I am so sad... is flaring.

November 20, 2010

I am so, so sad for my sweet little guy...we were (past tense now) trying to

wean from MTX (while keeping him on Enbrel). He had no signs of active

disease since last November, so earlier this year the rheumy decided to start

weaning him from MTX. He did fine with the first step down but in October the

rheumy had us start giving him the MTX every other week. He started having some

minor aches and pains...but on Wednesday he mentioned his knees hurt and asked

for naproxen (he's been off it since last November.). He is not a complainer so

I knew in my gut this was not good.

I called the nurse on Thursday and she wanted us to bring him in even though his

regular rheumy was out. So yesterday we went and it was confirmed both of his

knees were inflamed...this really stinks because only one knee was previously

impacted. So back to weekly MTX ( & Enbrel) injections as well as going back on

naproxen for now.

I hate this stupid disease...hate it! I hate seeing my 7 year old in pain and

thinking it's normal. I hate that things were going so well and now we got

slapped in the face with the reality that he is probably going to needs these

drugs forever. I hate knowing the disease is waiting, just below the surface, to

rears it's ugly head....bigger and harder than ever. I hate that my baby has so

many stinking obstacles to face and JIA was the last thing he needed on top of

everything else.

I guess I'm not really looking for advice...just someplace to vent to people who

understand. So thanks for " listening " .

& , 7, poly, plus a bunch of other 'stuff'

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