Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 THATS THE BEST NEWS GIRL! You and I are now the same, ha ha ha I have that same diagnosis, it is so obvious it is implant disease isn't it? Like 2+2=4 simple. I also found at my last appt that my lupus titre had gone done dramatically though it was still weakly positive I believe it will come down more too, but my rheum said the same thing, that it doesn't mean it is gone, well what they don't understand is in a regular lupus patient I believe that might be the case but when your talking of implant induced lupus like disease I feel it is completely different. Dr Feng told me at least a year to go to be better and at 7 months now I am believeing that number or even longer, but things are better, I even worked 14 hours yesterday(last night) what a busy hospital this is I work in, hey e ever thought about taking a travel assignment to Idaho Falls? THey need nurses and we could have fun together........hee hee In @y..., eRene@a... wrote: > He everyone. Just wanted to let you all know the > results of my rheumy visit today. > > I have good and bad news. > > The good (and amazing) news is that I'm no longer > testing + for lupus!!!! My titres are negative, as are > the antibodies for lupus. He's not sure if the lupus is > gone forever, or is just dormant now. But at any rate, > there is no clinical signs of disease process going on. > He still very strongly feels that I have a connective > tissue disorder, and has said that I have a > undifferentiated connective tissue disease, formerly > known as mixed connective tissue disease. This includes > fibromyalgia. > > The bad news is that I have been fighting a severe cough > for 8 wks. I have failed 2 courses of antibiotics, and > the cough is getting worse. I'm barely coughing much > up, but the cough is so severe that I'm having terrible > chest pain. I had a CXR done in his office today which > was normal. So, I don't have pneumonia or TB (which I > was beginning to think I might). However, my airways > are very constricted and he says that my symptoms are > very suggestive of asthma and/or reactive airway > disease. He can't tell whether these are permanent > conditions or temporary, but he was concerned enough to > refer me to a pulmonologist/critical care doc. And he > put me on an inhaler, Cipro, and (finally) a cough > medicine. The pulmonologist wants to do PFT's > (pulmonary function tests) and an ABG (arterial blood > gas). I'm not looking forward to that--it is going to > hurt a lot. I'm used to drawing ABG's on pts; never > once did I ever think I'd have to have one drawn from > me. But he is also afraid that since my airway is > constricted that I will either go into status > asthmaticus or go into acute respiratory distress, so > these tests, plus the inhaler are absolutely necessary. > However, I hope these aren't permanent conditions, as I > can't imagine having to carry an inhaler with me the > rest of my life, and always be afraid something will > trigger the attacks. > > So, that's the scoop from out here in Colorado. > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 , I think that the lupus titres are negative proves that my lupus was implant induced. I feel so good, except for the constant aches and pain, but since I have more energy the pain doesn't bother me anymore. I think I will still have problems for the rest of my life, but not on the scale that they have been. Hopefully you and I will continue to get better. As for taking a travel assignment in Idaho Falls, yes I would consider it. I am currently with a recruiter who is wonderful and is the regional director for WA, OR, and ID. I want to stay in her territory, so I will probably travel within those 3 states for the next yr or more. Are you anywhere near Sun Valley? Some nurses I know are working there and love it. I am going to Seattle on Aug 1st to begin my next travel assignment. I'll write you later. Take care, e > THATS THE BEST NEWS GIRL! You and I are now the same, ha ha ha I have > that same diagnosis, it is so obvious it is implant disease isn't it? > Like 2+2=4 simple. > > I also found at my last appt that my lupus titre had gone done > dramatically though it was still weakly positive I believe it will > come down more too, but my rheum said the same thing, that it doesn't > mean it is gone, well what they don't understand is in a regular > lupus patient I believe that might be the case but when your talking > of implant induced lupus like disease I feel it is completely > different. Dr Feng told me at least a year to go to be better and at > 7 months now I am believeing that number or even longer, but things > are better, I even worked 14 hours yesterday(last night) what a busy > hospital this is I work in, hey e ever thought about taking a > travel assignment to Idaho Falls? THey need nurses and we could have > fun together........hee hee > > > > > > In @y..., eRene@a... wrote: > > He everyone. Just wanted to let you all know the > > results of my rheumy visit today. > > > > I have good and bad news. > > > > The good (and amazing) news is that I'm no longer > > testing + for lupus!!!! My titres are negative, as are > > the antibodies for lupus. He's not sure if the lupus is > > gone forever, or is just dormant now. But at any rate, > > there is no clinical signs of disease process going on. > > He still very strongly feels that I have a connective > > tissue disorder, and has said that I have a > > undifferentiated connective tissue disease, formerly > > known as mixed connective tissue disease. This includes > > fibromyalgia. > > > > The bad news is that I have been fighting a severe cough > > for 8 wks. I have failed 2 courses of antibiotics, and > > the cough is getting worse. I'm barely coughing much > > up, but the cough is so severe that I'm having terrible > > chest pain. I had a CXR done in his office today which > > was normal. So, I don't have pneumonia or TB (which I > > was beginning to think I might). However, my airways > > are very constricted and he says that my symptoms are > > very suggestive of asthma and/or reactive airway > > disease. He can't tell whether these are permanent > > conditions or temporary, but he was concerned enough to > > refer me to a pulmonologist/critical care doc. And he > > put me on an inhaler, Cipro, and (finally) a cough > > medicine. The pulmonologist wants to do PFT's > > (pulmonary function tests) and an ABG (arterial blood > > gas). I'm not looking forward to that--it is going to > > hurt a lot. I'm used to drawing ABG's on pts; never > > once did I ever think I'd have to have one drawn from > > me. But he is also afraid that since my airway is > > constricted that I will either go into status > > asthmaticus or go into acute respiratory distress, so > > these tests, plus the inhaler are absolutely necessary. > > However, I hope these aren't permanent conditions, as I > > can't imagine having to carry an inhaler with me the > > rest of my life, and always be afraid something will > > trigger the attacks. > > > > So, that's the scoop from out here in Colorado. > > > > e > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Sunvalley is actually pretty far from here, couple of hours or so, I haven't been there yet. IF is pretty but the winters are pretty cold I am told...anyhow I am glad your doing better, you sound just like me, my energy is good, it is really just the pain issues, and they are always at there worse in the am's....by the evening I am ok, and the cycle starts over everyday, it must have something to do with the toxins building up in my joints and muscles when I am sleeping and not moving around. I wonder if it will ever go away?????? In @y..., eRene@a... wrote: > , > > I think that the lupus titres are negative proves that > my lupus was implant induced. I feel so good, except > for the constant aches and pain, but since I have more > energy the pain doesn't bother me anymore. > > I think I will still have problems for the rest of my > life, but not on the scale that they have been. > Hopefully you and I will continue to get better. > > As for taking a travel assignment in Idaho Falls, yes I > would consider it. I am currently with a recruiter who > is wonderful and is the regional director for WA, OR, > and ID. I want to stay in her territory, so I will > probably travel within those 3 states for the next yr or > more. Are you anywhere near Sun Valley? Some nurses I > know are working there and love it. > > I am going to Seattle on Aug 1st to begin my next travel > assignment. I'll write you later. > > Take care, > e > > THATS THE BEST NEWS GIRL! You and I are now the same, ha ha ha I have > > that same diagnosis, it is so obvious it is implant disease isn't it? > > Like 2+2=4 simple. > > > > I also found at my last appt that my lupus titre had gone done > > dramatically though it was still weakly positive I believe it will > > come down more too, but my rheum said the same thing, that it doesn't > > mean it is gone, well what they don't understand is in a regular > > lupus patient I believe that might be the case but when your talking > > of implant induced lupus like disease I feel it is completely > > different. Dr Feng told me at least a year to go to be better and at > > 7 months now I am believeing that number or even longer, but things > > are better, I even worked 14 hours yesterday(last night) what a busy > > hospital this is I work in, hey e ever thought about taking a > > travel assignment to Idaho Falls? THey need nurses and we could have > > fun together........hee hee > > > > > > > > > > > > In @y..., eRene@a... wrote: > > > He everyone. Just wanted to let you all know the > > > results of my rheumy visit today. > > > > > > I have good and bad news. > > > > > > The good (and amazing) news is that I'm no longer > > > testing + for lupus!!!! My titres are negative, as are > > > the antibodies for lupus. He's not sure if the lupus is > > > gone forever, or is just dormant now. But at any rate, > > > there is no clinical signs of disease process going on. > > > He still very strongly feels that I have a connective > > > tissue disorder, and has said that I have a > > > undifferentiated connective tissue disease, formerly > > > known as mixed connective tissue disease. This includes > > > fibromyalgia. > > > > > > The bad news is that I have been fighting a severe cough > > > for 8 wks. I have failed 2 courses of antibiotics, and > > > the cough is getting worse. I'm barely coughing much > > > up, but the cough is so severe that I'm having terrible > > > chest pain. I had a CXR done in his office today which > > > was normal. So, I don't have pneumonia or TB (which I > > > was beginning to think I might). However, my airways > > > are very constricted and he says that my symptoms are > > > very suggestive of asthma and/or reactive airway > > > disease. He can't tell whether these are permanent > > > conditions or temporary, but he was concerned enough to > > > refer me to a pulmonologist/critical care doc. And he > > > put me on an inhaler, Cipro, and (finally) a cough > > > medicine. The pulmonologist wants to do PFT's > > > (pulmonary function tests) and an ABG (arterial blood > > > gas). I'm not looking forward to that--it is going to > > > hurt a lot. I'm used to drawing ABG's on pts; never > > > once did I ever think I'd have to have one drawn from > > > me. But he is also afraid that since my airway is > > > constricted that I will either go into status > > > asthmaticus or go into acute respiratory distress, so > > > these tests, plus the inhaler are absolutely necessary. > > > However, I hope these aren't permanent conditions, as I > > > can't imagine having to carry an inhaler with me the > > > rest of my life, and always be afraid something will > > > trigger the attacks. > > > > > > So, that's the scoop from out here in Colorado. > > > > > > e > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 e, That is great news about your lupus titres! I hope it continues to move towards normal! As for the cough, keep us informed, that doesn't sound good. I remember when I was first sick I had some coughing fits, too, but they went away and I never really thought much about them, except for the fact that implants do kind of sit right there by the lungs... I hope that your tests are conclusive. God bless Patty ----- Original Message ----- From: <eRene@...> < > Cc: <SalineInfo > Sent: Thursday, July 19, 2001 7:31 PM Subject: My rheumy visit today > He everyone. Just wanted to let you all know the > results of my rheumy visit today. > > I have good and bad news. > > The good (and amazing) news is that I'm no longer > testing + for lupus!!!! My titres are negative, as are > the antibodies for lupus. He's not sure if the lupus is > gone forever, or is just dormant now. But at any rate, > there is no clinical signs of disease process going on. > He still very strongly feels that I have a connective > tissue disorder, and has said that I have a > undifferentiated connective tissue disease, formerly > known as mixed connective tissue disease. This includes > fibromyalgia. > > The bad news is that I have been fighting a severe cough > for 8 wks. I have failed 2 courses of antibiotics, and > the cough is getting worse. I'm barely coughing much > up, but the cough is so severe that I'm having terrible > chest pain. I had a CXR done in his office today which > was normal. So, I don't have pneumonia or TB (which I > was beginning to think I might). However, my airways > are very constricted and he says that my symptoms are > very suggestive of asthma and/or reactive airway > disease. He can't tell whether these are permanent > conditions or temporary, but he was concerned enough to > refer me to a pulmonologist/critical care doc. And he > put me on an inhaler, Cipro, and (finally) a cough > medicine. The pulmonologist wants to do PFT's > (pulmonary function tests) and an ABG (arterial blood > gas). I'm not looking forward to that--it is going to > hurt a lot. I'm used to drawing ABG's on pts; never > once did I ever think I'd have to have one drawn from > me. But he is also afraid that since my airway is > constricted that I will either go into status > asthmaticus or go into acute respiratory distress, so > these tests, plus the inhaler are absolutely necessary. > However, I hope these aren't permanent conditions, as I > can't imagine having to carry an inhaler with me the > rest of my life, and always be afraid something will > trigger the attacks. > > So, that's the scoop from out here in Colorado. > > e > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Well, my pulmonary problems finally got so severe that I had to go to the ER on Mon. I was working in recovery and my pain in my chest was getting more severe. It was getting to the point where I was short of breath and was having a hard time breathing normally, so I was breathing pretty shallow. I had placed a call to my rheumy, and when his nurse called me back, I was on the phone with her when I coughed. And I thought I was going to die and my chest was going to explode. I almost passed out right there in the recovery room. Thankfully one of the nurses saw me and ran over to me. She insisted that I go to the ER. And I didn't argue. Luckily because I was working there, I got in right away and got seen right away. The ER doc was concerned that I had either broken a rib from the severe coughing, or I had a clot in my lungs. He was also concerned that because the pain was in the middle of my chest, that I may be having, or have had, a heart attack. Fortunately, my EKG was normal. The doc said that my lungs were very constricted and that I was wheezing. My CXR showed a fractured rib on my right side. I also had a VQ scan done to rule out clots in my lungs. Thank god this was normal. So, treatment consists of treating the pain, and opening my airway. I was having severe bronchospasm, so respiratory came down to give me a neb treatment, which helped a lot. There is nothing to do to treat a broken rib, but rest and pain management. So, I have not been able to work the last 2 days and have been taking Percocet as needed. I also now must take an Albuterol and Azmacort inhaler. The addition of Albuterol has helped a lot. The ER doc thinks that the asthma and reactive airway disease is a new onset and will be present indefinately. Geez--I get rid of one problem only to get another!!! Anyway, it definately was scary on Mon as I honestly had no idea what was going on. But at least I'm feeling better, and I hope to go to work tomorrow. e > e, > That is great news about your lupus titres! I hope it continues to move > towards normal! > > As for the cough, keep us informed, that doesn't sound good. I remember > when I was first sick I had some coughing fits, too, but they went away and > I never really thought much about them, except for the fact that implants do > kind of sit right there by the lungs... > I hope that your tests are conclusive. > God bless > Patty > ----- Original Message ----- > From: <eRene@...> > < > > Cc: <SalineInfo > > Sent: Thursday, July 19, 2001 7:31 PM > Subject: My rheumy visit today > > > > He everyone. Just wanted to let you all know the > > results of my rheumy visit today. > > > > I have good and bad news. > > > > The good (and amazing) news is that I'm no longer > > testing + for lupus!!!! My titres are negative, as are > > the antibodies for lupus. He's not sure if the lupus is > > gone forever, or is just dormant now. But at any rate, > > there is no clinical signs of disease process going on. > > He still very strongly feels that I have a connective > > tissue disorder, and has said that I have a > > undifferentiated connective tissue disease, formerly > > known as mixed connective tissue disease. This includes > > fibromyalgia. > > > > The bad news is that I have been fighting a severe cough > > for 8 wks. I have failed 2 courses of antibiotics, and > > the cough is getting worse. I'm barely coughing much > > up, but the cough is so severe that I'm having terrible > > chest pain. I had a CXR done in his office today which > > was normal. So, I don't have pneumonia or TB (which I > > was beginning to think I might). However, my airways > > are very constricted and he says that my symptoms are > > very suggestive of asthma and/or reactive airway > > disease. He can't tell whether these are permanent > > conditions or temporary, but he was concerned enough to > > refer me to a pulmonologist/critical care doc. And he > > put me on an inhaler, Cipro, and (finally) a cough > > medicine. The pulmonologist wants to do PFT's > > (pulmonary function tests) and an ABG (arterial blood > > gas). I'm not looking forward to that--it is going to > > hurt a lot. I'm used to drawing ABG's on pts; never > > once did I ever think I'd have to have one drawn from > > me. But he is also afraid that since my airway is > > constricted that I will either go into status > > asthmaticus or go into acute respiratory distress, so > > these tests, plus the inhaler are absolutely necessary. > > However, I hope these aren't permanent conditions, as I > > can't imagine having to carry an inhaler with me the > > rest of my life, and always be afraid something will > > trigger the attacks. > > > > So, that's the scoop from out here in Colorado. > > > > e > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Kathe, Glad you made it to the rheumy. Sorry to hear about your wrist, darn old RA. I have never been on that type of meds, so I can't help you there. I hope you get some rest, and start feeling better. Hugs, Tawny --- In , Kathe Sabetzadeh <lv2ryd@y...> wrote: > > Hi Guys: > > I called my rheumy this morning regarding my > neck/upper back pain, and wrist bump, and she had me > come in this afternoon (I am blessed with one of the > best rheumies). She felt that the neck/upper back > pain and stiffness was more likely due to my Fibro, > and the lack of my getting a good night's sleep, this > despite taking Trazodone, Zanaflex, and having a > memory foam topper and contour pillow, and using CPAP. > So, she has decided to try me on Ambien with the > Zanaflex, and also added Lyrica for nerve pain to the > mix. Has anyone had any experience with Ambien or > Lyrica? I would appreciate anyone's experience on > these. Also, she examined my wrist and told me that > it is a result of the RA, a deformity of my wrist > joint, and just to keep an eye on it. It does > restrict my wrist motion slightly, but is not painful. > So that is the result of my trip to the rheumy today, > and just thought I would let you guys know what is > going on. > > Kathe in CA > > > Kathe in CA > > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Kathe, I persuaded my PCP to prescribe Ambien for me to use when I travel. It works very, very well for me because when I take it, I can fall asleep in just a few minutes. I wish I could take it every night, but she won't prescribe enough, LOL. She prescribed the 10 mg pill, but said I could cut them in two and see if that would be enough. Half a pill works fine for me, and the 10 mg are about the same price as the 5 mg. To help me get to sleep most nights, I take an OTC sleeping pill (not the Benadryl type), plus a melatonin tablet, and sometimes 2 Tylenol. Sue On Tuesday, January 3, 2006, at 10:19 PM, Kathe Sabetzadeh wrote: > So, she has decided to try me on Ambien with the > Zanaflex, and also added Lyrica for nerve pain to the > mix. Has anyone had any experience with Ambien or > Lyrica? I would appreciate anyone's experience on > these. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Hi Kathe, I've never posted or replied to a post before, but when I read you were starting to take Ambien, I felt like I had to write. I am a 31 yr old with dx of undifferentiate connective tissue diseae and fibro, and related health problems. I have always had a hard time sleeping because I just can't get in a comfortable enough position for a long enough time. I started taking Ambien, and it was great- really amazing. I could fall asleep fast, and stay asleep all night. However, I had some side effects that I hope you never have. I just want to let you know of them so you can keep them in mind. First of all, if you take it and don't go to sleep right away, you can say and do things that you don't remember the next day, or maybe wouldn't ordinarily do. I started keeping it right next to my bed, and I wouldn't take it until I was IN BED and just about to go to sleep. After taking it for a few months (every night) I stared to have overwhelming fatigue and confusion, and I even started to fantasize about suicide. When I stopped the Ambien, those thoughts went away immediately, and when I started it again, they came back. I went online and found that others had had similar experiences. The thing that was so scary about this is that those symptoms didn't start for months after beginning the Ambien, so I didn't immediately make the connection between the symptoms and drug. I'm sure this doesn't happen to everyone, but just keep it in mind just in case! If it works for you w/out side effects, that's great And if you start having weird thoughts... then consider stopping! Hope that's helpful. Anyway, I had a doc who wanted to prescribe Lyrica, but I've never taken it. I'd be curious to hear about your experiences with it. I think it's similar to Neurontin- have you ever tried that? best wishes, Ellen --- In , Kathe Sabetzadeh <lv2ryd@y...> wrote: > > Hi Guys: > > I called my rheumy this morning regarding my > neck/upper back pain, and wrist bump, and she had me > come in this afternoon (I am blessed with one of the > best rheumies). She felt that the neck/upper back > pain and stiffness was more likely due to my Fibro, > and the lack of my getting a good night's sleep, this > despite taking Trazodone, Zanaflex, and having a > memory foam topper and contour pillow, and using CPAP. > So, she has decided to try me on Ambien with the > Zanaflex, and also added Lyrica for nerve pain to the > mix. Has anyone had any experience with Ambien or > Lyrica? I would appreciate anyone's experience on > these. Also, she examined my wrist and told me that > it is a result of the RA, a deformity of my wrist > joint, and just to keep an eye on it. It does > restrict my wrist motion slightly, but is not painful. > So that is the result of my trip to the rheumy today, > and just thought I would let you guys know what is > going on. > > Kathe in CA > > > Kathe in CA > > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.