-week cycle of shot, sick,

shot, sick. I feel like I have to choose joint pain or the flu for him. I don't

know anyone else dealing with jra in a young child and our doctor isn't much

help. Should I be homeschooling him so he stays away from school germs? Or will

he get stronger? I don't know what to do.

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Home school or public is a difficult decision for many parents when they have a

child with a chronic illness that causes them to miss school. You have to make

that choice yourself in a way that you are comfortable with. If you are not

comfortable with it or unable for one reason or another there are other options.

Do you have a 504 plan for your child? You can look into homebound school where

the school must provide tutoring for your child when they miss. There are many

on this list that have dealt with this question and I am sure some of them will

chime in to help you out. I feel for you as you have begun a new season in your

life with the JRA. I hope that nie can feel better soon and stay healthy.

Veri & Jaye poly

Missing School

My five year old, nie, was diagnosed with jra when he was 14 months old. His

symptoms are under control with a shot of Enbrel once a week. But he started

kindergarten this year and has been sick a lot already. Every time he's sick

with a fever, we miss a shot. We seem to be on a two-week cycle of shot, sick,

shot, sick. I feel like I have to choose joint pain or the flu for him. I don't

know anyone else dealing with jra in a young child and our doctor isn't much

help. Should I be homeschooling him so he stays away from school germs? Or will

he get stronger? I don't know what to do.

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Is this your first child to go to school? I can tell you from experience that

when my first one started, after being home and not really exposed, she got sick

often. Then she would bring it home to the two others I had at home. So they had

more immunities built up before they started (my second child, is the one

with allergies, asthma and arthritis) so they did not get sick quite as often

once they started. was often sick because of his other issues. Your child

could just be experiencing the normal new exposures, if he was not in a day care

or school situation before.

Honestly, homeschooling is your choice. Your son is young, and working with him

to keep up is a bit easier. If you are at a public school, you can get a 504

plan in place. My kids went to private school and I was able to just work out

issues with them informally.

In my experience, did fine overall at school. He was older when he

developed his arthritis, however. When he started on MTX he was actually less

sick with colds and viruses than he had been before he started it. Even his

asthma settled down. I am not sure why. His school issues were more pain and

being tired from the arthritis.

It is too bad your dr is not being much help. When all else fails, follow your

instincts and determine what you think would work best for your child.

Michele ( 22, spondy)

________________________________

From: [mailto: ] On Behalf Of

abbie_matt

Sent: Monday, October 19, 2009 7:04 PM

Subject: Missing School

My five year old, nie, was diagnosed with jra when he was 14 months old. His

symptoms are under control with a shot of Enbrel once a week. But he started

kindergarten this year and has been sick a lot already. Every time he's sick

with a fever, we miss a shot. We seem to be on a two-week cycle of shot, sick,

shot, sick. I feel like I have to choose joint pain or the flu for him. I don't

know anyone else dealing with jra in a young child and our doctor isn't much

help. Should I be homeschooling him so he stays away from school germs? Or will

he get stronger? I don't know what to do.

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I agree with Michele - this could be the exposure when immunities have not been

built up before. Many of my friends who have children without chronic illness

who weren't in a daycare settting before kindergarden found themselves with a

frequently sick child in the first couple of years. My son was in daycare from

the time he was 3 months old - though he started out in a " in-home " daycare set

up, with few children and little change - he did pick up some illnesses - but

stayed pretty healthy - though he did develop his first auto-immune disorder at

age 2, and experienced flares when his immune system was triggered by various

exposures - though they were not frequent. When he was three, he moved into a

daycare/preschool center and we experienced an increase in colds, etc - and as a

result more frequent flares of his MCD. He was three when the JRA started - so

was a couple of years into it when he started kindergarden - at 4, (almost 5) in

the public school system. I wasn't in a position to go any other route, though I

knew that anything that triggered the immune system could (and would - in those

early years) trigger a flare. I did get him signed up for at home tutoring,

provided by the school system when he was too ill to attend school - though we

never were able to take advantage of that because although he would miss a week

at a time - then maybe another week after attending a couple of days, he never

missed the total subsequent days required in land (at least as it was set up

at that time) - to initiate the at home tutoring. Most of the time, when he was

out of school, he was in the hospital with his systemic flares, and not at home

anyway - if he was missing more than a day or two.The years from K through 2nd

Grade were the worst - with the most absences due to hospitalization and flares

- but we managed. He was able to make up the work - and took it all very

seriously - once making me stop by the school to pick up his assignments on the

way back to the hospital to be admitted when the Doc saw his lab results and

called for us to come back.

In spite of being immune-compromised by the meds - has had few illnesses

- or they would be so mild for whatever the reason, that if they didn't trigger

a flare, he would be doing great. I don't know why exactly - though I have

stressed the frequent hand washing, and not sharing pencils, etc at school -

though he would often share his pencils - I would tell him to tell the kid to

just keep it (and found myself buying a lot of pencils!) He has always had a

Disease Alert notification that required I be notified if a list of illnesses

developed among those in his classes & the school worked closely with me.

Overall, I think you need to follow your gut-instinct and do what you feel is

best for your child. I personally have felt that I need to be ever-vigilant, and

pay attention to what is going on (we didn't see close family friends for a

period of 3 months when Chicken Pox had 3 breakouts in their school) and

currently don't take to places where the flu-mist is being given, as it

is a live vaccine and he shouldn't be exposed to it (when he was still in

elementary school, I kept him home on the flu mist days & didn't allow him to go

to his friend's house when they had received it).

I made the decision at some point, that the only way to really prevent him from

being exposed to illness would be if I completely isolated ourselves and moved

to a mountain somewhere and had no contact with anyone - so decided that his

quality of life was more important, that I could be reasonable and limit the

risk without putting him in a bubble. Home schooling is the right choice for

many, and many people have very good reasons to choose that which have nothing

to do with chronic illness - but my personal opinion is that if you go out in

public at all - with or without your child, you come into contact with all types

of germs, bacteria and sick people, so it may limit the exposure, it won't

eliminate it.

With all of that said, it does amaze me the way that folks drag their sick

children everywhere - just this week I was at the grocery store and the lady in

front of me - with a child he was playing with the credit card signature " pen " ,

touching everything in site commented that the boy was " too sick " and with a

fever so he couldn't go to school that day - and the Coaches Mom last week who

tells me her son - who was present to play the game - had a fever for two days,

including that morning. wasn't at the grocery store with me - but often

is, and at the ballgame I walked over and had him move to the oposite end of the

dugout and said a little prayer.

I wish you and the son the best.

Val

Rob's Mom (12,systemic)

Is this your first child to go to school? I can tell you from experience that

when my first one started, after being home and not really exposed, she got sick

often. Then she would bring it home to the two others I had at home. So they had

more immunities built up before they started (my second child, is the one

with allergies, asthma and arthritis) so they did not get sick quite as often

once they started. was often sick because of his other issues. Your child

could just be experiencing the normal new exposures, if he was not in a day care

or school situation before.

Honestly, homeschooling is your choice. Your son is young, and working with him

to keep up is a bit easier. If you are at a public school, you can get a 504

plan in place. My kids went to private school and I was able to just work out

issues with them informally.

In my experience, did fine overall at school. He was older when he

developed his arthritis, however. When he started on MTX he was actually less

sick with colds and viruses than he had been before he started it. Even his

asthma settled down. I am not sure why. His school issues were more pain and

being tired from the arthritis.

It is too bad your dr is not being much help. When all else fails, follow your

instincts and determine what you think would work best for your child.

Michele ( 22, spondy)

________________________________

From: [mailto: ] On Behalf Of

abbie_matt

Sent: Monday, October 19, 2009 7:04 PM

Subject: Missing School

My five year old, nie, was diagnosed with jra when he was 14 months old. His

symptoms are under control with a shot of Enbrel once a week. But he started

kindergarten this year and has been sick a lot already. Every time he's sick

with a fever, we miss a shot. We seem to be on a two-week cycle of shot, sick,

shot, sick. I feel like I have to choose joint pain or the flu for him. I don't

know anyone else dealing with jra in a young child and our doctor isn't much

help. Should I be homeschooling him so he stays away from school germs? Or will

he get stronger? I don't know what to do.

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>

> With all of that said, it does amaze me the way that folks drag their sick

children everywhere - just this week I was at the grocery store and the lady in

front of me - with a child he was playing with the credit card signature " pen " ,

touching everything in site commented that the boy was " too sick " and with a

fever so he couldn't go to school that day - and the Coaches Mom last week who

tells me her son - who was present to play the game - had a fever for two days,

including that morning. wasn't at the grocery store with me - but often

is, and at the ballgame I walked over and had him move to the oposite end of the

dugout and said a little prayer.

>

>

THIS exact thing is what drives me crazy. It would have even appalled me (if I

knew about ppl bringing feverish kids in public) BEFORE I had a med fragile

child. I know sometimes you have to get milk, and your kid is sick, and they

aren't old enough to care for themselves (or too sick to do so) and nor is any

other child old enough to care for them. Or, say, you live out of town and you

need the milk on the way home from the drs. But, I could live with others

bringing kids to the store. I KNOW this is a germy place, and try to keep my son

out of it, or we use the GermX after going.

But, this happens at church. I think church is optional. Even mass is optional

when your kid is sick, and many catholics believe missing mass is a mortal sin.

Except in the case of a sick kid (or kids in my case). Last winter, we thought

about pulling our kids out of the Sunday School classes and Wed night Masters

Clubs, because it is all age segregated. Therefore, even if the baby doesn't go,

all the kids are exposed to all the kids in the church, and therefore, he is

exposed to all of them secondhand. Last winter, when he had 3 pneumonias in 3.5

mos, including one hospitalization with RSV/brochiolitis/pneumonia. That hosp

trip was after all of his summer inpatient stasys. That was nearing the end of

the season though.

So, this year, he and his sister are hospitalized in mid Sept. I thought that

was a little early to worry about severe illness. Nope. Of course, this illness

came from the public school, through my oldest, and not through the church.

Although, there are a lot of PS kids there. So, his pulmo ped ordered us to keep

him out of crowds for this year. Probably due to the H1N1 thing as well, and his

history. So, we are back to deciding if we pull all the kids out of the prot

church, and go back to mass, since we can take turns, and you are only exposed

to the people just in front and back of you near your pew. Or, just let them go

once a month. Or just let my teen do the youth things. The kids didn't want to

go there anymore anyway, so I guess it works out. I don't hurt anyone's feelings

by pulling them, because we can blame it on drs orders.

There have been many times when I have one that is questionable sick (or two),

and so I drop the older ones off and go home with the baby/preschooler/and sick

child. The church bus brings any children 5yo and up home upon request. That

worked well for the summer, but now we have drs orders.

Do ppl get drs orders to keep their kids out of public/private school? Many drs,

I would assume, feel the PS experience is more important than improved health. I

know my sister's child was homebound with a PS tutor, because of her physical

disabilities. That is a good idea. But, I know it is hard to get. Kymberli

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  • 1 year later...

I wish I hada good answer for you on this one, but we have gone round and round

with my daughters school over this same thing... after " x " ammount of days off,

the school can refuse to give the student credit for the class ( mind you my

daughter is 12 and has a 4.0)  My daughter has an IEP and 501 in place and we

still recieve weekly if not daily calls... At point my daughter has a trach and

using O2 throughout the night and sometimes during the day, so according to the

special services advisors the school can't allow her to even come back yet, but

they still call non stop.   If you finda good way to approach this or if

anyone else has any ideas I would love to hear them too..

 

Good luck

From: Herzberg <skgcifamily@...>

Subject: Missing School

Date: Tuesday, February 15, 2011, 4:58 PM

 

How do you all decide when to send your kiddos to school or not? Caelan is

on his 30th missed school day and has been out since last Wednesday due to

the severe cough that he's had. He missed 3 days two weeks ago when this

started with strep as well. I sent him early last week despite having the

severe cough and the school called and sent him home and said they didn't

want him to attend with such a severe cough. So, I've kept him home since

because he has coughed non-stop since then. We were in the ER last night

doing a chest x-ray because he suddenly started wheezing and his chest

sounded really junky which was new. He did not have pneumonia, but the ER

doc said he was wheezing and his asthma was acting up. So, we've been

nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

fevers, but then he typically doesn't. The school nurse called today to ask

if there is anything the school can do to cut his infections, but they are

already great with hand washing and wiping down tables. I asked the nurse if

they want me to try to send him tomorrow even though he is still coughing

terribly and she said no. So, how do you decide when to keep your kid home?

I feel really caught between the school wanting him to return (the principal

was asking when he could come back) and not wanting to send him and expose

him more.

Also, do any of you have plans in place for what the school has to do when

your kids miss X # of days?

Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

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Macey was the poster child for missed school days during elementary school.

One year she missed 64 days. Another year she was on a reduced week and

then homebound altogether.

Then subq came along.

But she does still have her accomodations for missed number of school days.

Fall semester of this year she only missed 3 days in most classes but 6

days in her afternoon classes (that tended to be when symptoms would be at

their worst and she couldn't hold out the day).

Help in the classroom could also be by providing a Hepa filter. It cuts

down on asthma and reactive airway disease triggers.

We did not worry about missing school until probably the 8th grade. Before

that it was gravy if Macey made it most of the week.

Ursula - mom to Macey (15,CVID)

On Tue, Feb 15, 2011 at 4:58 PM, Herzberg <skgcifamily@...>wrote:

>

>

> How do you all decide when to send your kiddos to school or not? Caelan is

> on his 30th missed school day and has been out since last Wednesday due to

> the severe cough that he's had. He missed 3 days two weeks ago when this

> started with strep as well. I sent him early last week despite having the

> severe cough and the school called and sent him home and said they didn't

> want him to attend with such a severe cough. So, I've kept him home since

> because he has coughed non-stop since then. We were in the ER last night

> doing a chest x-ray because he suddenly started wheezing and his chest

> sounded really junky which was new. He did not have pneumonia, but the ER

> doc said he was wheezing and his asthma was acting up. So, we've been

> nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

> fevers, but then he typically doesn't. The school nurse called today to ask

> if there is anything the school can do to cut his infections, but they are

> already great with hand washing and wiping down tables. I asked the nurse

> if

> they want me to try to send him tomorrow even though he is still coughing

> terribly and she said no. So, how do you decide when to keep your kid home?

> I feel really caught between the school wanting him to return (the

> principal

> was asking when he could come back) and not wanting to send him and expose

> him more.

>

> Also, do any of you have plans in place for what the school has to do when

> your kids miss X # of days?

>

>

>

> Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

>

>

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Sue,

We did home school and sent him back mid-year last year. I had put him in KG

and from Dec 1st forward he was sick and was pulled that year. Then the same

in first and after we pulled him that winter we kept him until mid way

through 4th. We put him back because he had some educational issues that I

had tried everything I could for and couldn't get anywhere. So we had to

enroll him in order to get the special ed services. Now he's sick all of the

time and back on IVIG (well subq now).

I'm glad it has worked well for you guys though!

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,

Being the mom of a CVID kid isn't easy. I'm fortunate that academics come

easily to my son. I wish I had some other ideas for you. Good luck!

Sue

On Tue, Feb 15, 2011 at 8:25 PM, Herzberg <skgcifamily@...>wrote:

>

>

> Sue,

>

> We did home school and sent him back mid-year last year. I had put him in

> KG

> and from Dec 1st forward he was sick and was pulled that year. Then the

> same

> in first and after we pulled him that winter we kept him until mid way

> through 4th. We put him back because he had some educational issues that I

> had tried everything I could for and couldn't get anywhere. So we had to

> enroll him in order to get the special ed services. Now he's sick all of

> the

> time and back on IVIG (well subq now).

>

> I'm glad it has worked well for you guys though!

>

>

>

>

>

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Macey's IEP fell under Other Health Impaired. It wasn't based on her

academics.

Ursula

On Tue, Feb 15, 2011 at 8:25 PM, Herzberg <skgcifamily@...>wrote:

>

>

> Sue,

>

> We did home school and sent him back mid-year last year. I had put him in

> KG

> and from Dec 1st forward he was sick and was pulled that year. Then the

> same

> in first and after we pulled him that winter we kept him until mid way

> through 4th. We put him back because he had some educational issues that I

> had tried everything I could for and couldn't get anywhere. So we had to

> enroll him in order to get the special ed services. Now he's sick all of

> the

> time and back on IVIG (well subq now).

>

> I'm glad it has worked well for you guys though!

>

>

>

>

>

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We are also homeschooling :)

What about homebound? You could get the doctor to write for it (stating

that due to medical reasons, he is required to be schooled at home), and

the school has to provide it, including any tutors or therapy. It is

usually only having a teacher a few hours a week (depending on his

workload), but it is better than nothing! Even if you only did it for the

winter time, it would help.

Mindy

> Sue,

> We did home school and sent him back mid-year last year. I had put him

in

> KG

> and from Dec 1st forward he was sick and was pulled that year. Then the

same

> in first and after we pulled him that winter we kept him until mid way

through 4th. We put him back because he had some educational issues that

I

> had tried everything I could for and couldn't get anywhere. So we had to

enroll him in order to get the special ed services. Now he's sick all of

the

> time and back on IVIG (well subq now).

> I'm glad it has worked well for you guys though!

>

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my son use to miss over 40 days per year and it REALLY upset the school because

they could not figure out how to work with him. We did school from home but...

as he got into middle school we could not find a happy medium because it is so

important when they start switching classes to NOT miss time in class. I finally

took him out and home schooled him for 7th and 8th Grade. He is now back in HS

and doing pretty well as far as absences. Actually the BEST we have EVER done

EVER since starting in Kindergarten. I think his sub Q has finally hit a point

that he is pretty protected. I look back and feel like I did the right thing in

taking him out of school my only regret is that I did not take him out sooner.

BARBIE

________________________________

From: aymee <aymeewelch@...>

Sent: Tue, February 15, 2011 2:12:39 PM

Subject: Re: Missing School

I wish I hada good answer for you on this one, but we have gone round and round

with my daughters school over this same thing... after " x " ammount of days off,

the school can refuse to give the student credit for the class ( mind you my

daughter is 12 and has a 4.0) My daughter has an IEP and 501 in place and we

still recieve weekly if not daily calls... At point my daughter has a trach and

using O2 throughout the night and sometimes during the day, so according to the

special services advisors the school can't allow her to even come back yet, but

they still call non stop. If you finda good way to approach this or if anyone

else has any ideas I would love to hear them too..

Good luck

From: Herzberg <skgcifamily@...>

Subject: Missing School

Date: Tuesday, February 15, 2011, 4:58 PM

How do you all decide when to send your kiddos to school or not? Caelan is

on his 30th missed school day and has been out since last Wednesday due to

the severe cough that he's had. He missed 3 days two weeks ago when this

started with strep as well. I sent him early last week despite having the

severe cough and the school called and sent him home and said they didn't

want him to attend with such a severe cough. So, I've kept him home since

because he has coughed non-stop since then. We were in the ER last night

doing a chest x-ray because he suddenly started wheezing and his chest

sounded really junky which was new. He did not have pneumonia, but the ER

doc said he was wheezing and his asthma was acting up. So, we've been

nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

fevers, but then he typically doesn't. The school nurse called today to ask

if there is anything the school can do to cut his infections, but they are

already great with hand washing and wiping down tables. I asked the nurse if

they want me to try to send him tomorrow even though he is still coughing

terribly and she said no. So, how do you decide when to keep your kid home?

I feel really caught between the school wanting him to return (the principal

was asking when he could come back) and not wanting to send him and expose

him more.

Also, do any of you have plans in place for what the school has to do when

your kids miss X # of days?

Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

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Hi Sue,

My son is 15 and in 10th grade and we have done it all with school. In

middle school 6-8 he missed at least 40 days a year. I would pick up his work

and he would return it when he was better. This was before we knew what was

wrong with him. We now know that he has large gaps of information that he

either did not learn or was not given to us during that time. Unfortunately in

high school - 9th grade he also missed so much school that he was unable to keep

his grades up and this of course will be seen by colleges. This past fall we

learned his diagnosis and tried the homebound with teachers coming in.

Unfortunately when he was starting the IVIG he had the troughs prior to

treatment and the headache, etc. side effects after treatment and was still

getting sick off and on. The homebound was completely ineffective because he

often was not well when the teachers came and could not work with them. Our

school district actually seemed relieved

when I withdrew him for cyber school and of course they knew they would be

paying for it. We are now doing the subq at home and he has started 10th grade

all over again. He wants to go back in the fall for 11th grade and that is our

goal. I hope this story helps you to avoid some of my mistakes. Good luck!

- mom to michael/15/CVID and Lizzie 12

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Your lucky you can get the teacher after 5 days, here it takes several weeks for

them to find a teacher and then you get 5 hours max 1 day a week.

________________________________

From: osdbmom <osdbmom@...>

Sent: Wed, February 16, 2011 1:33:52 PM

Subject: Re: Missing School

We have been able to make it work with my kids. I have four, all have asthma,

and three have CVID. I know it doesnt work for all kids, but it has for us. My

youngest right now is 8 and in 2nd grade, I have one in 4th grade, and my cvid

daughter is 13 and in high school now. It can be tricky, but it can be done. We

have a 504 every year. I go pick up homework constantly so they dont fall

behind. And if they need to be out more than 5 days in a row, they get homebound

teaching. My kids miss a LOT of school, but all four are honor roll kids.

Kdg is hard bc so many kids are sick that year, even healthy ones. They dont

wash hands well, they sneeze and cough all over, etc. But it can get better as

they get older.

good luck,

valarie

>

> >

> >

> > How do you all decide when to send your kiddos to school or not? Caelan is

> > on his 30th missed school day and has been out since last Wednesday due to

> > the severe cough that he's had. He missed 3 days two weeks ago when this

> > started with strep as well. I sent him early last week despite having the

> > severe cough and the school called and sent him home and said they didn't

> > want him to attend with such a severe cough. So, I've kept him home since

> > because he has coughed non-stop since then. We were in the ER last night

> > doing a chest x-ray because he suddenly started wheezing and his chest

> > sounded really junky which was new. He did not have pneumonia, but the ER

> > doc said he was wheezing and his asthma was acting up. So, we've been

> > nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

> > fevers, but then he typically doesn't. The school nurse called today to ask

> > if there is anything the school can do to cut his infections, but they are

> > already great with hand washing and wiping down tables. I asked the nurse

> > if

> > they want me to try to send him tomorrow even though he is still coughing

> > terribly and she said no. So, how do you decide when to keep your kid home?

> > I feel really caught between the school wanting him to return (the

> > principal

> > was asking when he could come back) and not wanting to send him and expose

> > him more.

> >

> > Also, do any of you have plans in place for what the school has to do when

> > your kids miss X # of days?

> >

> >

> >

> > Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

> >

> >

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5 days here too but the request has to go thru committee first. You can be

turned down. Even with a doctors signature.

Ursula - Georgia

On Feb 16, 2011, at 4:48 PM, <bluetaelon@...> wrote:

> Your lucky you can get the teacher after 5 days, here it takes several weeks

for

> them to find a teacher and then you get 5 hours max 1 day a week.

>

>

>

> ________________________________

> From: osdbmom <osdbmom@...>

>

> Sent: Wed, February 16, 2011 1:33:52 PM

> Subject: Re: Missing School

>

> We have been able to make it work with my kids. I have four, all have asthma,

> and three have CVID. I know it doesnt work for all kids, but it has for us. My

> youngest right now is 8 and in 2nd grade, I have one in 4th grade, and my cvid

> daughter is 13 and in high school now. It can be tricky, but it can be done.

We

> have a 504 every year. I go pick up homework constantly so they dont fall

> behind. And if they need to be out more than 5 days in a row, they get

homebound

> teaching. My kids miss a LOT of school, but all four are honor roll kids.

>

> Kdg is hard bc so many kids are sick that year, even healthy ones. They dont

> wash hands well, they sneeze and cough all over, etc. But it can get better as

> they get older.

>

> good luck,

> valarie

>

>

> >

> > >

> > >

> > > How do you all decide when to send your kiddos to school or not? Caelan is

> > > on his 30th missed school day and has been out since last Wednesday due to

> > > the severe cough that he's had. He missed 3 days two weeks ago when this

> > > started with strep as well. I sent him early last week despite having the

> > > severe cough and the school called and sent him home and said they didn't

> > > want him to attend with such a severe cough. So, I've kept him home since

> > > because he has coughed non-stop since then. We were in the ER last night

> > > doing a chest x-ray because he suddenly started wheezing and his chest

> > > sounded really junky which was new. He did not have pneumonia, but the ER

> > > doc said he was wheezing and his asthma was acting up. So, we've been

> > > nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

> > > fevers, but then he typically doesn't. The school nurse called today to

ask

> > > if there is anything the school can do to cut his infections, but they are

> > > already great with hand washing and wiping down tables. I asked the nurse

> > > if

> > > they want me to try to send him tomorrow even though he is still coughing

> > > terribly and she said no. So, how do you decide when to keep your kid

home?

> > > I feel really caught between the school wanting him to return (the

> > > principal

> > > was asking when he could come back) and not wanting to send him and expose

> > > him more.

> > >

> > > Also, do any of you have plans in place for what the school has to do when

> > > your kids miss X # of days?

> > >

> > >

> > >

> > > Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

> > >

> > >

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5 days here too but the request has to go thru committee first. You can be

turned down. Even with a doctors signature.

Ursula - Georgia

On Feb 16, 2011, at 4:48 PM, <bluetaelon@...> wrote:

> Your lucky you can get the teacher after 5 days, here it takes several weeks

for

> them to find a teacher and then you get 5 hours max 1 day a week.

>

>

>

> ________________________________

> From: osdbmom <osdbmom@...>

>

> Sent: Wed, February 16, 2011 1:33:52 PM

> Subject: Re: Missing School

>

> We have been able to make it work with my kids. I have four, all have asthma,

> and three have CVID. I know it doesnt work for all kids, but it has for us. My

> youngest right now is 8 and in 2nd grade, I have one in 4th grade, and my cvid

> daughter is 13 and in high school now. It can be tricky, but it can be done.

We

> have a 504 every year. I go pick up homework constantly so they dont fall

> behind. And if they need to be out more than 5 days in a row, they get

homebound

> teaching. My kids miss a LOT of school, but all four are honor roll kids.

>

> Kdg is hard bc so many kids are sick that year, even healthy ones. They dont

> wash hands well, they sneeze and cough all over, etc. But it can get better as

> they get older.

>

> good luck,

> valarie

>

>

> >

> > >

> > >

> > > How do you all decide when to send your kiddos to school or not? Caelan is

> > > on his 30th missed school day and has been out since last Wednesday due to

> > > the severe cough that he's had. He missed 3 days two weeks ago when this

> > > started with strep as well. I sent him early last week despite having the

> > > severe cough and the school called and sent him home and said they didn't

> > > want him to attend with such a severe cough. So, I've kept him home since

> > > because he has coughed non-stop since then. We were in the ER last night

> > > doing a chest x-ray because he suddenly started wheezing and his chest

> > > sounded really junky which was new. He did not have pneumonia, but the ER

> > > doc said he was wheezing and his asthma was acting up. So, we've been

> > > nebbing every 4 hours, but he is still coughing/wheezing. He hasn't run

> > > fevers, but then he typically doesn't. The school nurse called today to

ask

> > > if there is anything the school can do to cut his infections, but they are

> > > already great with hand washing and wiping down tables. I asked the nurse

> > > if

> > > they want me to try to send him tomorrow even though he is still coughing

> > > terribly and she said no. So, how do you decide when to keep your kid

home?

> > > I feel really caught between the school wanting him to return (the

> > > principal

> > > was asking when he could come back) and not wanting to send him and expose

> > > him more.

> > >

> > > Also, do any of you have plans in place for what the school has to do when

> > > your kids miss X # of days?

> > >

> > >

> > >

> > > Mom to Caelan 11 (CVID, selective antibody deficiency, asthma)

> > >

> > >

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