our stuff

[Guest guest]

G'day all, I hope 'Arthur' is playing nice for the most part, and not

causing too much grief for those moving into full-on winter, with its

cold starts. On the flipside, we're approaching summer here so have to

watch the humidity.

As far as our lot is concerned, Bayly is doing very well on the Enbrel

trial- he's been able to go cold turkey on Prednisolone as of

mid-October. By the end of that month, at the most recent check-up for

the study, the doc couldn't find a single active joint! Yep, zero joint

count for Master B for the first time ever- over 7.5 years!! We were

cheering, to put it mildly. Grant had to do the 8+ hour round trip due

to my still-enforced mobility (right leg still paralysed unfortunately)

and found it to be a ... let's say challenging experience to say the

least. Exhausting was another word he used, along with a number of

expletives I couldn't possibly repeat here. []

Grant's never flown solo with the whole JIA thing until now, so it was

a real eye-opener.

Unfortunately, Bay's neck has decided to grumble a little bit when we

saw the Paed Rheumy mid-November, it's grumbling still but not slowing

him down too much, which is awesome. Every time we've ever tried to

wean the Pred, Bayly's had a flare-up so we're hoping it stays away this

time.

As for me, I see the neurosurgeon again next Friday. The foot drop is

improving very slowly, but falling over and spraining my ankle- twice

mind you- isn't helping the healing. And we just have to wait and see

if I ever regain full feeling in my leg.

Anyway, take care everyone,

Jo

Bayly, 8, eoJIA

PS: Just saw " Megamind " at the movies, thank to our state Arthritis

Foundation.... hilarious!