Re: Digest Number 991

[Guest guest]

Personaly, it makes me want to steal a tank and drive it uyp to Steere's

house. Not to fire the guns, just to make him crap his pants.

Sincerely,

Biddle

[Guest guest]

Well, if people who've been treated for Lyme all feel as good as people

who never had it, i guess it's nice to know that everyone else in the

world feels like crap too. Makes me want to cuss!!!!

[Guest guest]

Hey,

I never thought of it that way, must be true because whenever I mention

to my husband I hurt somewhere, he does too. Even when I have menstrual

cramps!

LOL,

Marta

> From: gail88@... (gail from WV)

>

> Well, if people who've been treated for Lyme all feel as good as people

> who never had it, i guess it's nice to know that everyone else in the

> world feels like crap too. Makes me want to cuss!!!!

[Guest guest]

In a message dated 00-02-02 21:28:16 EST, you write:

<< Not to fire the guns, just to make him crap his pants. >>

Dear & All,

Wouldn't be any fun to shoot this SOB - too quick.

How about a good ol' fashioned town square hanging? I think that would be

very appropriate.

[Guest guest]

'oxyplus ' wrote:

====

-

- OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

....'

> Take a look to the attachment.

[Guest guest]

I remember our last rheumy visit, she told us, when we

remarked on Gabby's " special " behavior lately, that it

seems to be the " norm " with JRA kids for some reason.

She liked to think that they were just feisty and

could take care of themselves. I have to remind

myself of that when she's behaving " special " again.

She does get disciplined, but it's hard to discipline

her the same way our oldest was. My husband said I'm

a softy, but when I remember her in the hospital or

lethargic when she's having a flare, it brings joy to

see her running around acting up...at least I know she

feels good! lol But I know I can't or shouldn't

condone that behavior, as difficult as it is. Just

thought I would tell those of you that expressed this

concern that " you are not alone " . Also, we have

fireflys in PA...we're all sleeping out in the yard

tonight as a family and hope to catch a bunch!

Tammy (Jim, Annie & especially Gabs too!)

__________________________________________________

[Guest guest]

Hi everyone,

Haven't been here for a long time. Long story with caring for an 89 year old

mother. I have a question. Is there anyone reading this, that has gotten

disability through the government with CMT- type 2? I want to begin the

process soon. One more question: Is anyoine taking the drug Cylert(sp) It is

given to MS patients with fatigue. I would love to have a drug to help battle

my fatigue. Email me at Flyingk@... Thanks one and all. This group is the

greatest.

[Guest guest]

In a message dated 8/1/2001 8:30:55 AM Pacific Daylight Time, flyingk@...

writes:

> Is anyoine taking the drug Cylert(sp) It is

>

My son Spencer took Cylert for a while. It gave him facial ticks . It can

also do liver damage.

jenny

[Guest guest]

I thought Cylert was given to children who had attention deficit. Yes, it

can cause liver damage. Blood work is to be done on a regular basis.

----- Original Message -----

From: <flyingk@...>

< >

Sent: Wednesday, August 01, 2001 8:02 AM

Subject: Re: [] Digest Number 991

> Hi everyone,

> Haven't been here for a long time. Long story with caring for an 89 year

old

> mother. I have a question. Is there anyone reading this, that has gotten

> disability through the government with CMT- type 2? I want to begin the

> process soon. One more question: Is anyoine taking the drug Cylert(sp) It

is

> given to MS patients with fatigue. I would love to have a drug to help

battle

> my fatigue. Email me at Flyingk@... Thanks one and all. This group is

the

> greatest.

>

>

>

[Guest guest]

>>Can somebody tell me where, in Canada, I can find Germabem II and

Polysorbate 20? I've already visited several sites that sell wholesale but

none offered these products. I'd really appreciate your help since we need

them with some urgency.

Thanks a lot.

Ira<<

Try here too:

http://www.soapandcandleco.com/

Happy Soapin`,

& The Soap Goat Crew.

New Milky Way Mold Fast Buy Starting NOW!!

Intricate Design Pre-Buy Aug. 3rd - 24th 2001 - 57 Selected High Gauge Molds

at $1.99 each.

http://www.thesoapgoat.com

[Guest guest]

Way to go, Mel! It's important that we are able to recognize our

accomplishments and not to minimize them. Even if no one else notices,

isn't it Fabulous to just feel the difference!

And Jerry, you're doing just great. Don't let the dentist rob you of

your walking. It's just Super that your incision is healing so well,

and that you're able to step on the scale - with confidence.

Pat, you are so busy taking care of all of us, when do you have time for

Pat? Your cards mean so much.

Wow, Amber, your post was inspiring! And with Jim's, it puts things in

perspective. What lofty (lol) goals, to climb the highest mountains,

follow every river... no, wait, I could make a song out of this!

I love being on this site. I don't respond a lot to the postings, but

they are what keeps me in line, resolves the little problems that crop

up along the journey, and bring a smile to my face. Thanx.

Bobbe -

Don't postpone joy.

3/12/3 268.5 lbs., 5/13/3 230.5 lbs+<38>

When you believe it, now you'll see it.

[Guest guest]

> Way to go, Mel! It's important that we are able to recognize our

> accomplishments and not to minimize them. Even if no one else

notices,

> isn't it Fabulous to just feel the difference!

>

> And Jerry, you're doing just great. Don't let the dentist rob you

of

> your walking. It's just Super that your incision is healing so

well,

> and that you're able to step on the scale - with confidence.

>

> Pat, you are so busy taking care of all of us, when do you have

time for

> Pat? Your cards mean so much.

>

> Wow, Amber, your post was inspiring! And with Jim's, it puts

things in

> perspective. What lofty (lol) goals, to climb the highest

mountains,

> follow every river... no, wait, I could make a song out of this!

>

> I love being on this site. I don't respond a lot to the postings,

but

> they are what keeps me in line, resolves the little problems that

crop

> up along the journey, and bring a smile to my face. Thanx.

>

> Bobbe -

> Don't postpone joy.

> 3/12/3 268.5 lbs., 5/13/3 230.5 lbs+<38>

> When you believe it, now you'll see it.

~~~~~~~~~~~~~~

Bobbe,

How are you??? I know you left the meeting early and felt that

you weren't feeling up to par. I hope it was just the trip

that wore you out.I love reading when you are cheering up

everyone. You take care of yourself, and we will see you next

month.

Keep being the loser that we are all and God bless,

Pat in Taft

[Guest guest]

thanks bob your the man.

[Guest guest]

hi Bob, one more queestion, my ribs are still soar after treatment,could

pegintron Ribivirn, screwed up my bone marrow,if so what do i look

for on my bld. wrk papers ? thanks Rick

[Guest guest]

Hi Rick,

What exactly do you mean when you say your ribs are still sore?? If you

have that dull right upper quadrant ache your liver is probably somewhat

enlarged and pressing against the capsule that surrounds the liver. The

liver itself has no pain nerves but the capsule does and translates the

pressure from a swollen liver into a dull ache that sometimes just doesn't

seem to go away.

regards,

BobK

At 07:20 PM 02/26/2004, biggrick@... wrote:

>hi Bob, one more queestion, my ribs are still soar after treatment,could

>pegintron Ribivirn, screwed up my bone marrow,if so what do i look

>for on my bld. wrk papers ? thanks Rick

>

>

>

[Guest guest]

Lee (a world class billiard player, who has had multiple surgeries),

Isabella Rossellini, Larraine Newman (ex-Sat Night Live). I understand that

Rossellini doesn't like to talk about it? If so, too bad. I can't remember

anyone else - but I know there's more....

Rene Russo has scoliosis. So does the cellist Yo Yo Ma. Offhand, I can't

think of any other celebs who have been open about it, but I'm sure there

are some out there who have it. Has anyone else heard of any?

D.

[Guest guest]

Hello all,

Gellar has scoliosis, but no fusion, and Isabella Rosselini

sp? had a fusion many years ago with no hardware. I remember her talking

about the cumbersome plaster cast she had to wear on an interview show.

Also, one of the Duchess of York's (Fergie " ) daughters had scoliosis and I

believe was fused a couple of years ago.

in Texas

Re: Re: We should form a foundation or something like to

research better treatments

>

> > As another person mentioned that we need to have a celebrity to be

> > spokesperson to attract more people's attention. I think we should

> > do that, lots foundations has celebrities do the PR for them to

> > raise the fund and the awareness of the diseases which help them to

> > find the newsest treatments. It still seems like they could not

> > figure out a way to " cure " and treat scoliosis effectively without

> > surgery. And I'd really like to have the medical research focus on

> > none surgery part instead of doing surgery.

>

>

> Rene Russo has scoliosis. So does the cellist Yo Yo Ma. Offhand, I

can't

> think of any other celebs who have been open about it, but I'm sure

there

> are some out there who have it. Has anyone else heard of any?

>

> D.

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

There is a list of celebrities on www.scoliosis-world.com .

Llweyn

Re: Digest Number 991

Lee (a world class billiard player, who has had multiple

surgeries),

Isabella Rossellini, Larraine Newman (ex-Sat Night Live). I understand that

Rossellini doesn't like to talk about it? If so, too bad. I can't remember

anyone else - but I know there's more....

Rene Russo has scoliosis. So does the cellist Yo Yo Ma. Offhand, I can't

think of any other celebs who have been open about it, but I'm sure there

are some out there who have it. Has anyone else heard of any?

D.

[Guest guest]

Hey Group. . .(FYI/my 2 cents only)

Years ago, gold brain serving me right; I remember the CML Xpert in the UK

stated that the FISH Test is obsolete for us once we reach '0/Negative' on it.

This test only examines 200 cells and had given a false positive of 8% to me and

several Colon Survivors in late 2005 at my H/O office. My Drs partner got on the

phone to the lab, because his patients had been negative for years. I only have

RT-PCR Test done now because 100,000 to 1,000,000 Million cells are xamined out

of the 3-Trillion in our body's.

HAPPY MOTHERS DAY to ALL ! ! !

" K "

" I AIN'T FINISHED YET " !!!