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Well everybody who has self medicated, get writing immediately to Vicki and tell your story, and the reason why you were forced by the NHS into self diagnosing, self treating and self monitoring. I am off to write mine right now. The more we can get in, the better this will be for we sufferers of thyroid disease.

Luv - Sheila

afternoon all; did anyone else notice the ad in the daily mail yesterday (tues, may 27) on page 56. ITV as a small advert stating:HAS DIY health testing saved your life - or - caused you a problem? ITV documentaries would like to hear your stories contact Vicki.Keoghgranadamedia . i just wondered if this poor vicki was inundated with all our tales of woe if she might think it worth a story ? just a thought... regards jane

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Hi do I just click the link on your post hon?nIt doesn't open my email

client

cheers

Dawn

>

> afternoon all; did anyone else notice the ad in the daily mail

> yesterday (tues, may 27) on page 56. ITV as a small advert stating:

> HAS DIY health testing saved your life - or - caused you a problem?

> ITV documentaries would like to hear your stories contact

> Vicki.Keogh@... . i just wondered if this poor vicki was

> inundated with all our tales of woe if she might think it worth a

> story ? just a thought... regards jane

>

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hi dawn ; the link is Vicki.Keogh@... it may be if

it doesn't go straight into your web browser you could try to copy it

there. good luck ! jane

> >

> > afternoon all; did anyone else notice the ad in the daily mail

> > yesterday (tues, may 27) on page 56. ITV as a small advert

stating:

> > HAS DIY health testing saved your life - or - caused you a

problem?

> > ITV documentaries would like to hear your stories contact

> > Vicki.Keogh@ . i just wondered if this poor vicki was

> > inundated with all our tales of woe if she might think it worth a

> > story ? just a thought... regards jane

> >

>

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Hi Janie

Call me hypohead but after @ I am just getting dots? How will the

server know where to send it? Or is this encoded or something? LOL I

really don't understand this, it comes up like a message to a

group member is that right?

Vicki.Keogh@... ??

luv Dawn

daft as ever lol

>

> afternoon all; did anyone else notice the ad in the daily mail

> yesterday (tues, may 27) on page 56. ITV as a small advert stating:

> HAS DIY health testing saved your life - or - caused you a problem?

> ITV documentaries would like to hear your stories contact

> Vicki.Keogh@... . i just wondered if this poor vicki was

> inundated with all our tales of woe if she might think it worth a

> story ? just a thought... regards jane

>

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Is this the lady??

Vicki Keogh

Final Year Journalism Student

Sheffield University

United Kingdom

Contact this person ??

>

> Well everybody who has self medicated, get writing immediately to

Vicki and tell your story, and the reason why you were forced by the

NHS into self diagnosing, self treating and self monitoring. I am

off to write mine right now. The more we can get in, the better this

will be for we sufferers of thyroid disease.

>

> Luv - Sheila

>

>

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Hi Jane

http://forum.expatica.com/lofiversion/index.php/t55314.html

a comment from a poster:-

[[...What the rather sad folk at Granada TV want is to find people

who've 'failed', because failure is what brings in the viewers. TV

audiences, by their very nature are indolent, inadequate and

unimaginative, so it makes sense for TV companies to pump

out 'lifestyle' programs where those who dare, and fail, can be

ridiculed by couch-potato viewers. It makes them feel good, so they

continue to watch Son of No Going Back, a new New Life in Sun, etc,

etc, and the TV companies continue to get advertising revenue...]]

My own opinion is that many programmes are targetted at

the 'Schadenfreude' market; far too many to be healthy.

It might be worth exercising caution and enquiring what is the precise

purpose of the 'write-in'. Limiting the use to which your own personal

details may be put.

They may, perhaps, be targetting Daily Mail readers for purposes that

you don't understand?

best wishes

Bob

>

> hi dawn ; the link is Vicki.Keogh@... it may be if

> it doesn't go straight into your web browser you could try to copy it

> there. good luck ! jane

>

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hi dawn, let me try and give it to you again, my keyboard has been

giving me some problems lately... old fuzz brain me forgot to replace

the batteries ! Vicki.Keogh@... 3rd time lucky i

hope, jane

> >

> > afternoon all; did anyone else notice the ad in the daily mail

> > yesterday (tues, may 27) on page 56. ITV as a small advert

stating:

> > HAS DIY health testing saved your life - or - caused you a

problem?

> > ITV documentaries would like to hear your stories contact

> > Vicki.Keogh@ . i just wondered if this poor vicki was

> > inundated with all our tales of woe if she might think it worth a

> > story ? just a thought... regards jane

> >

>

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Hi Jane,

Good thought!

Subject: raising awareness

afternoon all; did anyone else notice the ad in the daily mail

yesterday (tues, may 27) on page 56. ITV as a small advert stating:

HAS DIY health testing saved your life - or - caused you a problem?

ITV documentaries would like to hear your stories contact

Vicki.Keogh@... . i just wondered if this poor vicki was

inundated with all our tales of woe if she might think it worth a

story ? just a thought... regards jane

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

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  • 1 year later...
Guest guest

Raising awareness

http://www.sourcenewspapers.com/stories/062109/loc_story1001.shtml

June 21, 2009

Vicki Nicholls was diagnosed with juvenile rheumatoid arthritis when she was

18 months old although she had it since birth.

Nicholls said that growing up, she was unaware of the severity of her

disease - and wasn't even sure that her parents or her doctors understood

the long-lasting and debilitating affects of JRA, an auto-immune disorder

that affects approximately 300,000 children in the United States.

Nicholls, a son High School graduate and Ray Township resident, said

that when she was first diagnosed with Juvenile Rheumatoid Arthritis not

much was known about the disease.

" I had no idea what this disease was going to do to me, " she said.

Nicholls said one of the challenges of fighting Rheumatoid Arthritis as a

child and into early adulthood was the myth that only the elderly get

arthritis.

According to the Arthritis Foundation 66 percent of the more than 40 million

cases of arthritis in the United States are people under the age of 65 years

old.

Nicholls said that growing up she hid her disease because people didn't

believe that a child could have arthritis.

" I really hid my disease for my most of my life, I don't even think I told

the people at work until I had to get my hips replaced because I was just so

embarrassed by it, " she said. " It is tough because there hasn't been the

knowledge out there of this disease. "

Rheumatoid Arthritis currently affects more than 2 million adults in the

United States.

" Basically my body attacks itself, " she said. " My immune system thinks that

my body is foreign cells and it tries to kill them, and it does. That is why

the joints break apart and why they break down. "

As RA advances through both children and adults it creates a variety of

problems.

Nicholls, a certified public account, was forced to go on disability in 2004

because of RA.

" Stress is real big factor with my disease and the more stress you are

under, the body attacks itself, " she said. " Just the everyday grind of going

to work was making my disease worse. "

Nicholls said that she couldn't get through the day-to-day pain caused by RA

without her husband, Mike.

" He has been my rock. "

Rheumatoid Arthritis, as an auto-immune disorder, often leads to secondary

diseases like fibromyalgia, colitis and osteoporosis.

" It wreaks havoc on your whole body, not just your joints, " said Nicholls.

" It affects your muscles and your organs and the longer you have it the

worse it gets. It is a progressive disease. "

Currently there is no cure for RA but there are treatments which can slow

down the progression of RA but not stop it entirely.

Nicholls said that recent changes in Medicare have made it harder for people

with RA to obtain treatment.

" Medication that just a couple years ago I could have gotten for $75 a month

is $435 a month, and that is just one medicine, " she said, adding that there

have also been changes in the way she pays for physical therapy making it

more costly.

Currently the United States Congress is examining the Arthritis Prevention,

Control and Cure Act which would strengthen arthritis public health

initiatives, expand evidence-based self-management activities, ensure that

federal funding for arthritis is used in the most strategic manner and

finally to authorize a remedy to address a growing shortage of pediatric

rheumatologists.

Nicholls has dedicated a great deal of her life over the last couple of

years fighting to raise awareness of arthritis.

" It is really tough because there is not the knowledge out there of this

disease and how many kids it affects, " Nicholls said.

The Arthritis Foundation Michigan Chapter provides services to residents

battling all types of arthritis.

Arthritis Answers is an information and referral service which Michigan

residents with questions about arthritis can reach by calling (800) 968-3030

Mondays through Fridays from 8:30 a.m. until 4 p.m. or by visiting

www.arthritis.org

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