Re: Digest Number 982

[Guest guest]

Hello All, I have been lurking and reading for the

most part... My daughter has not been diagnosed with

Autism, but I suspect it,,, I had mentioned it several

times to her teachers when she was in school and to a

DR or two that I wondered about Autism as my daughter

exhibited <imo> several autistic behaviors.. anyway no

body seemed to think it was relevant I guess..

This is what Alysha did the other day... would anyone

like to comment on whether this is familiar?

Alysha got home from her 2 hr part time volunteer job

at our local Community center, she washes the tables

for the seniors lunch and sets out silverware and

condiments for this she is give a treat to eat there

or bring home which is usually what she does,, the

other day she brought home a big piece of pizza

wrapped in alum. foil and 2 cookies in a plastic

sandwich bag plus a carton of milk... After eating

Alysha carefully smoothed the foil out as flat as she

could get it and the held it in front of her face and

moved it gently back and forth like she was fascinated

by it,, at the same time she would swing her other arm

up to shoulder height and almost in a snapping motion

spread her fingers and then close her fist .. this was

repeated several times , and she would say " ok " or

something else but I didn't understand what it was ..

she tired of the foil rather quickly and then focused

on the empty sandwich bag... this seemed to please her

much more as she seemed to get happier and gleeful as

she dangled the bag in front of her eyes,, then she

would waft the bag thru the air to make it puff out

and then try to put her other hand in it without

touching the sides of the bag... if she got her hand

in and out with out disturbing the " structure " of the

bag then she seemed tickled and happy with herself,,

then she examined the milk carton seemingly fascinated

with how a little bit of milk swirled around in the

bottom of the carton as she moved it,,, as all this is

going on she talks to herself softly but very animated

I watched her for over 1/2 hour it was very

interesting.. she was willing to put the foil and the

milk carton in the recycle bin for me but she was not

going to part with the sandwich bag,,, I

regularly have to clean out her stash of little bags

and paper that she likes to hoard. Oh sometimes when

she does these behaviors her eyes make a rolling

snapping movement that is very strange,, when she

starts that it is difficult to get her attention and

get her to focus,, it is like she has this whole

other reality inside her head sometimes..

She has had 4 major heart operations 2 for AV cannel

and 2 for mitral valve regurgitation and prolapse..

also she had a congenital hip malformation corrected

that took 2 surgeries and 1 1/2 years in 2 body

casts...and a liver abscess that put her in th

hospital for almost 2 months and in between all this a

whole slug of pnuemonias and eating problems... whew I

am tired!

Cat mom to Alysha

__________________________________________________

[Guest guest]

hi cat! my son nathan, 9yrs, w/ds, pdd, add/hd, ocd,

self stims with dangly things, especially shoe

strings, we are currently working with his behavior

management team and a research program they are doing

to stop or txs to help stop self stim behaviors. Many

of our kids slef stim with something or another, some

have similar things some are different. I think i

would try and redirect to another fun object if can or

if possible have them put her treat in a container

instaid of a ziplock baggie or papersack, you can buy

many of those ziplock or glad, containers pretty

inexspensively, and a variety of shapes and sizes, i

use these often, that way if they get ruined,lost or

can be just thrown in been in fridge too long,lol, its

not a big deal, and are easy to wash out, i even think

they are dishwasher safe, maybe on top rack or may

meslt some. hope this helps, shawna, mom to nathan

9yrs w/ds,pdd .... and nicholas 8yrs.

__________________________________________________

[Guest guest]

> Subject: MORE Real CMT Awareness

>

> I want to be clear I am not MDA bashing. Another idea: those of you who

> donate to MDA, next donation, make it for CMT specific research. This is

> called a 'restricted gift' in fundraising terms and MUST be used for

>

THIS IS A GOOD IDEA, AS RECENTLY WHEN MY FATHER PASSED AWAY, WHO HAD CMT, MY

FAMILY REQUESTED THAT ALL DONATIONS BE MADE TO MDA FOR CMT RESEARCH IN LIEU

OF FLOWERS. AS DONATIONS WERE MADE, THEY SENT MY MOTHER A CARD WITH THE

DONORS NAME AND THAT THE MONEY WAS TO DIRECTED TOWARDS CMT WITHIN MDA.

THANKS FOR RAISING THIS VERY IMPORTANT POINT FOR US GRETCHEN.

MONTE

[Guest guest]

Ive never posted before. Ive been reading all the messages about ear

infections on here. My grandson who is 7 years old and autistic with

reoccuring ear infections untill we removed all the glutun and casine from

his diet. He hasent had an ear infection since. It was a very hard diet to

follow but now were able to just give him enzymes which handle the problem,

We are giving him zyme prime and peptizyde from houston nutraceuticals but i

hear their are other good ones out there. I hope this helps someone

sandy

[Guest guest]

,

I totally agree! My suggestion is to just copy and paste the relevant post

[as I have done here] so that we don't see the web addresses/resources, etc

over and over.

Thanks!

Love and Laughter,

:

That's a fine suggestion.

However, I think the reason some folks DON'T erase the previous info. is

because it contains relevant information regarding their response.

Sometimes, it is helpful to have the original email AND the response,

especially if you've never read the original in the first place. Many

times, I've found lots of valuable gems of information by scrolling down,

and reading info I didn't read previously.

Thanks.

best wishes,

karen

[Guest guest]

In a message dated 2/16/2003 7:15:00 AM Pacific Standard Time,

n2dance@... writes:

> I'm not trying to perpetrate a myth, I have tried both and did not do

> well. My naturopath told me that armour would not have been appropriate

> for me because I have autoimmune thyroiditis. I was wondering if anyone

> had read, heard, or been advised of the same. I am aware of the drug

> industry's control over our medical system, but the advising physician

> was an armour-prescribing naturopath.

>

Dear Beth,

I had the same experience with Armour that you did. I did not do well on it

and the longer I took it, the worse I got. Armour is a wonderful medicine

for those who do well on it, but not for everyone! I also didn't do well on

the synthroid/cytomel combo, though I could tell the T3 part was helpful.

For me, I only started to thrive on the timed release T3 only. I think T3 is

a wonderful medicine, but again, not for everyone! So, it's tricky on this

board to recommend for others; each person's needs are so individual. We can

only encourage folks to keep seeking out what works well for them and quit

trying to fit into one treatment plan for all.

Also, the natural progesterone does not help me. I tried it diligently on

the theory that it is " technically " not the same as an estrogenic substance.

I experienced a continuation of hot flashes, severe vaginal dryness, and

continued hypothyroid symptoms the longer I was on it. So, again, it has

helped a lot of women, but not everyone! So, my advice is to find what works

for you and stick with it no matter what works for another person.

Just my .02,

in LA

[Guest guest]

>We've all been told a lot of horse puckey.

>All I can say is that Armour (with T3) plus progesterone would probably work

>great for you. There are so many myths about Armour, I guess you would just

>have to try it for yourself. The myths seem to be around drugs that can't

>be patented.

>Gracia

>

Maybe I should clarify... I tried armour before it was discovered that

the cause of my hypo was hashimotos... I did not feel well, also have

tried several different forms of natural progesterone, and did not feel

well on it.

I'm not trying to perpetrate a myth, I have tried both and did not do

well. My naturopath told me that armour would not have been appropriate

for me because I have autoimmune thyroiditis. I was wondering if anyone

had read, heard, or been advised of the same. I am aware of the drug

industry's control over our medical system, but the advising physician

was an armour-prescribing naturopath.

I didn't mean to imply that armour isn't appropriate for everyone.

Obviously it helps a lot of people. Unfortunately I don't happen to be

one of them, and logically, my dr's explanation why made sense to me.

Beth

[Guest guest]

That's interesting. I think what you are saying is you can't take

progesterone with T3 alone. If you didn't " need " progesterone, that would

mean that you aren't hypothyroid, have never been exposed to endocrine

disruptors (so wasn't raised in US), and were breast fed as an infant for at

least a year.

Hypothyroidism is most often not a deficiency of one hormone, like T4 or T3,

but several.

Gracia

> >

>

> Dear Beth,

>

> I had the same experience with Armour that you did. I did not do well on

it

> and the longer I took it, the worse I got. Armour is a wonderful medicine

> for those who do well on it, but not for everyone! I also didn't do well

on

> the synthroid/cytomel combo, though I could tell the T3 part was helpful.

> For me, I only started to thrive on the timed release T3 only. I think T3

is

> a wonderful medicine, but again, not for everyone! So, it's tricky on

this

> board to recommend for others; each person's needs are so individual. We

can

> only encourage folks to keep seeking out what works well for them and quit

> trying to fit into one treatment plan for all.

>

> Also, the natural progesterone does not help me. I tried it diligently on

> the theory that it is " technically " not the same as an estrogenic

substance.

> I experienced a continuation of hot flashes, severe vaginal dryness, and

> continued hypothyroid symptoms the longer I was on it. So, again, it has

> helped a lot of women, but not everyone! So, my advice is to find what

works

> for you and stick with it no matter what works for another person.

>

> Just my .02,

> in LA

>

>

>

[Guest guest]

> >

> Safety of Natural Progesterone

Natural progesterone is one of the safest supplements

available. In contrast to synthetic progestins, it has little or not

side effects. Some women may experience an estrogen reaction

reaction upon first introducing natural progesterone to their

system, and in these cases, estrogen-related symptoms may

temporarily become worse. If this occurs, natural progesterone

should be continued or dosages adjusted until hormonal

balance is achieved. Incidental spotting between periods also

may occur but is usually resolved within three to five cycles. The

use of natural progesterone has not been linked to any form of

human cancers.

> Dear Beth,

>

> I had the same experience with Armour that you did. I did not do well on

it

> and the longer I took it, the worse I got. Armour is a wonderful medicine

> for those who do well on it, but not for everyone! I also didn't do well

on

> the synthroid/cytomel combo, though I could tell the T3 part was helpful.

> For me, I only started to thrive on the timed release T3 only. I think T3

is

> a wonderful medicine, but again, not for everyone! So, it's tricky on

this

> board to recommend for others; each person's needs are so individual. We

can

> only encourage folks to keep seeking out what works well for them and quit

> trying to fit into one treatment plan for all.

>

> Also, the natural progesterone does not help me. I tried it diligently on

> the theory that it is " technically " not the same as an estrogenic

substance.

> I experienced a continuation of hot flashes, severe vaginal dryness, and

> continued hypothyroid symptoms the longer I was on it. So, again, it has

> helped a lot of women, but not everyone! So, my advice is to find what

works

> for you and stick with it no matter what works for another person.

>

> Just my .02,

> in LA

>

>

>

[Guest guest]

That is so sad I do hope that some how she has a speedy recovery...

Best wishes,

from a group member

Reach for the sky, because there are no limits there!!

Tragic News: Dr. Beck's Wife

Hi Folks,

Last night I received a telephone call from the brother of Johanna

Beck - Dr. Beck's wife. Bill informed me that Johanna Beck suddenly

collapsed and fell into a coma. The doctors fear the worst. I will

let you know of any news as I receive it.

Russ

________________________________________________________________________

________________________________________________________________________

[Guest guest]

karoyln would be my first pick for mod.the rules are first agenda,if you

break rule you must get a chor or knowledge hunt.and we should have to

post personal e mail addy to show honesty,for numerous reasons.