Stomach pain and cytotec

November 17, 2008

Hi, it's been awhile since I've posted, but I have another medicine question.

went to

the ped rheumy on Thursday and yay, he shows no signs of active arthritis. She

feels it is

because of the Clinoril and wants to keep him on it for 18-24 months before she

starts to

taper him off of the Clinoril. However, the Clinoril is causing severe stomach

pain. They

doubled his dose of Prevacid from 15mg once daily to 15mg twice daily in August.

This

seemed to help a little, but never completely took away the stomach pain. He

recently

learned how to swallow pills, so the ped rheumy added Cytotec to try to protect

his stomach.

My question is how long does the Cytotec take to start working. I had to pick

him up early

from school again today because of his stomach. This is the 11th day of school

he has

missed since we started after Labor Day. I just wonder if this is a medicine

that takes awhile

to start working or if we should see results quite promptly. The rheumy said if

this doesn't

work she will send him to see a gastro doc.

Thanks

and (5, pauci)

November 17, 2008

Hi - I have never heard of Clinoril so I looked it up and

noticed that it was an NSAID. I was going to suggested an anti

nausea med because that is what Grant takes but he must not have

nausea? It is only stomach pains?

I think that being sent to a gastro doctor (and I am certainly no

expert) seems silly because you know what is causing the pain and by

stopping the clinoril would stop the pains! I think that the ped

rheumy should be trying to find a different med that will still work

for the arthritis and not cause the stomach pain. may be

free of active arthritis, which is very exciting, but if he is still

missing school because of pain caused by the medication then I would

say that the medication isn't working and another one, that isn't an

NSAID should be tried. Like Methotrexate?

Just my 2 cents worth!

& Grant (11, PsA/Uveitis)

>

> Hi, it's been awhile since I've posted, but I have another

medicine question. went to

> the ped rheumy on Thursday and yay, he shows no signs of active

arthritis. She feels it is

> because of the Clinoril and wants to keep him on it for 18-24

months before she starts to

> taper him off of the Clinoril. However, the Clinoril is causing

severe stomach pain. They

> doubled his dose of Prevacid from 15mg once daily to 15mg twice

daily in August. This

> seemed to help a little, but never completely took away the

stomach pain. He recently

> learned how to swallow pills, so the ped rheumy added Cytotec to

try to protect his stomach.

> My question is how long does the Cytotec take to start working. I

had to pick him up early

> from school again today because of his stomach. This is the 11th

day of school he has

> missed since we started after Labor Day. I just wonder if this is

a medicine that takes awhile

> to start working or if we should see results quite promptly. The

rheumy said if this doesn't

> work she will send him to see a gastro doc.

>

> Thanks

> and (5, pauci)

>

November 17, 2008

This caught my eye. An NSAID can make stomach pain much worse. In fact it was

NSAIDs that caused Hannah's stomach ulcers and she can now no longer take them

ever again. The only way we found this out was by a ped GI. She is now on

Tylenol and will need to take Nexium twice per day for a minimum of 6

more months and then will be on once per day for a very long time.

Beth & Hannah, 12, unspecified arthritis; asthma; gerd; migraines; stomach

ulcers; vit d deficiency

Sending prayers & happy thoughts,

Beth

________________________________

From: toivonen4 <toivonen4@...>

Sent: Monday, November 17, 2008 12:30:37 PM

Subject: Re: Stomach pain and cytotec

Hi - I have never heard of Clinoril so I looked it up and

noticed that it was an NSAID. I was going to suggested an anti

nausea med because that is what Grant takes but he must not have

nausea? It is only stomach pains?

I think that being sent to a gastro doctor (and I am certainly no

expert) seems silly because you know what is causing the pain and by

stopping the clinoril would stop the pains! I think that the ped

rheumy should be trying to find a different med that will still work

for the arthritis and not cause the stomach pain. may be

free of active arthritis, which is very exciting, but if he is still

missing school because of pain caused by the medication then I would

say that the medication isn't working and another one, that isn't an

NSAID should be tried. Like Methotrexate?

Just my 2 cents worth!

& Grant (11, PsA/Uveitis)

>

> Hi, it's been awhile since I've posted, but I have another

medicine question. went to

> the ped rheumy on Thursday and yay, he shows no signs of active

arthritis. She feels it is

> because of the Clinoril and wants to keep him on it for 18-24

months before she starts to

> taper him off of the Clinoril. However, the Clinoril is causing

severe stomach pain. They

> doubled his dose of Prevacid from 15mg once daily to 15mg twice

daily in August. This

> seemed to help a little, but never completely took away the

stomach pain. He recently

> learned how to swallow pills, so the ped rheumy added Cytotec to

try to protect his stomach.

> My question is how long does the Cytotec take to start working. I

had to pick him up early

> from school again today because of his stomach. This is the 11th

day of school he has

> missed since we started after Labor Day. I just wonder if this is

a medicine that takes awhile

> to start working or if we should see results quite promptly. The

rheumy said if this doesn't

> work she will send him to see a gastro doc.

>

> Thanks

> and (5, pauci)

>

November 17, 2008

I agree with switching the meds and seeing the other dr. With the pain

that is severe or basically continuous it might need to be checked by a

ped GI just to rule out the possibility ulcers have formed from the

meds. Ulcers really need to be watched.

had stomach pain from his NSAID, but once we switched meds it

stopped. Just my 2 cents! Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of Beth Yohnk

Sent: Monday, November 17, 2008 12:38 PM

Subject: Re: Re: Stomach pain and cytotec

This caught my eye. An NSAID can make stomach pain much worse. In fact

it was NSAIDs that caused Hannah's stomach ulcers and she can now no

longer take them ever again. The only way we found this out was by a

ped GI. She is now on Tylenol and will need to take Nexium twice per

day for a minimum of 6 more months and then will be on once per day for

a very long time.

Beth & Hannah, 12, unspecified arthritis; asthma; gerd; migraines;

stomach ulcers; vit d deficiency

Sending prayers & happy thoughts,

Beth

________________________________

From: toivonen4 <toivonen4@... <mailto:toivonen4%40> >

<mailto: %40>

Sent: Monday, November 17, 2008 12:30:37 PM

Subject: Re: Stomach pain and cytotec

Hi - I have never heard of Clinoril so I looked it up and

noticed that it was an NSAID. I was going to suggested an anti

nausea med because that is what Grant takes but he must not have

nausea? It is only stomach pains?

I think that being sent to a gastro doctor (and I am certainly no

expert) seems silly because you know what is causing the pain and by

stopping the clinoril would stop the pains! I think that the ped

rheumy should be trying to find a different med that will still work

for the arthritis and not cause the stomach pain. may be

free of active arthritis, which is very exciting, but if he is still

missing school because of pain caused by the medication then I would

say that the medication isn't working and another one, that isn't an

NSAID should be tried. Like Methotrexate?

Just my 2 cents worth!

& Grant (11, PsA/Uveitis)

>

> Hi, it's been awhile since I've posted, but I have another

medicine question. went to

> the ped rheumy on Thursday and yay, he shows no signs of active

arthritis. She feels it is

> because of the Clinoril and wants to keep him on it for 18-24

months before she starts to

> taper him off of the Clinoril. However, the Clinoril is causing

severe stomach pain. They

> doubled his dose of Prevacid from 15mg once daily to 15mg twice

daily in August. This

> seemed to help a little, but never completely took away the

stomach pain. He recently

> learned how to swallow pills, so the ped rheumy added Cytotec to

try to protect his stomach.

> My question is how long does the Cytotec take to start working. I

had to pick him up early

> from school again today because of his stomach. This is the 11th

day of school he has

> missed since we started after Labor Day. I just wonder if this is

a medicine that takes awhile

> to start working or if we should see results quite promptly. The

rheumy said if this doesn't

> work she will send him to see a gastro doc.

>

> Thanks

> and (5, pauci)

>

November 18, 2008

Thanks everyone. His ped rheumy has switched his meds 3 times, but

every time it is just another NSAID. She won't start him on metho or

any other meds since he is being controlled on the Clinoril. The last

2 days the Cytotec seems to actually be making the stomach pain

worse. I was under the impression that it was supposed to increase

the mucous lining in the stomach and help ease the pain. I realize

that the pain is all related to the NSAID, but when the stomach pain

was at it's worst, we stopped the NSAID, Indocin, that he was on and

within 4 days he could barely walk because his knees were so painful.

and (5, pauci)

On Nov 17, 2008, at 1:45 PM, Tepper, Michele wrote:

> I agree with switching the meds and seeing the other dr. With the pain

> that is severe or basically continuous it might need to be checked

> by a

> ped GI just to rule out the possibility ulcers have formed from the

> meds. Ulcers really need to be watched.

>

> had stomach pain from his NSAID, but once we switched meds it

> stopped. Just my 2 cents! Michele ( 21, spondy)

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of Beth Yohnk

> Sent: Monday, November 17, 2008 12:38 PM

>

> Subject: Re: Re: Stomach pain and cytotec

>

> This caught my eye. An NSAID can make stomach pain much worse. In fact

> it was NSAIDs that caused Hannah's stomach ulcers and she can now no

> longer take them ever again. The only way we found this out was by a

> ped GI. She is now on Tylenol and will need to take Nexium twice per

> day for a minimum of 6 more months and then will be on once per day

> for

> a very long time.

>

> Beth & Hannah, 12, unspecified arthritis; asthma; gerd; migraines;

> stomach ulcers; vit d deficiency

>

> Sending prayers & happy thoughts,

> Beth

>

> ________________________________

> From: toivonen4 <toivonen4@... <mailto:toivonen4%40> >

> <mailto: %40>

> Sent: Monday, November 17, 2008 12:30:37 PM

> Subject: Re: Stomach pain and cytotec

>

> Hi - I have never heard of Clinoril so I looked it up and

> noticed that it was an NSAID. I was going to suggested an anti

> nausea med because that is what Grant takes but he must not have

> nausea? It is only stomach pains?

>

> I think that being sent to a gastro doctor (and I am certainly no

> expert) seems silly because you know what is causing the pain and by

> stopping the clinoril would stop the pains! I think that the ped

> rheumy should be trying to find a different med that will still work

> for the arthritis and not cause the stomach pain. may be

> free of active arthritis, which is very exciting, but if he is still

> missing school because of pain caused by the medication then I would

> say that the medication isn't working and another one, that isn't an

> NSAID should be tried. Like Methotrexate?

>

> Just my 2 cents worth!

>

> & Grant (11, PsA/Uveitis)

>

> >

> > Hi, it's been awhile since I've posted, but I have another

> medicine question. went to

> > the ped rheumy on Thursday and yay, he shows no signs of active

> arthritis. She feels it is

> > because of the Clinoril and wants to keep him on it for 18-24

> months before she starts to

> > taper him off of the Clinoril. However, the Clinoril is causing

> severe stomach pain. They

> > doubled his dose of Prevacid from 15mg once daily to 15mg twice

> daily in August. This

> > seemed to help a little, but never completely took away the

> stomach pain. He recently

> > learned how to swallow pills, so the ped rheumy added Cytotec to

> try to protect his stomach.

> > My question is how long does the Cytotec take to start working. I

> had to pick him up early

> > from school again today because of his stomach. This is the 11th

> day of school he has

> > missed since we started after Labor Day. I just wonder if this is

> a medicine that takes awhile

> > to start working or if we should see results quite promptly. The

> rheumy said if this doesn't

> > work she will send him to see a gastro doc.

> >

> > Thanks

> > and (5, pauci)

> >

>

November 18, 2008

I sure hope somebody will chime in here if I am wrong on this. From

all I have learned about JIA, NSAIDS do not stop the progression of

the disease. Nsaids stop pain and inflammation. I do believe there

are some that can control their JRA with just Nsaids but the

majority can not. It sounds like has it pretty bad too when

he can't walk after 4 days of being off the Nsaids. I would call

your ped rheumy and question her more on starting a Dmard like MTX.

Dmards stop the progression of the disease so no joint damage can be

done.

& Grant (11, PsA/Uveitis)

> > >

> > > Hi, it's been awhile since I've posted, but I have another

> > medicine question. went to

> > > the ped rheumy on Thursday and yay, he shows no signs of active

> > arthritis. She feels it is

> > > because of the Clinoril and wants to keep him on it for 18-24

> > months before she starts to

> > > taper him off of the Clinoril. However, the Clinoril is causing

> > severe stomach pain. They

> > > doubled his dose of Prevacid from 15mg once daily to 15mg twice

> > daily in August. This

> > > seemed to help a little, but never completely took away the

> > stomach pain. He recently

> > > learned how to swallow pills, so the ped rheumy added Cytotec

to

> > try to protect his stomach.

> > > My question is how long does the Cytotec take to start

working. I

> > had to pick him up early

> > > from school again today because of his stomach. This is the

11th

> > day of school he has

> > > missed since we started after Labor Day. I just wonder if this

is

> > a medicine that takes awhile

> > > to start working or if we should see results quite promptly.

The

> > rheumy said if this doesn't

> > > work she will send him to see a gastro doc.

> > >

> > > Thanks

> > > and (5, pauci)

> > >

> >

November 18, 2008

I do agree with you . NSAID's do not stop the progression of

arthritis. If he cannot go off of them without pain, he is not really

well controlled, at least according to my son's ped rheumys (he had

two). The goal was to get him off the NSAID's and be only on a DMARD;

mtx ended up working best for him. Chris' rheumy really wanted him off

the Celebrex he was on as he believed the side effects were worse. Of

course, this is how my son's dr felt. I do agree with that talking

with the dr about adding a drug that will attack the disease rather than

just help with the symptoms might be the next course. Plus from what I

have read lately, the newest approach to the disease is for drs to be

more aggressive early on in the diagnosis, adding DMARD's sooner rather

than later as they did in the past.

Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of toivonen4

Sent: Tuesday, November 18, 2008 9:21 AM

Subject: Re: Stomach pain and cytotec

I sure hope somebody will chime in here if I am wrong on this. From

all I have learned about JIA, NSAIDS do not stop the progression of

the disease. Nsaids stop pain and inflammation. I do believe there

are some that can control their JRA with just Nsaids but the

majority can not. It sounds like has it pretty bad too when

he can't walk after 4 days of being off the Nsaids. I would call

your ped rheumy and question her more on starting a Dmard like MTX.

Dmards stop the progression of the disease so no joint damage can be

done.

& Grant (11, PsA/Uveitis)

> > >

> > > Hi, it's been awhile since I've posted, but I have another

> > medicine question. went to

> > > the ped rheumy on Thursday and yay, he shows no signs of active

> > arthritis. She feels it is

> > > because of the Clinoril and wants to keep him on it for 18-24

> > months before she starts to

> > > taper him off of the Clinoril. However, the Clinoril is causing

> > severe stomach pain. They

> > > doubled his dose of Prevacid from 15mg once daily to 15mg twice

> > daily in August. This

> > > seemed to help a little, but never completely took away the

> > stomach pain. He recently

> > > learned how to swallow pills, so the ped rheumy added Cytotec

to

> > try to protect his stomach.

> > > My question is how long does the Cytotec take to start

working. I

> > had to pick him up early

> > > from school again today because of his stomach. This is the

11th

> > day of school he has

> > > missed since we started after Labor Day. I just wonder if this

is

> > a medicine that takes awhile

> > > to start working or if we should see results quite promptly.

The

> > rheumy said if this doesn't

> > > work she will send him to see a gastro doc.

> > >

> > > Thanks

> > > and (5, pauci)

> > >

> >

November 18, 2008

I agree with and .

Val

Rob's Mom (11,systemic)

Re: Stomach pain and cytotec

I sure hope somebody will chime in here if I am wrong on this. From

all I have learned about JIA, NSAIDS do not stop the progression of

the disease. Nsaids stop pain and inflammation. I do believe there

are some that can control their JRA with just Nsaids but the

majority can not. It sounds like has it pretty bad too when

he can't walk after 4 days of being off the Nsaids. I would call

your ped rheumy and question her more on starting a Dmard like MTX.

Dmards stop the progression of the disease so no joint damage can be

done.

& Grant (11, PsA/Uveitis)

> > >

> > > Hi, it's been awhile since I've posted, but I have another

> > medicine question. went to

> > > the ped rheumy on Thursday and yay, he shows no signs of active

> > arthritis. She feels it is

> > > because of the Clinoril and wants to keep him on it for 18-24

> > months before she starts to

> > > taper him off of the Clinoril. However, the Clinoril is causing

> > severe stomach pain. They

> > > doubled his dose of Prevacid from 15mg once daily to 15mg twice

> > daily in August. This

> > > seemed to help a little, but never completely took away the

> > stomach pain. He recently

> > > learned how to swallow pills, so the ped rheumy added Cytotec

to

> > try to protect his stomach.

> > > My question is how long does the Cytotec take to start

working. I

> > had to pick him up early

> > > from school again today because of his stomach. This is the

11th

> > day of school he has

> > > missed since we started after Labor Day. I just wonder if this

is

> > a medicine that takes awhile

> > > to start working or if we should see results quite promptly.

The

> > rheumy said if this doesn't

> > > work she will send him to see a gastro doc.

> > >

> > > Thanks

> > > and (5, pauci)

> > >

> >

November 18, 2008

- just a quick thought after reading this thread, I think your

instinct is right that something is not right with having such

stomach pain, and you are right to question and make sure that you and

the dr are in agreement as to the best thing for . Getting him

pain free is always the goal, as I was told from the very first visit

with my son's ped rheumy. Whether that pain is from the disease, or from

the meds used to treat it, pain is an indicator something is not right.

As always, this list is here to throw ideas out there and offer support

if you need it. Hope some of these thoughts help. Michele ( 21,

spondy)

________________________________

From: [mailto: ] On

Behalf Of Tepper, Michele

Sent: Tuesday, November 18, 2008 10:50 AM

Subject: RE: Re: Stomach pain and cytotec