Re: New to JRA--Sandy

[Guest guest]

Sandy,

Welcome to our group and I hope that you soon find out that your daughter does

not have JIA and that she is doing beetter real soon. This is a wonderful group

and you will be able to get much information from them. My daughter was 11 when

diagnosed with JIA. She was first diagnosed Pauciarticular and then it was

changed to Polyarticular. She started with a swollen ankle and within a few

months it had spread to her wrists, hands, elbows, knees and feet. She also had

some jaw involvement in the beginning but that has not been a problem for quite

some time now. Since then she has had joint pain in every joint we know of in

her body at one time or another. For her it seems one area will be inflamed for

a while then it settles down. This Fall has not been good for her and she has

had problems with her knees, feet, ankles, wrists, elbows, neck, back, sholders

and maybe more. This seems to be her worst Fall so far. She always has struggles

moving into the fall and winter but seems to do ok during the winter and Spring.

I do not understand it, but we deal with it. Her initial big flare was in

Ocotober 2005. We have kept her on the lower end meds so far but know that the

biologics are out there if we need them. Currently she is on methotrexate,

hydroxichloroquine, and meloxicam for arthritis. She is on prevacid and folic

acid for tummy trubles caused by these meds, and then she takes medication for

seizure control. We recently increased her methotrexate and she seems to be

doing better.

There is always a chance that our kids will go into remission and that is our

goal. I would prefer a medication free remission but at this point am ready for

a medidcated remission so she can just enjoy being a young lady. Be sure to ask

any questions about arthritis or any of the medications. Someone on this list

will have knowledge about just about anything related.

Veri & Jaye 16 poly

Re: New to JRA

Welcome to the group! I am 13 with JRA and there are tons of people on this

network who can help you if you have questions about JRA or if you need advice.

This is really a fantastic group. I am so glad I found it too and I have made

great friends.

Best wishes

Shea Reasoner (Shay Ree so ner)

(13 polyarticular JRA and pain disorder)

Sent from my iPad

On Nov 23, 2010, at 3:17 PM, " LesleyM " <lmalone255@...> wrote:

Hello. My name is Lesley and my daughter, Maddie, was diagnosed with

polyarticular JRA in July at 15 months old. I am so glad to have

finally found a group for support and information! I just wanted to

introduce myself. Thanks!