Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 Hi Everyone, I haven't posted in a while, so I wanted to post an update on and kineret. We had thought in the beginning that kineret was going to work well for her. As soon as school started, though, her arthritis flared. She hasn't had rashes or fevers, but her joints are a mess. For the first time ever, we have had to put her on daily oral prednisone. We managed to wean down to 5 mgs a day, but she is having a lot of stiffness and swelling on 5 mgs. She has used Enbrel, Humira in the past, and I am wondering what is next. I am thinking probably remicade or orencia. Does anyone have kids on either remicade or orencia, and what has been your child's experience with it? Her next appt is Oct 23, so I am trying to read up on our other options. I have read about thalidomide, but am concerned about the neuropathy reported. Does anyone have kids on it? Thanks so much for all your posts. I don't post often, but I do read daily! Sophie 's mom, systemic jra, age 8 Quote Link to comment Share on other sites More sharing options...
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