Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 I answered to the best of my ability, since my mom is longer here I could only answer it the best I could. 1. Weight at Birth? 6lbs 2 oz 2. Did the child have Jaundice? & nbsp; No 3. Was the child Breastfed? Yes 4. If Breastfed how long? Nine months 5. Weeks Gestation at Birth? & nbsp; I believe a week early 6. 1st year any Hospital Stay? No 7. 1st yr any Infections? Croup, bronchitis, ear infections.. I also had neurophybroma tumors removed from my mouth and throat when I was four months old. 8. What birth order is child? I am the second daughter of my mom, but the fourth daughter of my father. 9. Was child Conceived Natural or by other means? Natural 10. What age did Immunizations start? Typical infant and so on 11. Any reactions to any of the Immunization shots? Five year old immunizations resulted in a severe flu like reaction that almost resulted in a hospitalization 12. Has the child had a Blood Transfusion? No 13. What type of work do You and Spouse do? Mom was a psychologist, dad is a project manager for a construction company 14. Was a Immunization shot given 6 months prior to Symptoms of JA? Unknown 15. If so what age? n/a 16. So you live in the City, Rural, or Suburb? 30 minutes outside of San Francisco 17. Do you live near a Factory, Chemical, Farm land? No 18. Did you feed the child Baby Food or made your own at home? My mom made my food 19. If you fed the child Baby food what brand was it? n/a 20. If the child ate baby food What variety did the child eat? unknown 21. Does a Sibling have any Issues? Sister (firstborn) has hypothyroidism, second born sister has joint issues as well as a fused neck, however when she saw a rheumy was dx with fibromyalgia, third born sister has thalesemia 22. Does any member of the Family have any Health issues? Mom had cancer (large cell carcinoma) as well as thalesemia 23. Is child allergic to anything? Gluten, Avacado, sulfa 24. How close are you to a Ped. Rhuemy? 20 minutes 25. How long did it take for a Diagnosis? & nbsp; Not long 26. What State are you in? & nbsp; California 27. Does the Weather make child worse? Yes 28. What Medications does the child take? none currently 29. Does the Medications help? na 30. In the last yr How many Flares has the child had? four 31. What type of Juvenile Arthritis does the child have? A mix between JAS and MCTD 32. Have you ever been to a AJAO Conference?No 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? Yes 34. During Pregnancy did you take any Medication? Unknown 35. Was child delivered Natural or by C-Section? Natural 36. How many Hours of Labor? Two hours Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 Here are my answers. & nbsp; My computer doesn't like it when i copy paste...ugh....so i have replied. Love, mia Mia is cute & nbsp; & nbsp; Ian & nbsp; 9 years old & nbsp; & nbsp; Sashi 5 & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; From: Robbin40@... & lt;Robbin40@... & gt; Subject: Group Survey....... Date: Monday, June 16, 2008, 8:11 PM Ok, Here's a Survey which may help each other see how this group relates. Hope each takes the survey so others can come to seeing what is similar. All you have to do is Copy and Paste this to email and send back to the group. These are questions about the JA child. 1. Weight at Birth? 4 pounds 2. Did the child have Jaundice? yes 3. Was the child Breastfed? yes and no (i pumped for 5 weeks) 4. If Breastfed how long? 5 weeks on breast milk and then was told by doctors to stop...because she was losing weight. 5. Weeks Gestation at Birth? 34 weeks 6. 1st year any Hospital Stay? yes....was on vent for 5 weeks, cannula for 1 week for RSV (she was two weeks old) 7. 1st yr any Infections? RSV 8. What birth order is child? 3rd child...2nd child living. 9. Was child Conceived Natural or by other means? natural 10. What age did Immunizations start? 3 months 11. Any reactions to any of the Immunization shots? yes and no...she swelled up and got red, but i was told it was normal for her. 12. Has the child had a Blood Transfusion? no 13. What type of work do You and Spouse do? i am an at home mom and hubby works for the state of alaska 14. Was a Immunization shot given 6 months prior to Symptoms of JA? rgb(128, 0, 0); " & gt;I dont think so 15. If so what age?..... 16. So you live in the City, Rural, or Suburb? City (34,000) 17. Do you live near a Factory, Chemical, Farm land? no 18. Did you feed the child Baby Food or made your own at home? sashi didnt eat " real foods " & nbsp; until 3 years old...only bottles 19. If you fed the child Baby food what brand was it?.... 20. If the child ate baby food What variety did the child eat?.... 21. Does a Sibling have any Issues? If so please list. No JRA problems, but has apeana and may have ADD. 22. Does any member of the Family have any Health issues? Not me nor hubby...but my aunt has lupus If so list relationship to child and what Health Issues. 23. Is child allergic to anything? she is allergic to herself...not allergic to any & nbsp; outside body stuff. If so please list. 24. How close are you to a Ped. Rhuemy? 1000 miles 25. How long did it take for a Diagnosis? we are still having problems....i wish we had a good doc. 26. What State are you in? alaska 27. Does the Weather make child worse? it is hard to tell...she is always hurting 28. What Medications does the child take?naproxen, tylonal 29. Does the Medications help? it is hard to tell...she is always hurting 30. In the last yr How many Flares has the child had? too many to count....has one tonight. 31. What type of Juvenile Arthritis does the child have?.... 32. Have you ever been to a AJAO Conference?no 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event?no 34. During Pregnancy did you take any Medication? yes...too many to count...i have bad pregnancies..i am on bed rest and drugs to keep baby in. If so what? 35. Was child delivered Natural or by C-Section? C-Section 36. How many Hours of Labor? 1 ************ **Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos. aol.com/used? ncid=aolaut00050 000000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 1. Weight at Birth? 3.95 kilos (almost 9 lbs.) 2. Did the child have Jaundice? yes 3. Was the child Breastfed? mixed bottle and breast fed 4. If Breastfed how long? 5 months 5. Weeks Gestation at Birth? 42 6. 1st year any Hospital Stay? yes, at birth for a month, for meconium aspiration syndrome and its complications 7. 1st yr any Infections? yes: pneumonia, blood infection, strep 3 times 8. What birth order is child? first 9. Was child Conceived Natural or by other means? natural 10. What age did Immunizations start? 3 months 11. Any reactions to any of the Immunization shots? no 12. Has the child had a Blood Transfusion? no 13. What type of work do You and Spouse do? I'm a teacher, my husband is a computer system developer 14. Was a Immunization shot given 6 months prior to Symptoms of JA? no 15. If so what age? n/a 16. So you live in the City, Rural, or Suburb? suburb 17. Do you live near a Factory, Chemical, Farm land? farmland (olive groves) 18. Did you feed the child Baby Food or made your own at home? homemade 19. If you fed the child Baby food what brand was it? n/a 20. If the child ate baby food What variety did the child eat? n/a 21. Does a Sibling have any Issues? If so please list. no 22. Does any member of the Family have any Health issues? If so list relationship to child and what Health Issues. I have undifferentiated spondy (iritis, IBS, tendon and joint inflammation, but no spinal fusion so its not full blown spondy). My mother has psoriatic arthritis. All three of us (mom, me, ) are HLAB27+. 23. Is child allergic to anything? If so please list. no 24. How close are you to a Ped. Rhuemy? 10 kilometers. 25. How long did it take for a Diagnosis? has orthopedic problems, and his arthritis pain was overlooked and attributed to his orthopedic problems for about 2 years before he was diagnosed. 26. What State are you in? Spain 27. Does the Weather make child worse? no 28. What Medications does the child take? at the moment only naprosyn 29. Does the Medications help? yes 30. In the last yr How many Flares has the child had? Hard to say exactly what a flare is...3 or 4(?) rather more important ones 31. What type of Juvenile Arthritis does the child have? HLAB27+ enthesitis related JIA (ie juvenile spondy) 32. Have you ever been to a AJAO Conference? No 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? No 34. During Pregnancy did you take any Medication? If so what? No 35. Was child delivered Natural or by C-Section? C-Section 36. How many Hours of Labor? 36 , mom to : 15 with juvenile spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 1. Weight at Birth? 7lbs.2oz. 2. Did the child have Jaundice? No 3. Was the child Breastfed? Yes 4. If Breastfed how long? 15 months, no solids before 5 months 5. Weeks Gestation at Birth? 40 6. 1st year any Hospital Stay? No 7. 1st yr any Infections? No 8. What birth order is child? First 9. Was child Conceived Natural or by other means? Natural 10. What age did Immunizations start? 2 months 11. Any reactions to any of the Immunization shots? No 12. Has the child had a Blood Transfusion? No 13. What type of work do You and Spouse do? Me, SAHm; Husband, military 14. Was a Immunization shot given 6 months prior to Symptoms of JA? No 15. If so what age? 16. So you live in the City, Rural, or Suburb? Small town 17. Do you live near a Factory, Chemical, Farm land? No 18. Did you feed the child Baby Food or made your own at home? baby food 19. If you fed the child Baby food what brand was it? Gerber 20. If the child ate baby food What variety did the child eat? All 21. Does a Sibling have any Issues? If so please list. No 22. Does any member of the Family have any Health issues? No If so list relationship to child and what Health Issues. 23. Is child allergic to anything? No If so please list. 24. How close are you to a Ped. Rhuemy? 25 miles 25. How long did it take for a Diagnosis? 2 weeks 26. What State are you in? VA 27. Does the Weather make child worse? No 28. What Medications does the child take? Prilosec, Naproxen 29. Does the Medications help? Yes 30. In the last yr How many Flares has the child had? 1, just diagnosed in April 31. What type of Juvenile Arthritis does the child have? pauci 32. Have you ever been to a AJAO Conference? No 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? No 34. During Pregnancy did you take any Medication? No If so what? 35. Was child delivered Natural or by C-Section? Natural 36. How many Hours of Labor? 2 **************Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut00050000000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 Survey for ph, 14mos. systemic jra 1. Weight at Birth? 7lbs 9oz 2. Did the child have Jaundice? yes, needed phototherapy 3. Was the child Breastfed? yes 4. If Breastfed how long? he is 14mos. and we have started to wean him now 5. Weeks Gestation at Birth? 37 6. 1st year any Hospital Stay? NICU 4 days after birth. 3 days @ 3weeks old, 3 days @ 6weeks old, 2 days @ 3.5 mos. 7. 1st yr any Infections? no infections but recieved IV antibiotics at birth and at 3 week old hospital stay because of suspected infection, but all cutures were negative. 8. What birth order is child? 5 9. Was child Conceived Natural or by other means? natural 10. What age did Immunizations start? has not begun yet because of medical history and still no dx other then JRA 11. Any reactions to any of the Immunization shots? N/A 12. Has the child had a Blood Transfusion? no 13. What type of work do You and Spouse do? manual labor 14. Was a Immunization shot given 6 months prior to Symptoms of JA? no 15. If so what age? 16. So you live in the City, Rural, or Suburb? rural 17. Do you live near a Factory, Chemical, Farm land? farm land 18. Did you feed the child Baby Food or made your own at home? both 19. If you fed the child Baby food what brand was it? gerber 20. If the child ate baby food What variety did the child eat? mostly fruits 21. Does a Sibling have any Issues? If so please list. oldest son is very clumsy and complains of leg pains, we are getting him evaluated because it has always been dismissed as growing pains (he is 13 and 6ft tall) but since ph was dx'd with JRA we want to have my older son checked. 22. Does any member of the Family have any Health issues? no If so list relationship to child and what Health Issues. 23. Is child allergic to anything? not that we know of If so please list. 24. How close are you to a Ped. Rhuemy? 15 miles 25. How long did it take for a Diagnosis? 3 mos of very high fevers and swollen glands 26. What State are you in? FL 27. Does the Weather make child worse? does not seem to but he has very low heat tolerance 28. What Medications does the child take? naproxen, prevacid 29. Does the Medications help? yes 30. In the last yr How many Flares has the child had? one 31. What type of Juvenile Arthritis does the child have? systemic 32. Have you ever been to a AJAO Conference? no 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? no 34. During Pregnancy did you take any Medication? yes was hospitalized twice for preterm labor If so what? mag to stop contractions, and some other med to stop contractions 35. Was child delivered Natural or by C-Section? natural 36. How many Hours of Labor? 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 Ok, Here's a Survey which may help each other see how this group relates. Hope each takes the survey so others can come to seeing what is similar. All you have to do is Copy and Paste this to email and send back to the group. These are questions about the JA child. 1. Weight at Birth? 8lbs 7oz 2. Did the child have Jaundice? Yes, Required 3 extra days in hosptial and phototherapy at home for 2 more weeks. 3. Was the child Breastfed?Yes 4. If Breastfed how long?16 months 5. Weeks Gestation at Birth? 36 6. 1st year any Hospital Stay?Nope 7. 1st yr any Infections?no 8. What birth order is child?First 9. Was child Conceived Natural or by other means?Natura 10. What age did Immunizations start? Right away, as scheduled 11. Any reactions to any of the Immunization shots?fussiness 12. Has the child had a Blood Transfusion?no 13. What type of work do You and Spouse do? Stay at home mom and Air Force, security 14. Was a Immunization shot given 6 months prior to Symptoms of JA? Don't think so 15. If so what age? 16. So you live in the City, Rural, or Suburb? Suburb 17. Do you live near a Factory, Chemical, Farm land?NO 18. Did you feed the child Baby Food or made your own at home?Homemade 19. If you fed the child Baby food what brand was it? Del Monte 20. If the child ate baby food What variety did the child eat? All kinds 21. Does a Sibling have any Issues? Both have reflux 22. Does any member of the Family have any Health issues? Poly myositis (connective tissue) and MS, Grandparents If so list relationship to child and what Health Issues. 23. Is child allergic to anything? Apples If so please list. 24. How close are you to a Ped. Rhuemy? About an hour 25. How long did it take for a Diagnosis? 6+ months, still making sure thats' all it is 26. What State are you in? land 27. Does the Weather make child worse?yep 28. What Medications does the child take?Just motrin for now 29. Does the Medications help? Not really 30. In the last yr How many Flares has the child had? 2 major ones 31. What type of Juvenile Arthritis does the child have? Poly 32. Have you ever been to a AJAO Conference?NO 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event?NO 34. During Pregnancy did you take any Medication?NO If so what? 35. Was child delivered Natural or by C-Section? C-section 36. How many Hours of Labor? Zero Falen Hayden and Kaley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 Audrey son 1. Weight at Birth? 8 lbs 7.6 ozs 2. Did the child have Jaundice? No 3. Was the child Breastfed? No 4. If Breastfed how long? 5. Weeks Gestation at Birth? 39 weeks 6. 1st year any Hospital Stay? When born had staph infection and strep infection - hospitalized for 10 days 7. 1st yr any Infections? Ear infections 8. What birth order is child? First 9. Was child Conceived Natural or by other means? Natural with Clomid 10. What age did Immunizations start? 2 weeks 11. Any reactions to any of the Immunization shots? No 12. Has the child had a Blood Transfusion?No 13. What type of work do You and Spouse do? At the time - secretarial and courier 14. Was a Immunization shot given 6 months prior to Symptoms of JA? Yes 15. If so what age? Her one year old shots 16. So you live in the City, Rural, or Suburb? Suburbs 17. Do you live near a Factory, Chemical, Farm land? No 18. Did you feed the child Baby Food or made your own at home? Baby food 19. If you fed the child Baby food what brand was it? Various 20. If the child ate baby food What variety did the child eat? All of them 21. Does a Sibling have any Issues? If so please list. Her brother Bryce - diagnosed with infantile spasms at 6 mos of age - seizure free now since 7/10/05, developmental delays, apraxia 22. Does any member of the Family have any Health issues? Father - high cholesterol If so list relationship to child and what Health Issues. 23. Is child allergic to anything? No If so please list. 24. How close are you to a Ped. Rhuemy? 30 minutes 25. How long did it take for a Diagnosis? 1 week 26. What State are you in? Utah 27. Does the Weather make child worse? Yes 28. What Medications does the child take? Naproxen prn, mtx .3 cc weekly, Enbrel ..5 cc weekly 29. Does the Medications help? Yes 30. In the last yr How many Flares has the child had? one to two 31. What type of Juvenile Arthritis does the child have? extended oligo 32. Have you ever been to a AJAO Conference? Going this year 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? Yes, Audrey was the honoree 34. During Pregnancy did you take any Medication? Yes If so what? Synthroid, multivitamin 35. Was child delivered Natural or by C-Section? C-section 36. How many Hours of Labor? 37 hours before c-section. Failure to progress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 > > 1. Weight at Birth?6 lb 13 oz > 2. Did the child have Jaundice? Yes > 3. Was the child Breastfed? Yes > 4. If Breastfed how long? 12 months > 5. Weeks Gestation at Birth?37 weeks > 6. 1st year any Hospital Stay?no > 7. 1st yr any Infections?lots and lots and lots of otits media (ear infections) and throat/ upper respiratory infections/ some asthma- like symptoms- some very scary illnesses, but no hospital stays- did have ear tubes twice - once at 1 year and once at 2 years > 8. What birth order is child? first > 9. Was child Conceived Natural or by other means? natural > 10. What age did Immunizations start? 2 months > 11. Any reactions to any of the Immunization shots? no > 12. Has the child had a Blood Transfusion?no > 13. What type of work do You and Spouse do?me- homemaker, dad- lab tech in uranium enrichment plant- deals with radiation samples at times > 14. Was a Immunization shot given 6 months prior to Symptoms of JA?no > 15. If so what age?do you mean when symptoms of jra?? age 7 > 16. So you live in the City, Rural, or Suburb?rural > 17. Do you live near a Factory, Chemical, Farm land? farm, factory > 18. Did you feed the child Baby Food or made your own at home?both > 19. If you fed the child Baby food what brand was it?don't remember > 20. If the child ate baby food What variety did the child eat?what does variety mean? which foods? > 21. Does a Sibling have any Issues? If so please list. no > 22. Does any member of the Family have any Health issues?Dad type 1 diabetic; Mom hypothyroid; Grandfather, heart disease; Grandmother hypothyroid, Aunt- autistic, diabetic type 2; Aunt- fibromyalgia/ chronic fatigue, cousin- reactive arthritis, grandfather- melanoma, grandmother- psoriasis and arthritis > If so list relationship to child and what Health Issues. > 23. Is child allergic to anything? penecillin, cephalosporins, poison ivy, gets hives from different things > If so please list. > 24. How close are you to a Ped. Rhuemy? 3 1/2 hours > 25. How long did it take for a Diagnosis? 7 months > 26. What State are you in? kentucky > 27. Does the Weather make child worse?yes- mostly barometric pressure changes > 28. What Medications does the child take?Now- arava and ketoprofen; previously mtx, enbrel, remicade, naproxen > 29. Does the Medications help? Yes- when not on it definitely can tell- trying to wean down and see though if does okay on lower or without > 30. In the last yr How many Flares has the child had? hard to know? > 31. What type of Juvenile Arthritis does the child have?pauci?? Drs not positive on that diagnosis > 32. Have you ever been to a AJAO Conference?no > 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis > Event?no > 34. During Pregnancy did you take any Medication? I can't remember- he's the first of four kids and I get them all mixed up- but the most I ever took with any was tylenol, sudafed, and keflex > If so what? > > 35. Was child delivered Natural or by C-Section? natural > 36. How many Hours of Labor?36 > > > > > **************Gas prices getting you down? Search AOL Autos for > fuel-efficient used cars. > (http://autos.aol.com/used?ncid=aolaut00050000000007) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 1. Weight at Birth? 8lb 8oz 2. Did the child have Jaundice? I think so 3. Was the child Breastfed? kinda 4. If Breastfed how long? 2 weeks 5. Weeks Gestation at Birth? 41+ 6. 1st year any Hospital Stay? N/A 7. 1st yr any Infections? ear infection, strep throat, croup, a few colds 8. What birth order is child? first 9. Was child Conceived Natural or by other means? natural 10. What age did Immunizations start? on schedule 11. Any reactions to any of the Immunization shots? fever with MMR but nothing real unusual 12. Has the child had a Blood Transfusion? no 13. What type of work do You and Spouse do? Me, SAHM & DH courier for FedEx 14. Was a Immunization shot given 6 months prior to Symptoms of JA? HepA 15. If so what age? 2 years 16. So you live in the City, Rural, or Suburb? suburb 17. Do you live near a Factory, Chemical, Farm land? farm 18. Did you feed the child Baby Food or made your own at home? both 19. If you fed the child Baby food what brand was it? Gerber 20. If the child ate baby food What variety did the child eat? everything 21. Does a Sibling have any Issues? If so please list. mild heart murmur, chronic ear infections 22. Does any member of the Family have any Health issues? If so list relationship to child and what Health Issues. me, chronic pelvic pain, great g-pa diabetes, great g-ma cancer 3 times, second cousin RA, there are more but I don't remember everything exactly. 23. Is child allergic to anything? yes, latex and something topical we were never able to figure out what exactly 24. How close are you to a Ped. Rhuemy? 1.5 hours 25. How long did it take for a Diagnosis? 6+ months 26. What State are you in? California 27. Does the Weather make child worse? Cold weather 28. What Medications does the child take? Naproxen, MTX, Leucovorin and will start Enbrel next week 29. Does the Medications help? a little 30. In the last yr How many Flares has the child had? it's been one long flare 31. What type of Juvenile Arthritis does the child have? Pauci & Uveitis 32. Have you ever been to a AJAO Conference? no 33. Have you ever been to a Arthritis Walk or Juvenile Arthritis Event? yes 34. During Pregnancy did you take any Medication? yes If so what? prenatal vits., iron, steroids for lung development and terbutaline to stop labor 35. Was child delivered Natural or by C-Section? c-section 36. How many Hours of Labor? 12 hours then c-section Quote Link to comment Share on other sites More sharing options...
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