Thank you

[Guest guest]

It has been a few days since my last post. It is getting very cold here in

Georgia and has been having a very hard time. I just wanted to say thank

you to everyone that replied to my original post, and an even bigger thank you

for the words of encouragement, and advice!

I have a question. What are some of the time frames y'all experienced between

being diagnosed to your child's first 'remission'? Now that is off the

steroids, it seems her pain has come back full force. I was really hoping that

the steroids would get the pain under control, and the Naproxen would reduce the

swelling, so the Metho could do its job, but it seems we are right back to where

we were when this whole thing started. We will be giving her 11th weekly shot

of Metho tomorrow, and I am wondering just when I will see a difference in her

pain or if I need to call the doc to see if upping the dosage is what we need to

be doing or am I fighting a losing battle because of the cold weather and we

just have to manage.

Also, do any of your kids get a belly ache from the Naproxen? has been

experiencing that for the last week - is there anything else she can take

instead of the Naproxen or something she can take to ease her belly?

For those of you who live where it is cold this time of year, do you do anything

different for your kids to help them with their joints? I just bought a heating

blanket, but my mother has now made me paranoid that it is going to set my house

on fire so I don't know if I'm going to use it - but I thought it was a great

idea.

I hate to bother y'all with my questions, but it seems I get a quicker response

here than from the doc.

Thanks

Candi