Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 I am also curious. I have been thinking of getting one for my daughter because she will be going to college soon. She will not tell anyone, so if there were an emergency in which she could not speak for herself no one would know anything about her condition. Maybe I hover too much too, but it feels to me like the responsible thing to do. , (17 juvenile psoriatic arthritis, tmj) Sent on the Sprint® Now Network from my BlackBerry® Re: Medical Alert bracelets/necklaces wears one. It's from 's Hope - here's the webpage for the one I got: http://www.laurenshope.com/products/117/waterproof-adjustable-medical-id-bands I do the waterproof, velcro band with the insertible information card - because 's meds change so much. I don't use the cards that come with the bracelet though - even though it says they are waterproof when written on with their pen (basically a sharpie). I was using those at first and the information was getting smeared from washing her hands and getting the bracelet wet with art class, etc. I have a word document that I use to update info as needed, then print it out and laminate down to a size that fits inside the bracelet (I do info on two sides and laminate it back to back). I have to use Calibri size 8 to get it all to fit. The info I list is as follows: Rose Winn D.O.B. 3/31/01 Systemic JRA/JIA –Daily Meds: Prednisone 2mg; Kineret .11ml injected; Mobic 3.75mg; Folic Acid 1mg Weekly Methotrexate 1ml injected, Penicillin & Cipro Allergy Parents: (970) 227-3900; (970) 214-9881 Pediatrician: (970) 482-2515 Ballard Rheumatologist: (720) 777-6132 Soep I've been thinking of getting a prettier bracelet for , with a more generalized amount of info engraved. So far she doesn't have any problem wearing the velcro one. In fact she says she doesn't want one that looks like a bracelet because then more kids would ask her about the info on it. I feel like I'm listing probably more info than needed, and I should probably " let go " a bit. I've definitely turned into a hover mother in the course of this disease, but the ironic truth is I have way less control of the situation than I could ever pretend to have ... I just want the info there in case of an emergency, namely a car accident I guess. I'll be curious to see what other responses you get. I do notice that when we go to Arthritis Foundation events and see other JIA families that is one of the only ones wearing a medical bracelet. Do I need to let go a bit?! What's the balance of preparation versus control freak?? nn (, 9, systemic) > > I may have asked this before... > > What do you think about doing a medical alert bracelet/necklace for your JIA child? Mainly due to the medications they are on I guess. > > Does anyone here have them for their child? If so, do you have problems getting them to wear them? > > I really am thinking about getting one for my son, especially to wear when he is at school and/or away from home. > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 You might also consider registering her thru the disability dept at her college. Her physician would need to write a letter detailing needed accommodations. One such accommodation is being able to register early. She then could get the classes she wanted at a later time in the morning to help with fatigue. n has been registered thru disability the last four years at her school. (n ,21, systemic) Sent from my iPhone On Dec 1, 2010, at 8:33 AM, blessingsmine@... wrote: > I am also curious. I have been thinking of getting one for my daughter because she will be going to college soon. She will not tell anyone, so if there were an emergency in which she could not speak for herself no one would know anything about her condition. Maybe I hover too much too, but it feels to me like the responsible thing to do. > , (17 juvenile psoriatic arthritis, tmj) > Sent on the Sprint® Now Network from my BlackBerry® > > Re: Medical Alert bracelets/necklaces > > wears one. It's from 's Hope - here's the webpage for the one I got: > > http://www.laurenshope.com/products/117/waterproof-adjustable-medical-id-bands > > I do the waterproof, velcro band with the insertible information card - because 's meds change so much. I don't use the cards that come with the bracelet though - even though it says they are waterproof when written on with their pen (basically a sharpie). I was using those at first and the information was getting smeared from washing her hands and getting the bracelet wet with art class, etc. > > I have a word document that I use to update info as needed, then print it out and laminate down to a size that fits inside the bracelet (I do info on two sides and laminate it back to back). I have to use Calibri size 8 to get it all to fit. The info I list is as follows: > > Rose Winn D.O.B. 3/31/01 > Systemic JRA/JIA –Daily Meds: Prednisone 2mg; > Kineret .11ml injected; Mobic 3.75mg; Folic Acid 1mg > Weekly Methotrexate 1ml injected, Penicillin & Cipro Allergy > > Parents: (970) 227-3900; (970) 214-9881 > Pediatrician: (970) 482-2515 Ballard > Rheumatologist: (720) 777-6132 Soep > > I've been thinking of getting a prettier bracelet for , with a more generalized amount of info engraved. So far she doesn't have any problem wearing the velcro one. In fact she says she doesn't want one that looks like a bracelet because then more kids would ask her about the info on it. I feel like I'm listing probably more info than needed, and I should probably " let go " a bit. I've definitely turned into a hover mother in the course of this disease, but the ironic truth is I have way less control of the situation than I could ever pretend to have ... I just want the info there in case of an emergency, namely a car accident I guess. I'll be curious to see what other responses you get. I do notice that when we go to Arthritis Foundation events and see other JIA families that is one of the only ones wearing a medical bracelet. Do I need to let go a bit?! What's the balance of preparation versus control freak?? > > nn (, 9, systemic) > > > >> >> I may have asked this before... >> >> What do you think about doing a medical alert bracelet/necklace for your JIA child? Mainly due to the medications they are on I guess. >> >> Does anyone here have them for their child? If so, do you have problems getting them to wear them? >> >> I really am thinking about getting one for my son, especially to wear when he is at school and/or away from home. >> >> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Thank you for that info. I will definitely do that! It will give me greater piece of mind while she is away. Sent on the Sprint® Now Network from my BlackBerry® Re: Medical Alert bracelets/necklaces > > wears one. It's from 's Hope - here's the webpage for the one I got: > > http://www.laurenshope.com/products/117/waterproof-adjustable-medical-id-bands > > I do the waterproof, velcro band with the insertible information card - because 's meds change so much. I don't use the cards that come with the bracelet though - even though it says they are waterproof when written on with their pen (basically a sharpie). I was using those at first and the information was getting smeared from washing her hands and getting the bracelet wet with art class, etc. > > I have a word document that I use to update info as needed, then print it out and laminate down to a size that fits inside the bracelet (I do info on two sides and laminate it back to back). I have to use Calibri size 8 to get it all to fit. The info I list is as follows: > > Rose Winn D.O.B. 3/31/01 > Systemic JRA/JIA –Daily Meds: Prednisone 2mg; > Kineret .11ml injected; Mobic 3.75mg; Folic Acid 1mg > Weekly Methotrexate 1ml injected, Penicillin & Cipro Allergy > > Parents: (970) 227-3900; (970) 214-9881 > Pediatrician: (970) 482-2515 Ballard > Rheumatologist: (720) 777-6132 Soep > > I've been thinking of getting a prettier bracelet for , with a more generalized amount of info engraved. So far she doesn't have any problem wearing the velcro one. In fact she says she doesn't want one that looks like a bracelet because then more kids would ask her about the info on it. I feel like I'm listing probably more info than needed, and I should probably " let go " a bit. I've definitely turned into a hover mother in the course of this disease, but the ironic truth is I have way less control of the situation than I could ever pretend to have ... I just want the info there in case of an emergency, namely a car accident I guess. I'll be curious to see what other responses you get. I do notice that when we go to Arthritis Foundation events and see other JIA families that is one of the only ones wearing a medical bracelet. Do I need to let go a bit?! What's the balance of preparation versus control freak?? > > nn (, 9, systemic) > > > >> >> I may have asked this before... >> >> What do you think about doing a medical alert bracelet/necklace for your JIA child? Mainly due to the medications they are on I guess. >> >> Does anyone here have them for their child? If so, do you have problems getting them to wear them? >> >> I really am thinking about getting one for my son, especially to wear when he is at school and/or away from home. >> >> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 I second ’s suggestion. is in her first year of college but has already found the disability dept to be incredibly helpful. Liz From: [mailto: ] On Behalf Of Price Sent: Wednesday, December 01, 2010 11:45 AM Subject: Re: Re: Medical Alert bracelets/necklaces You might also consider registering her thru the disability dept at her college. Her physician would need to write a letter detailing needed accommodations. One such accommodation is being able to register early. She then could get the classes she wanted at a later time in the morning to help with fatigue. n has been registered thru disability the last four years at her school. (n ,21, systemic) Sent from my iPhone On Dec 1, 2010, at 8:33 AM, blessingsmine@... <mailto:blessingsmine%40sbcglobal.net> wrote: > I am also curious. I have been thinking of getting one for my daughter because she will be going to college soon. She will not tell anyone, so if there were an emergency in which she could not speak for herself no one would know anything about her condition. Maybe I hover too much too, but it feels to me like the responsible thing to do. > , (17 juvenile psoriatic arthritis, tmj) > Sent on the Sprint® Now Network from my BlackBerry® > > Re: Medical Alert bracelets/necklaces > > wears one. It's from 's Hope - here's the webpage for the one I got: > > http://www.laurenshope.com/products/117/waterproof-adjustable-medical-id-bands > > I do the waterproof, velcro band with the insertible information card - because 's meds change so much. I don't use the cards that come with the bracelet though - even though it says they are waterproof when written on with their pen (basically a sharpie). I was using those at first and the information was getting smeared from washing her hands and getting the bracelet wet with art class, etc. > > I have a word document that I use to update info as needed, then print it out and laminate down to a size that fits inside the bracelet (I do info on two sides and laminate it back to back). I have to use Calibri size 8 to get it all to fit. The info I list is as follows: > > Rose Winn D.O.B. 3/31/01 > Systemic JRA/JIA –Daily Meds: Prednisone 2mg; > Kineret .11ml injected; Mobic 3.75mg; Folic Acid 1mg > Weekly Methotrexate 1ml injected, Penicillin & Cipro Allergy > > Parents: (970) 227-3900; (970) 214-9881 > Pediatrician: (970) 482-2515 Ballard > Rheumatologist: (720) 777-6132 Soep > > I've been thinking of getting a prettier bracelet for , with a more generalized amount of info engraved. So far she doesn't have any problem wearing the velcro one. In fact she says she doesn't want one that looks like a bracelet because then more kids would ask her about the info on it. I feel like I'm listing probably more info than needed, and I should probably " let go " a bit. I've definitely turned into a hover mother in the course of this disease, but the ironic truth is I have way less control of the situation than I could ever pretend to have ... I just want the info there in case of an emergency, namely a car accident I guess. I'll be curious to see what other responses you get. I do notice that when we go to Arthritis Foundation events and see other JIA families that is one of the only ones wearing a medical bracelet. Do I need to let go a bit?! What's the balance of preparation versus control freak?? > > nn (, 9, systemic) > > > >> >> I may have asked this before... >> >> What do you think about doing a medical alert bracelet/necklace for your JIA child? Mainly due to the medications they are on I guess. >> >> Does anyone here have them for their child? If so, do you have problems getting them to wear them? >> >> I really am thinking about getting one for my son, especially to wear when he is at school and/or away from home. >> >> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Thanks and Liz, I did not even think about there being something like that at college for our kids. I just assumed that they would be on their own. Jaye will not be in college for another year and a half but we will certainly check it out. Veri & Jaye 16 poly Re: Medical Alert bracelets/necklaces > > wears one. It's from 's Hope - here's the webpage for the one I got: > > http://www.laurenshope.com/products/117/waterproof-adjustable-medical-id-bands > > I do the waterproof, velcro band with the insertible information card - because 's meds change so much. I don't use the cards that come with the bracelet though - even though it says they are waterproof when written on with their pen (basically a sharpie). I was using those at first and the information was getting smeared from washing her hands and getting the bracelet wet with art class, etc. > > I have a word document that I use to update info as needed, then print it out and laminate down to a size that fits inside the bracelet (I do info on two sides and laminate it back to back). I have to use Calibri size 8 to get it all to fit. The info I list is as follows: > > Rose Winn D.O.B. 3/31/01 > Systemic JRA/JIA –Daily Meds: Prednisone 2mg; > Kineret .11ml injected; Mobic 3.75mg; Folic Acid 1mg > Weekly Methotrexate 1ml injected, Penicillin & Cipro Allergy > > Parents: (970) 227-3900; (970) 214-9881 > Pediatrician: (970) 482-2515 Ballard > Rheumatologist: (720) 777-6132 Soep > > I've been thinking of getting a prettier bracelet for , with a more generalized amount of info engraved. So far she doesn't have any problem wearing the velcro one. In fact she says she doesn't want one that looks like a bracelet because then more kids would ask her about the info on it. I feel like I'm listing probably more info than needed, and I should probably " let go " a bit. I've definitely turned into a hover mother in the course of this disease, but the ironic truth is I have way less control of the situation than I could ever pretend to have ... I just want the info there in case of an emergency, namely a car accident I guess. I'll be curious to see what other responses you get. I do notice that when we go to Arthritis Foundation events and see other JIA families that is one of the only ones wearing a medical bracelet. Do I need to let go a bit?! What's the balance of preparation versus control freak?? > > nn (, 9, systemic) > > > >> >> I may have asked this before... >> >> What do you think about doing a medical alert bracelet/necklace for your JIA child? Mainly due to the medications they are on I guess. >> >> Does anyone here have them for their child? If so, do you have problems getting them to wear them? >> >> I really am thinking about getting one for my son, especially to wear when he is at school and/or away from home. >> >> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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