update on us

[Guest guest]

thats great to hear. homeopathy can really help. i must have missed the first

post was the baby sick?

Amy

ohio

AMY

MOMMY TO 4 KIDDIES

Chelsea 9

Carrigian 5

4

Chaela Noelle Almost 1

from the mouth of a 4 yr old

" your not fat mommy just squishy! " !!!! )

<A

HREF= " http://hometown.aol.com/chevy974/myhomepagebaby.html " >The Haskett

bunch</A>

[Guest guest]

thanks sherri glad to read all is better now and she is seeing a homeopath

Amy

Ohio

AMY

MOMMY TO 4 KIDDIES

Chelsea 9

Carrigian 5

4

Chaela Noelle Almost 1

from the mouth of a 4 yr old

" your not fat mommy just squishy! " !!!! )

<A

HREF= " http://hometown.aol.com/chevy974/myhomepagebaby.html " >The Haskett

bunch</A>

[Guest guest]

At 05:36 PM 01/22/2002 -0000, you wrote:

>Hi all, thanks for the welcome. Signe is doing much better today -

>almost her old self. I did contact a homeopath and set up an appt -

>she also has a 4 month old, which I thought was great - and she

>recommended a remedy of Thuja 30C. She told me it comes in pellet

>form and to dissolve some in water (no stirring) and give Signe a

>dropperful. She also gave me the name of a whole foods place in the

>next town over who should carry it.

>

>Just wanted to give you an update - thanks again for the welcome.

>

>

>dd Signe 4 months

>North Carolina

>

Glad to hear it - please follow through with the appointment to be sure she

is able to get the disturbance eliminated. Health food stores don't always

carry Thuja so call ahead and check. You should do that as soon as possible!

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@...

(go to http://www.paypal.com) or by mail

PO Box 1563 Nevada City CA 95959 530-740-0561 Voicemail in US

http://www.nccn.net/~wwithin/vaccine.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

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Education, Homeopathic Education

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[Guest guest]

At 12:49 PM 01/22/2002 EST, you wrote:

>

>thats great to hear. homeopathy can really help. i must have missed the

first

>post was the baby sick?

>Amy

>ohio

>

>My name is and I have a 4 month old daughter. She had her 4

>month shots last Monday and is having a terrible time now. She has

>been extremely irritable, crying unconsolably, fighting me when I try

>nursing her, and also woke up screaming Thursday night and it took us

>about 10 minutes to calm her down. It was as if she didn't even know

>where she was or who she was with, she was that hysterical. All of

>this has me convinced that it is a reaction to her shots - although

>her ped assures me it is not. It is too much of a coincidence

>though - especially since she had a similar reaction (but not nearly

>as severe) to her 2 month shots. I am contacting a homeopath as I

>have no idea what else to do now for her. And am starting research

>on whether to continue to vax her or delay or stop all together. At

>this point I know I will wait at least a year or two before giving

>her anymore.

>

>

>

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@...

(go to http://www.paypal.com) or by mail

PO Box 1563 Nevada City CA 95959 530-740-0561 Voicemail in US

http://www.nccn.net/~wwithin/vaccine.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

Hi ,

Thanks for the update... If I get a vote ) I say you stay home when Lennie

goes to see his Mother... You are not up to it as you yourself said... Just

my 2 cents worth )

Hope your son can adjust to the school routine for his sake... it sure would

help his selfastine... You rest and take care of you all...

((( Healthy Hugs )))

Helen

>

> Please bear with me...I want to cover all bases in one email so I can go

> back and lay down....

>

> Quick update: Lennie's (my fiance) mom, Georgine Boggs went into surgery

> to unblock her carotid (sp?) artery in her neck this morning. I spoke with

> Lennie (who was mostly asleep, as he works nights), his sister Debbi (lives

> in Austin, TX), and his two brothers, Rusty and Mike (who live there in

> their hometown of Sioux City, IA) this morning. This surgery today is very

> risky, and a number of specialists had been called in. THIS JUST IN: Rusty

> just called while I was typing this and said the surgery to unblock the

> artery was considered a complete success! Georgine just is so frail and

> has so many health problems. They hope that if this surgery is successful,

> they can do the surgery to put a " pin " in her hip (femur, actually) on

> Friday perhaps. The break was just below the ball and socket. Her

> osteoporosis, which is advanced, will make this procedure riskier, as the

> femur can " splinter "

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Thank-You

Helen

angelbear1129@...

[Guest guest]

from Dale, Mom to Katy, CVID, age 20

, that's great news that Buddy is growing!!! I wonder if he seems

sweaty after infusions because he has received so much liquid? Would

that make you sweat more??? -- I would think it could. Or it could be

a low grade fever that shows his body is fighting something -- don't

know. It's hard to hear that he struggles so with the feeding issues.

Our kids have enough to put up with without additional diagnosis and

complications. But so many on the list have additional problems.

It's good to hear from you!

In His service,

Dale

nancygar100 wrote:

>Hi Dale, Ursula, and group....

> Sorry I haven't posted, Buddy is doing well on immunology side. HE

>had an infusion yesterday and they are going to increase his dose

>next month as he is growing. The only reaction he had last month was

>he seems sweaty at night after infusion.

> On the GI side, he has some granulation tissue on his new G-tube

>site so that needs removed. He failed a food trial of peaches the

>middle of last month and is still recovering with stomach pain.

>Some nights are better than others with the feeding pump. Some days I

>want to throw the pump to the Moon.

> I do read the emails of the group...

>

>

>

[Guest guest]

,

You can always try SQ later...when you/he is ready.

As for the drop in numbers...I don't know the reason. There are so many factors

and sometimes a biopsy is warranted. In my daughters case, her decline (from an

already low number) was attributed to a virus. Bugs can do really odd things to

immune deficient patients -- especially when they have production problems in

the marrow.

mom to CVIDer

Update on US

First adn foremost I want to thank EVERYONE for their help with all my questions

and concerns about SubQ IG and his port a cath. I still would love ro hear any

experiences you all have with both subQ and with port a cath experiences too as

it helps me feel better about what we are doing...

For now we are not going to try SubQ any time soon. would have been kid #5

to be put on it according do our ID/immuno NP, which made me a little nervous,

but the biggest factor in our decision was himself. He had IVIG today and

we also had child life there to show him the subQ " equipment " so too speak. He

does really well with this specific child life person as she has known him a

long time. There was a photo book of a little boy around the age of 3 getting

subq done that we looked at (or mainly me rather) and just pretty much

refused to look at it along with barely making eye contact with anyone all

morning. He also broke down sobbing (for the 3rd time in a week actually

regarding subq) saying he just didn't want to do it, he would even take a new

port if we had too, but you could tell that he was really stressed out and upset

about this last week of conversation regarding subq. For us is finally in a

good place with his port (other than it might be

" going bad " on us) He doesn't mind the lab draws from it, he's calm during his

infusions, and he's comfortable with it. After thinking lolng and hard about it,

I don't think I can physically hold down my 80lb 9year old to poke him ofr 4

sites (his volume would be 46mls). Hopefully his port will last a little longer

and He'll change his mind about subq but for us right now it's not right. I

actually feel relieved about this decision which also in my heart tells me I

wasn't ready for it either.

His WBC count today was down to 2 and his ANC was 900 so we have to rechexk it

ina week and if it's not improving he could need a bone marrow biopsy soon, as

we don't know why his white count keeps dropping. Anyone got any ideas??

Thanks again...

Missy

------------ --------- --------- ---

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

[Guest guest]

Missy,

I can't help you any with the low counts, but know that I'm thinking of you!

So the port might be going bad? What did they say when you took him in?

How long has he had it? has had his port for 15 months now and hope

it lasts a very long time! They're great! :-)

With our recent struggles with cellulitis, I'm even more inclined to stick

with IVIG. I don't even do 's port flushes because he hates them so

much (gets flushed at 2 weeks in between IVIG txs) that I can't imagine that

he'd be thrilled with MORE needles. At least with the port it's almost

always one poke!

Mom to , 7 unaffected

, 4 GSD, hypogam, pneumococcal AD

Meredith, 2 GSD, ?PI

Huntsville, AL

Update on US

First adn foremost I want to thank EVERYONE for their help with all my

questions and concerns about SubQ IG and his port a cath. I still would love

ro hear any experiences you all have with both subQ and with port a cath

experiences too as it helps me feel better about what we are doing...

For now we are not going to try SubQ any time soon. would have been kid

#5 to be put on it according do our ID/immuno NP, which made me a little

nervous, but the biggest factor in our decision was himself. He had

IVIG today and we also had child life there to show him the subQ " equipment "

so too speak. He does really well with this specific child life person as

she has known him a long time. There was a photo book of a little boy around

the age of 3 getting subq done that we looked at (or mainly me rather) and

just pretty much refused to look at it along with barely making eye

contact with anyone all morning. He also broke down sobbing (for the 3rd

time in a week actually regarding subq) saying he just didn't want to do it,

he would even take a new port if we had too, but you could tell that he was

really stressed out and upset about this last week of conversation regarding

subq. For us is finally in a good place with his port (other than it

might be

" going bad " on us) He doesn't mind the lab draws from it, he's calm during

his infusions, and he's comfortable with it. After thinking lolng and hard

about it, I don't think I can physically hold down my 80lb 9year old to poke

him ofr 4 sites (his volume would be 46mls). Hopefully his port will last a

little longer and He'll change his mind about subq but for us right now it's

not right. I actually feel relieved about this decision which also in my

heart tells me I wasn't ready for it either.

His WBC count today was down to 2 and his ANC was 900 so we have to rechexk

it ina week and if it's not improving he could need a bone marrow biopsy

soon, as we don't know why his white count keeps dropping. Anyone got any

ideas??

Thanks again...

Missy

---------------------------------

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

[Guest guest]

I also can't help with the WBC. Can they give him a

new port? How do they know it is going bad? At least

he would be put under for the surgery. We love the

fact that has a port. We have hold her down to

access it b/c she is scared but she does fine after it

is in. Because she gets D10 in an IV instead of D5

she would go through IV like crazy. This is 100 times

easier.

Candise Ott

mom to (LCHAD,low IgG,and more) 22 months

(carrier,SPD) 22 months

Kadian(carrier) 4 years

--- Hobbs <hobbsfamily@...> wrote:

> Missy,

>

> I can't help you any with the low counts, but know

> that I'm thinking of you!

>

>

>

>

> So the port might be going bad? What did they say

> when you took him in?

> How long has he had it? has had his port

> for 15 months now and hope

> it lasts a very long time! They're great! :-)

>

>

>

> With our recent struggles with cellulitis, I'm even

> more inclined to stick

> with IVIG. I don't even do 's port flushes

> because he hates them so

> much (gets flushed at 2 weeks in between IVIG txs)

> that I can't imagine that

> he'd be thrilled with MORE needles. At least with

> the port it's almost

> always one poke!

>

>

>

>

>

> Mom to , 7 unaffected

>

> , 4 GSD, hypogam, pneumococcal AD

>

> Meredith, 2 GSD, ?PI

>

> Huntsville, AL

>

>

>

> Update on US

>

>

>

> First adn foremost I want to thank EVERYONE for

> their help with all my

> questions and concerns about SubQ IG and his port a

> cath. I still would love

> ro hear any experiences you all have with both subQ

> and with port a cath

> experiences too as it helps me feel better about

> what we are doing...

>

> For now we are not going to try SubQ any time soon.

> would have been kid

> #5 to be put on it according do our ID/immuno NP,

> which made me a little

> nervous, but the biggest factor in our decision was

> himself. He had

> IVIG today and we also had child life there to show

> him the subQ " equipment "

> so too speak. He does really well with this specific

> child life person as

> she has known him a long time. There was a photo

> book of a little boy around

> the age of 3 getting subq done that we looked at (or

> mainly me rather) and

> just pretty much refused to look at it along

> with barely making eye

> contact with anyone all morning. He also broke down

> sobbing (for the 3rd

> time in a week actually regarding subq) saying he

> just didn't want to do it,

> he would even take a new port if we had too, but you

> could tell that he was

> really stressed out and upset about this last week

> of conversation regarding

> subq. For us is finally in a good place with

> his port (other than it

> might be

> " going bad " on us) He doesn't mind the lab draws

> from it, he's calm during

> his infusions, and he's comfortable with it. After

> thinking lolng and hard

> about it, I don't think I can physically hold down

> my 80lb 9year old to poke

> him ofr 4 sites (his volume would be 46mls).

> Hopefully his port will last a

> little longer and He'll change his mind about subq

> but for us right now it's

> not right. I actually feel relieved about this

> decision which also in my

> heart tells me I wasn't ready for it either.

>

> His WBC count today was down to 2 and his ANC was

> 900 so we have to rechexk

> it ina week and if it's not improving he could need

> a bone marrow biopsy

> soon, as we don't know why his white count keeps

> dropping. Anyone got any

> ideas??

>

> Thanks again...

> Missy

>

> ---------------------------------

> Don't get soaked. Take a quick peek at the forecast

> with the Search weather shortcut.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Congratulations on your new baby!  That is great pred. is working for Cameron,

hope all continues to go well.

[Guest guest]

Congratulations on the new baby.  It was hard at first with our son when I

brought the new baby home.  It didn't make the fevers different, it was just

hard finding time to always be available to him when he wasn't feeling well and

wanted to be held.  Best of Luck,

 

Pruden

Tyler Pruden 2yr 9mo fevered since 3mo - T & A 8/5/08 skipped 4 fevers so far

Dylan Pruden 6mo old

Vancouver WA

[Guest guest]

I haven't posted in awhile, so I thought I would send ya'll an update. My

daugther finall got her knee injections yesterday!!!! She has been in so much

pain the past month or so, but learned to deal with the pain. She would wake up

in pain, but opt to go to school and stick it out till lunch (her choice). If by

lunch she was still in pain, then she would want to come home, and she only did

that one time. She had to sit out of PE a lot, due to the pain....

So, I finally got her in for an appt yesterday...and was ready to go back on the

Enbrel shots to get her out of pain. She has been off of all her meds since

last Sept. and has done well except for the past few months.

When we saw the doc yesterday, she examied her knee (right) and said it was so

bad, she wanted to try and get us upstairs to do the knee injections today

(yesterday)...but since it was such short notice, we would have to do it without

any pain meds. I finally talked my daughter (10) into it, and told her she

would be pain free once it was all over with. She was scared of course, but

wanted the pain over with. They squeezed us in, and thankfully the nurse

offered us some pain meds....one to calm her down and relax her. Let me tell

you, we were both thankful for that part....

They put the numbing (sp?) cream on her arms, before starting the IV, so she

hardly felt that as well. The doc finally came in and did her knee injections

in less then 5 minutes, and she hardly felt a thing....plus she can't remember

what went on either. she keeps asking me over and over, now what did they do

again? LOL. The otho doc even thought our rheumy doc was crazy for trying to

do it without pain meds...

She woke up this morning feeling the best she has ever felt!!! She was doing

kicks like she was in a kick line and everything. It was hard to see her go

through the pain, but well worth it to get the shots. She even said she would

be willing to do them again (if needed) because she hardly felt a thing! I kept

her home today, as a precaution.....but she feels so good, she should have went

to school!!!

Helen

(nne, 10 poly JRA since 3, Asthma)