Guest guest Posted December 21, 2001 Report Share Posted December 21, 2001 Hi Sophie. So sorrry to hear about your dad. Glad to hear that Leigh is ok. I can just imagine how scared you were. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Thanks Irma, I've just jumped on the computer, my mum is here and keeping an eye on Leigh...school hols for the next 4 weeks, he is obsessed with food, food and more food, always dragging me to the pantry, even straight after he's finished his meals and when I say " NO " he falls to the floor and cries. He is sometimes distracted with music, but that doesn't last for too long. I'd like to wish everyone a HAPPY NEW YEAR for 2002, may we have health and strength for our children. Sophie mum to Leigh 10 (DS/ASD/Pica) and 5 Sophie > Sophie , > So sorry to hear about your father . It must be hard to say good-bye > to one who meant so much , but just remember that all of your > father's best qualities live on in you and you shall treasure and > share through all the years to come . With Sympathy . HUGS ! > Irma > > > > In a message dated 12/21/01 10:27:51 PM Eastern Standard Time, > > smenegatos@v... writes: > > > > > > > last week my father passed away, sometimes when it rains it > pours, as soon > > > as I begin to recover from one incident along comes another. I > am now > > > taking one step at a time to recover from all this. > > > > > > > Sophie, > > I am so very sorry for your loss!!!! It's especially hard to > lose loved > > ones during the holidays (my mom died the day after Thanksgiving 3 > years ago, > > only 1 1/2 years after my Dad). One step at a time is the right > way to deal > > with this!!! Just keep putting one foot in front of the other and > coach > > yourself through it all!!!! And come to us; we'll help you > through it > > too!!! Giant {{{{{{{{{{{{hugs}}}}}}}}}}}}}] to you!!! > > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Glad you're mom is helping you and her grandkids . This will keep her mind occupied . Its always good to be with close family . Oh my goodness , hope you find some answers to this . Joan wrote a remarkable schedule . Will this help ?..... Falls to the floor and cries , sounds like me back when I was very young as my mom tells me . Have to pull those " give me " tricks . Pretty smart using it , though , if it works . Have you tried locking up the pantry and fridge ? Maybe posting a clock picture when its time to eat only . Of course throw in his favorite snacks in between . Using a timer or alarm to let his brain understand its the only time to eat. I do not have this problem with , I guess because of the snacks in between all the time . Plenty of fluids . But he can eat alot , if I don't watch him . No overweight problem , he is growing the other direction , tall . Is Leigh under any type of medication ? Take care . Irma, 13,DS/ASD > Thanks Irma, > > I've just jumped on the computer, my mum is here and keeping an eye on > Leigh...school hols for the next 4 weeks, he is obsessed with food, food and > more food, always dragging me to the pantry, even straight after he's > finished his meals and when I say " NO " he falls to the floor and cries. He > is sometimes distracted with music, but that doesn't last for too long. I'd > like to wish everyone a HAPPY NEW YEAR for 2002, may we have health and > strength for our children. > Sophie mum to Leigh 10 (DS/ASD/Pica) and 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 No, he's not taking any medication, we've tried Dexamphetamine and Haloperidol. The first made him very aggressive towards himself, hair pullling etcc and the second made him very sleepy, to the extent that he could not function during the day so I have decided to keep him off meds for awhile. You are right the tantrums do work and he does get what he wants, I never thought of it that way (clever boy). I always thought wouldn't it be great if he took my hand and pulled me to the toilet when he needs to go just the way he does to the pantry. Have a great day:) Sophie Re: Sophie > Glad you're mom is helping you and her grandkids . This will keep her > mind occupied . Its always good to be with close family . Oh my > goodness , hope you find some answers to this . Joan wrote a > remarkable schedule . Will this help ?..... Falls to the floor and > cries , sounds like me back when I was very young as my mom tells > me . Have to pull those " give me " tricks . Pretty smart using it , > though , if it works . Have you tried locking up the pantry and > fridge ? Maybe posting a clock picture when its time to eat only . Of > course throw in his favorite snacks in between . Using a timer or > alarm to let his brain understand its the only time to eat. I do not > have this problem with , I guess because of the snacks in > between all the time . Plenty of fluids . But he can eat alot , if I > don't watch him . No overweight problem , he is growing the other > direction , tall . Is Leigh under any type of medication ? Take care . > Irma, 13,DS/ASD > > > > Thanks Irma, > > > > I've just jumped on the computer, my mum is here and keeping an eye > on > > Leigh...school hols for the next 4 weeks, he is obsessed with food, > food and > > more food, always dragging me to the pantry, even straight after > he's > > finished his meals and when I say " NO " he falls to the floor and > cries. He > > is sometimes distracted with music, but that doesn't last for too > long. I'd > > like to wish everyone a HAPPY NEW YEAR for 2002, may we have health > and > > strength for our children. > > Sophie mum to Leigh 10 (DS/ASD/Pica) and 5 > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 > No, he's not taking any medication, we've tried Dexamphetamine and > Haloperidol. The first made him very aggressive towards himself, hair pullling etcc and the second made him very sleepy, to the extent that he could not function during the day so I have decided to keep him off meds for awhile. Just reading what you've mentioned makes me want to pull my hair . I hear ya on the trials of the meds . Its never an easy road and it can be heart breaking seeing that the meds are doing more harm than good . Of course , when I saw not doing well , I just threw them in the waste basket . He went through several meds and I will no longer have him take them of course if had other areas that needed to be attended to right away , I would have to take the med route . Right now he is doing fine , meaning behavior wise , interacting with family and at school . I'm more into the reading up about the Immune Dysfunction and many research is going on to find the actual culprit . This coming February I'll be attending another Medical Conference for Autism . I can't wait to hear the updated information . > You are right the tantrums do work and he does get what he wants, I > never thought of it that way (clever boy). Yes, very clever . Can you blame our kids being irresistible ? I hope you do find a way at home for Leigh . Luck with the structure routine when you go for it . > I always thought wouldn't it be great if he took my hand and pulled me to the toilet when he needs to go just the way he does to the pantry. Have a great day:) > Sophie How I too , wish the same . When Leigh pulls you , have you noticed more strength in him ? I know does . Take care . Irma, 13,DS/ASD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 Sophie, You said that Relafen has the side effect of headaches. Does your daughter get headaches from it?? Jaye has already been through life with migrains and I would sure hate to go back down that road again. With her seizure disorder we are never sure if her headaches are the migrain or the seizure until after a bit. I think a big part of our determination is on how long they last. The severe headaches she gets that do not last all day but only a few minutes or up to a couple of hours we often attribute to seizure. The long lasting all day or several days we attribute to migrains but even those could be seizure related.? Most generally Jayes seizure activity has caused more headaches literally and figurativly then other symptoms.? Just another thing to watch for and have more questions.? We see the rheumy on August 31 to see how she is doing.? they were good to say that if she has more problems or does not get better with her foot problem she has now, they will get her in sooner.? Veri & Jaye 15 poly Quote Link to comment Share on other sites More sharing options...
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