Welcome Andre - member no. 500 :-)

[Guest guest]

Welcome Andre and contratulations on being Member #500 here at . I

will try to answer some of your questions, but remember, we are all

different - even tho we have CMT! (PS I've been to your country -

absolutely gorgeous scenery and lovely, genuine, friendly people - I was

in summer schools there - Kusnacht and Einsiedln)

OK about CMT:

1) No, CMT does not affect my brain. Matter of fact I feel my brain is

my moost developed and best muscle I've got! However, if I don't get the

sleep I need, my brain does get tired and a little goofy. Learning

meditation has helped me concentrate even more. I am also more alert in

the mornings, so I concentrate better then just because of biorythyms!

2) I am the only one in my family to show up with CMT. However, I knew

there would be a possibility of me transmitting it to offspring, so I

chose not to have children. I do not regret that in the least. My Drs.

think that I too am a 'spontaneous mutation'.

3) I used to smoke marijuana, it helped me relax and took the pain away;

but I got very giggly and got very hungry. I gave this up about 22 years

ago. I learned other methods for pain control, I am still full off

laughter at times, but I do not get hungry for wierd food! My

handwriting has always been better in the morning.

Hope this helps some and again, Welcome to !

~ Gretchen

[Guest guest]

-----Original Message-----

From: Gretchen Glick <liliwigg@...>

< >

Date: Sunday, August 05, 2001 4:59 PM

Subject: [] Welcome Andre - member no. 500 :-)

but I do not get hungry for wierd food!

Gretchen

>>>>>Hum this might explain my craving for sweet pickles and cheese on

crackers when at age 50 I know I'm not pregnant! ROFLOL!

[Guest guest]

hi gretchen!

thanks for your fast answers.

i think your name is swiss german or german too, right? :-)

i dont have pain, except some press-spots in my walkaids. what pains

have you got? i didnt know, that cmt makes pain...

[Guest guest]

-----Original Message-----

From: arohr@... <arohr@...>

< >

Date: Sunday, August 05, 2001 5:25 PM

Subject: [] Re: Welcome Andre - member no. 500 :-)

i dont have pain, except some press-spots in my walkaids. what pains

have you got? i didnt know, that cmt makes pain...

>>>>Andre, yes CMT can cause pain. Read the articles I sent about Neuropathic

Pain. And read the archives, put pain in the search box. Your very lucky you

don't have pain. I have shooting stabbing zapping shocking pains, burning pain,

stinging, feeling as if fire ants are biting me, pricks of pins jabbing me,

with CMT. Then have due to CMT imbalance of muscles, aching, swelling,

inflamation, joint and muscle pain. You mention walking aides, what type?

~>Becky M.