Guest guest Posted October 10, 2010 Report Share Posted October 10, 2010 We've had this ongoing thing for the last year where Lucy complains of pain and I take her to the rheumy and she can't feel any inflammation. We even did an MRI of her jaw and there was no inflammation. So last time we were there the rheumy offered to switch Lucy from Enbrel to Humira to see if it would help with the pain more, or, go off the Enbrel and see if she flared. It's been two months since she's been off Enbrel and now that the weather is changing she is complaining that her wrists hurt. They seem kind of stiff in the morning, but they are not swollen. My question is: do I call the rheumy now, or wait to see if they get swollen or more stiff? I hate, hate, hate going to the rheumy and having her tell us there's nothing wrong! Amy and Lucy, 8, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2010 Report Share Posted October 10, 2010 I would call and really it's better for them to just think your nuts. lol That's my thought anyway! ha ha Honestly it's better to go and not need to. amy - avery 17 systemic ________________________________ From: Amy Hendrickson <ahendrickson68@...> Sent: Sun, October 10, 2010 8:09:27 PM Subject: rheumy visit? We've had this ongoing thing for the last year where Lucy complains of pain and I take her to the rheumy and she can't feel any inflammation. We even did an MRI of her jaw and there was no inflammation. So last time we were there the rheumy offered to switch Lucy from Enbrel to Humira to see if it would help with the pain more, or, go off the Enbrel and see if she flared. It's been two months since she's been off Enbrel and now that the weather is changing she is complaining that her wrists hurt. They seem kind of stiff in the morning, but they are not swollen. My question is: do I call the rheumy now, or wait to see if they get swollen or more stiff? I hate, hate, hate going to the rheumy and having her tell us there's nothing wrong! Amy and Lucy, 8, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 That's a tricky one. We just had xrays of 's right ankle because in the months before we started kineret she could barely walk on it at times - especially after playing soccer. She was in so much pain, but the xrays didn't show anything. I can't remember if the ankle was swollen upon exam; I think it was. Since started kineret two weeks ago she hasn't had ankle pain at all, or just barely but only after a hard soccer match. As far as wrists are concerned, we also got them xrayed and there was some slight damage there but nothing serious. And since hadn't complained of wrist pain in quite a while I was surpised that the xrays showed anything. So, why not call? Just to keep them in the loop at least. nn (, 9, systemic) p.s. I seem to remember you are from Colorado?! Are you taking Lucy to the Denver family event " Arthritis Isn't Scary " - we'll be there; would be great to have Lucy and meet! > > We've had this ongoing thing for the last year where Lucy complains of pain > and I take her to the rheumy and she can't feel any inflammation. We even > did an MRI of her jaw and there was no inflammation. So last time we were > there the rheumy offered to switch Lucy from Enbrel to Humira to see if it > would help with the pain more, or, go off the Enbrel and see if she flared. > It's been two months since she's been off Enbrel and now that the weather is > changing she is complaining that her wrists hurt. They seem kind of stiff > in the morning, but they are not swollen. My question is: do I call the > rheumy now, or wait to see if they get swollen or more stiff? I hate, hate, > hate going to the rheumy and having her tell us there's nothing wrong! > > Amy and Lucy, 8, poly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 nn - I talked to the nurse yesterday and they want to see her to see what's going on. So we'll see on Thursday. Yes, we're in Colorado. When is the event? I haven't paid much attention to my Arthritis Foundation mail. I broke my leg at work and have had trouble doing EVERYTHING! It would be fun to have and Lucy meet. Do you think will go to JRA Camp next summer? Lucy loved it and made good friends, including Lexi from this group. Amy and Lucy, 8, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 I hope it's nothing and if it is something that they find it. Amy - avery systemic ________________________________ From: Amy Hendrickson <ahendrickson68@...> Sent: Tue, October 12, 2010 7:45:01 AM Subject: Re: rheumy visit? nn - I talked to the nurse yesterday and they want to see her to see what's going on. So we'll see on Thursday. Yes, we're in Colorado. When is the event? I haven't paid much attention to my Arthritis Foundation mail. I broke my leg at work and have had trouble doing EVERYTHING! It would be fun to have and Lucy meet. Do you think will go to JRA Camp next summer? Lucy loved it and made good friends, including Lexi from this group. Amy and Lucy, 8, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Hi Amy, Sorry about your leg!! The " Arthritis Isn't Scary " event is Sunday, October 24th, 1-3pm, at the foundation office in Denver. I guess the kids can come in costume and do trick or treating, and they'll be some games and crafts. I hope will be up for camp next summer. We were too new to this for this past summer, and she was still flaring pretty badly, but hopefully if the kineret keeps working, or something else .... would love for them to meet. We are in Fort . nn (, 9, systemic) > > nn - I talked to the nurse yesterday and they want to see her to see > what's going on. So we'll see on Thursday. > > Yes, we're in Colorado. When is the event? I haven't paid much attention > to my Arthritis Foundation mail. I broke my leg at work and have had > trouble doing EVERYTHING! > > It would be fun to have and Lucy meet. Do you think will go to > JRA Camp next summer? Lucy loved it and made good friends, including Lexi > from this group. > > Amy and Lucy, 8, poly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 p.s. Glad you were able to get her in so quickly. nn > > nn - I talked to the nurse yesterday and they want to see her to see > what's going on. So we'll see on Thursday. > > Yes, we're in Colorado. When is the event? I haven't paid much attention > to my Arthritis Foundation mail. I broke my leg at work and have had > trouble doing EVERYTHING! > > It would be fun to have and Lucy meet. Do you think will go to > JRA Camp next summer? Lucy loved it and made good friends, including Lexi > from this group. > > Amy and Lucy, 8, poly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Thanks for the good thoughts, everyone. I'll let you know what happens. nn - hopefully will be doing well enough to go next summer. Lucy loved it. I don't think we'll make the arthritis day this time. I'm supposed to be off crutches in about 10 days and then my house/laundry etc. need my attention after 6 weeks on crutches! On Tue, Oct 12, 2010 at 2:16 PM, nn <rosannwinn@...> wrote: > > > Hi Amy, Sorry about your leg!! The " Arthritis Isn't Scary " event is Sunday, > October 24th, 1-3pm, at the foundation office in Denver. I guess the kids > can come in costume and do trick or treating, and they'll be some games and > crafts. I hope will be up for camp next summer. We were too new to > this for this past summer, and she was still flaring pretty badly, but > hopefully if the kineret keeps working, or something else .... would love > for them to meet. We are in Fort . > nn (, 9, systemic) > > > > > > > nn - I talked to the nurse yesterday and they want to see her to > see > > what's going on. So we'll see on Thursday. > > > > Yes, we're in Colorado. When is the event? I haven't paid much attention > > to my Arthritis Foundation mail. I broke my leg at work and have had > > trouble doing EVERYTHING! > > > > It would be fun to have and Lucy meet. Do you think will go > to > > JRA Camp next summer? Lucy loved it and made good friends, including Lexi > > from this group. > > > > Amy and Lucy, 8, poly > > > > > > Quote Link to comment Share on other sites More sharing options...
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