good news/bad news

October 16, 2007

That's good and hopefully gives you some peace of mind. Let us know

what the cardiologist has to say tomorrow. I'm glad to hear you're

going, the heart isn't something to mess around with. Could be

nothing, but better safe than sorry.

My nose is causing me the same grief and it's driving me nuts!! I've

had sinus problems forever and it's been a dust bowl around here this

fall so I've had a sore bloody nose for months which makes our trash

a bio-hazard.

Thankfully it rained last night (still coming down) and my nose feels

pretty good this morning.

My Mother in law managed to put a lot of nonsense, fears and alergies

into my husband's head when he was growing up, and humidifiers are

one of the evils of the world. (oh brother. lol)

It's been a 10 year battle to get one in the house but I said to hell

with it the other night and ordered a nice Honeywell floor model with

ionic plates for air cleaning.

Once he heard the air will be filtered he chilled out and shut up.

Yep, more water is good and I've gotten off track with that. I start

new today though and I'm sure it'll make a difference. ;-)

Thanks by the way, I do feel better this morning. I decided to wean

myself off of the anti depressants because I want my liver doing as

little work as possible and that's been making life a nightmare. The

flashes and noise behind my eyes is so strange and makes my head

spin. Good thing I have a lot of guns, if I go completely nuts I'll

have a nice selection to choose from. lmao

I'm kidding of course..lol

Have a great day.

ttfn,

Gayle

>

> Well, I had an EKG last week that said I was OK and I'm seeing my

> cardiologist this Wednesday just to get his opinion.

>

> As far as sinus problems, my nose has been awful! I've been having

a lot of

> dryness and then scabs developing in my nose. When I mentioned it

to the

> nurse, she said that tx causes all your mucous membranes to dry up

and

> that's another reason to drink more water. It seemed to have

gotten better,

> but now is starting up again.

>

> I haven't turned the heat on yet so it's not dryness in my home.

I'll be

> dragging out the humidifier soon though - I run it in the bedroom

at night

> during the winter. Hope you're feeling better!

>

> Dorothy

>

> _____

>

> From: Hepatitis C

> [mailto:Hepatitis C ] On Behalf Of Gayle

> Sent: Monday, October 15, 2007 4:06 PM

> Hepatitis C

> Subject: [sPAM] Re: Good News/Bad News

>

> Wow, after only 4 weeks?! So glad to hear it Dorothy!

> As for the pain in your arm and shoulder... yeah, I'd be concerned

> and you need to be alert to any sensations like that regardless of

> whether it's treatment related or not.

> Listen to your body and if it tells you to go in, GO for goodness'

> sake.

> I had chest pain as well after 3 weeks but it turned out to be this

> damned lung infection which has spread to my sinuses of course.

> That's why I haven't been posting lately by the way. I feel like

crap

> from that and the fever that goes with it all.

> I just bought a whole house humidifier last night that should be

here

> in a few days and if that doesn't help I'll talk to Dr about

helping

> me out with this problem.

> Didn't know it was possible to be all dried up and still spewing

> nasties all over. lmao

> Sometimes I just gotta laugh. lol

> Catch ya later and I hope you're ok.

> Gayle

>

October 16, 2007

That's good and hopefully gives you some peace of mind. Let us know

what the cardiologist has to say tomorrow. I'm glad to hear you're

going, the heart isn't something to mess around with. Could be

nothing, but better safe than sorry.

My nose is causing me the same grief and it's driving me nuts!! I've

had sinus problems forever and it's been a dust bowl around here this

fall so I've had a sore bloody nose for months which makes our trash

a bio-hazard.

Thankfully it rained last night (still coming down) and my nose feels

pretty good this morning.

My Mother in law managed to put a lot of nonsense, fears and alergies

into my husband's head when he was growing up, and humidifiers are

one of the evils of the world. (oh brother. lol)

It's been a 10 year battle to get one in the house but I said to hell

with it the other night and ordered a nice Honeywell floor model with

ionic plates for air cleaning.

Once he heard the air will be filtered he chilled out and shut up.

Yep, more water is good and I've gotten off track with that. I start

new today though and I'm sure it'll make a difference. ;-)

Thanks by the way, I do feel better this morning. I decided to wean

myself off of the anti depressants because I want my liver doing as

little work as possible and that's been making life a nightmare. The

flashes and noise behind my eyes is so strange and makes my head

spin. Good thing I have a lot of guns, if I go completely nuts I'll

have a nice selection to choose from. lmao

I'm kidding of course..lol

Have a great day.

ttfn,

Gayle

>

> Well, I had an EKG last week that said I was OK and I'm seeing my

> cardiologist this Wednesday just to get his opinion.

>

> As far as sinus problems, my nose has been awful! I've been having

a lot of

> dryness and then scabs developing in my nose. When I mentioned it

to the

> nurse, she said that tx causes all your mucous membranes to dry up

and

> that's another reason to drink more water. It seemed to have

gotten better,

> but now is starting up again.

>

> I haven't turned the heat on yet so it's not dryness in my home.

I'll be

> dragging out the humidifier soon though - I run it in the bedroom

at night

> during the winter. Hope you're feeling better!

>

> Dorothy

>

> _____

>

> From: Hepatitis C

> [mailto:Hepatitis C ] On Behalf Of Gayle

> Sent: Monday, October 15, 2007 4:06 PM

> Hepatitis C

> Subject: [sPAM] Re: Good News/Bad News

>

> Wow, after only 4 weeks?! So glad to hear it Dorothy!

> As for the pain in your arm and shoulder... yeah, I'd be concerned

> and you need to be alert to any sensations like that regardless of

> whether it's treatment related or not.

> Listen to your body and if it tells you to go in, GO for goodness'

> sake.

> I had chest pain as well after 3 weeks but it turned out to be this

> damned lung infection which has spread to my sinuses of course.

> That's why I haven't been posting lately by the way. I feel like

crap

> from that and the fever that goes with it all.

> I just bought a whole house humidifier last night that should be

here

> in a few days and if that doesn't help I'll talk to Dr about

helping

> me out with this problem.

> Didn't know it was possible to be all dried up and still spewing

> nasties all over. lmao

> Sometimes I just gotta laugh. lol

> Catch ya later and I hope you're ok.

> Gayle

>

October 16, 2007

That's good and hopefully gives you some peace of mind. Let us know

what the cardiologist has to say tomorrow. I'm glad to hear you're

going, the heart isn't something to mess around with. Could be

nothing, but better safe than sorry.

My nose is causing me the same grief and it's driving me nuts!! I've

had sinus problems forever and it's been a dust bowl around here this

fall so I've had a sore bloody nose for months which makes our trash

a bio-hazard.

Thankfully it rained last night (still coming down) and my nose feels

pretty good this morning.

My Mother in law managed to put a lot of nonsense, fears and alergies

into my husband's head when he was growing up, and humidifiers are

one of the evils of the world. (oh brother. lol)

It's been a 10 year battle to get one in the house but I said to hell

with it the other night and ordered a nice Honeywell floor model with

ionic plates for air cleaning.

Once he heard the air will be filtered he chilled out and shut up.

Yep, more water is good and I've gotten off track with that. I start

new today though and I'm sure it'll make a difference. ;-)

Thanks by the way, I do feel better this morning. I decided to wean

myself off of the anti depressants because I want my liver doing as

little work as possible and that's been making life a nightmare. The

flashes and noise behind my eyes is so strange and makes my head

spin. Good thing I have a lot of guns, if I go completely nuts I'll

have a nice selection to choose from. lmao

I'm kidding of course..lol

Have a great day.

ttfn,

Gayle

>

> Well, I had an EKG last week that said I was OK and I'm seeing my

> cardiologist this Wednesday just to get his opinion.

>

> As far as sinus problems, my nose has been awful! I've been having

a lot of

> dryness and then scabs developing in my nose. When I mentioned it

to the

> nurse, she said that tx causes all your mucous membranes to dry up

and

> that's another reason to drink more water. It seemed to have

gotten better,

> but now is starting up again.

>

> I haven't turned the heat on yet so it's not dryness in my home.

I'll be

> dragging out the humidifier soon though - I run it in the bedroom

at night

> during the winter. Hope you're feeling better!

>

> Dorothy

>

> _____

>

> From: Hepatitis C

> [mailto:Hepatitis C ] On Behalf Of Gayle

> Sent: Monday, October 15, 2007 4:06 PM

> Hepatitis C

> Subject: [sPAM] Re: Good News/Bad News

>

> Wow, after only 4 weeks?! So glad to hear it Dorothy!

> As for the pain in your arm and shoulder... yeah, I'd be concerned

> and you need to be alert to any sensations like that regardless of

> whether it's treatment related or not.

> Listen to your body and if it tells you to go in, GO for goodness'

> sake.

> I had chest pain as well after 3 weeks but it turned out to be this

> damned lung infection which has spread to my sinuses of course.

> That's why I haven't been posting lately by the way. I feel like

crap

> from that and the fever that goes with it all.

> I just bought a whole house humidifier last night that should be

here

> in a few days and if that doesn't help I'll talk to Dr about

helping

> me out with this problem.

> Didn't know it was possible to be all dried up and still spewing

> nasties all over. lmao

> Sometimes I just gotta laugh. lol

> Catch ya later and I hope you're ok.

> Gayle

>

October 16, 2007

That's good and hopefully gives you some peace of mind. Let us know

what the cardiologist has to say tomorrow. I'm glad to hear you're

going, the heart isn't something to mess around with. Could be

nothing, but better safe than sorry.

My nose is causing me the same grief and it's driving me nuts!! I've

had sinus problems forever and it's been a dust bowl around here this

fall so I've had a sore bloody nose for months which makes our trash

a bio-hazard.

Thankfully it rained last night (still coming down) and my nose feels

pretty good this morning.

My Mother in law managed to put a lot of nonsense, fears and alergies

into my husband's head when he was growing up, and humidifiers are

one of the evils of the world. (oh brother. lol)

It's been a 10 year battle to get one in the house but I said to hell

with it the other night and ordered a nice Honeywell floor model with

ionic plates for air cleaning.

Once he heard the air will be filtered he chilled out and shut up.

Yep, more water is good and I've gotten off track with that. I start

new today though and I'm sure it'll make a difference. ;-)

Thanks by the way, I do feel better this morning. I decided to wean

myself off of the anti depressants because I want my liver doing as

little work as possible and that's been making life a nightmare. The

flashes and noise behind my eyes is so strange and makes my head

spin. Good thing I have a lot of guns, if I go completely nuts I'll

have a nice selection to choose from. lmao

I'm kidding of course..lol

Have a great day.

ttfn,

Gayle

>

> Well, I had an EKG last week that said I was OK and I'm seeing my

> cardiologist this Wednesday just to get his opinion.

>

> As far as sinus problems, my nose has been awful! I've been having

a lot of

> dryness and then scabs developing in my nose. When I mentioned it

to the

> nurse, she said that tx causes all your mucous membranes to dry up

and

> that's another reason to drink more water. It seemed to have

gotten better,

> but now is starting up again.

>

> I haven't turned the heat on yet so it's not dryness in my home.

I'll be

> dragging out the humidifier soon though - I run it in the bedroom

at night

> during the winter. Hope you're feeling better!

>

> Dorothy

>

> _____

>

> From: Hepatitis C

> [mailto:Hepatitis C ] On Behalf Of Gayle

> Sent: Monday, October 15, 2007 4:06 PM

> Hepatitis C

> Subject: [sPAM] Re: Good News/Bad News

>

> Wow, after only 4 weeks?! So glad to hear it Dorothy!

> As for the pain in your arm and shoulder... yeah, I'd be concerned

> and you need to be alert to any sensations like that regardless of

> whether it's treatment related or not.

> Listen to your body and if it tells you to go in, GO for goodness'

> sake.

> I had chest pain as well after 3 weeks but it turned out to be this

> damned lung infection which has spread to my sinuses of course.

> That's why I haven't been posting lately by the way. I feel like

crap

> from that and the fever that goes with it all.

> I just bought a whole house humidifier last night that should be

here

> in a few days and if that doesn't help I'll talk to Dr about

helping

> me out with this problem.

> Didn't know it was possible to be all dried up and still spewing

> nasties all over. lmao

> Sometimes I just gotta laugh. lol

> Catch ya later and I hope you're ok.

> Gayle

>

January 28, 2009

Hello,

I hope everyone is doing good. I know some of you are getting some

outrageous weather. Here in Texas we had an ice storm last night, but

it wasn't too bad here in central Texas. I wish everyone else was as

fortunate.

Well, we finally got in to see the rheumy this morning. On my way

there I was called by the imaging center and the authorization for

's MRI's were finally approved. Well when the rheumy saw her

hands it was apparent to him of the damage that was taking place and

he no longer needed the MRI to tell him. So she will be getting 8

injections to her wrist and fingers. She is not real excited about

this, but is prepared to have it done so long as her finger start

feeling better. He is now ordering MRI's of her feet. He thinks she

will need injections there as well and wants to get them all done at

once since she will be put under while they are done.

We discussed her getting off the steroids again, but again he doesn't

want to stop them until we get her on other medication. He was going

to start her on plaquenil, but because she has ringing in her ears he

wouldn't start her on it. Apparently ringing in the ears while your

on plaquenil is a sign of complications and he wouldn't be able to

tell if it's her normal ringing or if it's due to complications. So

off to the ENT we go to see what the ringing is from. We are going to

try to do Orencia infussions. We have to get insurance authorization,

but they have already denied it once. Apparently they started the

process prior to talking to me about it, but I didn't mind. At least

they rheumy is finally listening to us. Poor has been

miserable. She is now optimistic again. =)

So, all in all it was a good appointment today. We feel like we are

headed in the right direction again instead of just spinning our

wheels.

Now, my next task is finding out whats going on with Jayna. Her

rheumy appointment is in 3 weeks. =)

Thank you all for listening. I don't know what I would do without

this group.

Hugs to you all,

15, Poly JRA, asthma, chronic hives, back problems, IBS

Jayna 12, ADHD, Tourette's Syndrome, OCD, ODD, positive ANA

January 29, 2009

Hi,

Plaquenil is like an old, ancient drug that realy doesn't do much unless added

to stronger drugs.I can't believe they even prescribe it anymore.Now starting

Methotrexate is a differant story but you didn't mention it.From what you

described AGRESSIVE is the way to go,you have to stop the inflimation that is

causing damage.

Steroid injections can work wonders until a DMARD or Biological kicks in.Glad to

hear they will be useing general anastesia for so many joints.My only experiance

was with my sons resistant lft ankle and he got a very potent consious

sedation.His eyes were open but nobody was home as the doc put it.They even gave

him an amnesia drug in his IV and it worked nicely.Something to consider,the

longer you rest the joints that are injected the better.Kind of hard with

fingers and feet but try and try hard.I hope everything goes well,I have been

abcent from this list for so long I only know the old timers but still don't

know up to date info.I joined in 2001 when my son just turned 3 he will be 11 in

July.

Nice to cyber meet you.

Becki and 10 1/2 systemic onset round 2 of complete medicated remission

________________________________

From: J. Cassady <j_cassady25@...>

Sent: Wednesday, January 28, 2009 1:49:51 PM

Subject: good news/bad news