Re: Positive Veruse Negative & Reality

[Guest guest]

Tongue in cheek, I'd say the post that started this whole debate....

-----Original Message-----

From: Maxwell [mailto:rmax@...]

Sent: Tuesday, August 07, 2001 3:20 PM

Subject: [] Positive Veruse Negative & Reality

Question, what defines a negative post?

When a person is having pain or finds they cannot do a certain thing that 2

months ago they could do etc. and they come here and state that and ask a

questiion of others, those responding who have been there done that, respond

to help that person. To let them know they know how they feel, which helps

that person, is this negative?

If a person writes about the use of a wheelchair or scooter, is that

negative? Or reality, it happens to some, so its reality.

If a person writes that his Dr. said he/she or their child will be in a

wheelchair and another writes thats not so won't ever happen, and others

respond never say never, is that negative or reality?

Staying in a positive frame of mind is great. Not aways possible.

Mind over matter is great. However reality sets in sometimes and no matter

how positive a person is mind over matter staying positive doesn't make a

person walk if there is a disease or condition that is going to prevent them

from walking. CMT is a disease of the body, not our minds, altho a good

frame of mind, staying positive helps, it does not cure CMT . Staying as

active as one can, staying as positive as one can does help.

I have noticed that some (only a few) of the milder cases of CMT just

don't get it when it comes to the more severe cases of CMT. They think that

if they (more severe) post of their CMT and post responses of their problems

with CMT its deemed negative or stressful or distressing. Why? Its what

we deal with, its reality. So why is it negative? Stressful/distressing to

some, yes, but its reality.

Now for my being positive, heres a tidbit, my Dr. said he was surprised

that I am still walking with my braces, he thought I would be in a wheel

chair by now, he asked how did I do it? My answer, shere determination to

not let CMT put me down. As I stated in another post, walk a mile in my

braces, deal with what I do 24/7, then call me negative, stressful

distressful, LOL, or walk a mile in anothers shoes and then pass judgement,

until you've been there done that, you may find that that person is very

upbeat very positve under the conditions that they have to deal with

So what defines a negative post? ~>Becky M.

[Guest guest]

Okay, so kill me...couldn't help it. :-)

-----Original Message-----

From: Insabella, [mailto:_Insabella@...]

Sent: Tuesday, August 07, 2001 3:26 PM

' '

Subject: RE: [] Positive Veruse Negative & Reality

Tongue in cheek, I'd say the post that started this whole debate....

-----Original Message-----

From: Maxwell [mailto:rmax@...]

Sent: Tuesday, August 07, 2001 3:20 PM

Subject: [] Positive Veruse Negative & Reality

Question, what defines a negative post?

When a person is having pain or finds they cannot do a certain thing that 2

months ago they could do etc. and they come here and state that and ask a

questiion of others, those responding who have been there done that, respond

to help that person. To let them know they know how they feel, which helps

that person, is this negative?

If a person writes about the use of a wheelchair or scooter, is that

negative? Or reality, it happens to some, so its reality.

If a person writes that his Dr. said he/she or their child will be in a

wheelchair and another writes thats not so won't ever happen, and others

respond never say never, is that negative or reality?

Staying in a positive frame of mind is great. Not aways possible.

Mind over matter is great. However reality sets in sometimes and no matter

how positive a person is mind over matter staying positive doesn't make a

person walk if there is a disease or condition that is going to prevent them

from walking. CMT is a disease of the body, not our minds, altho a good

frame of mind, staying positive helps, it does not cure CMT . Staying as

active as one can, staying as positive as one can does help.

I have noticed that some (only a few) of the milder cases of CMT just

don't get it when it comes to the more severe cases of CMT. They think that

if they (more severe) post of their CMT and post responses of their problems

with CMT its deemed negative or stressful or distressing. Why? Its what

we deal with, its reality. So why is it negative? Stressful/distressing to

some, yes, but its reality.

Now for my being positive, heres a tidbit, my Dr. said he was surprised

that I am still walking with my braces, he thought I would be in a wheel

chair by now, he asked how did I do it? My answer, shere determination to

not let CMT put me down. As I stated in another post, walk a mile in my

braces, deal with what I do 24/7, then call me negative, stressful

distressful, LOL, or walk a mile in anothers shoes and then pass judgement,

until you've been there done that, you may find that that person is very

upbeat very positve under the conditions that they have to deal with

So what defines a negative post? ~>Becky M.

[Guest guest]

Becky and all

Lamar here,

Just want to say that I fully agree with what you have said. Mild or

" severe " , to know we are not alone in the world is a BIG part. Methods that

work for others may also help us. I had a poster in my office at work.

" Yesterday is history, Tomorrow is mystery, TODAY is all that is

certain---Make the best of it!! " MY telephone answering machine does not

say " Have a nice day " it says " CREATE a good day " . We can not make all

problems disappear, but we can ALWAYS do something to improve things.

After all, every human starts dying the day they are born. Each day is one

less remaining. We all know this but we do not dwell on it. The wise

person is aware death will come. They make preparations in some ways to

prepare both themselves and their family. Personal faith, savings, wills,

insurance, even selecting a burial plot is often a part of preparation. It

is not depressing, there is comfort in knowing that when the day comes you

have eased the burden on others.

Many do not look at all possibilities. For instance many make wills, but

few wills include what is to happen to the children IF something happened to

both mother and father at once. It's too frightening to even think of and

they push it aside. Yet, every day, children are left without parents due

to unexpected accidents.

Not all of us will eventually require wheelchairs. Some will. Yet, amongst

those without CMT some may eventually need a wheelchair. I often wonder

when I see young adults (without CMT) buying their dream home. Many choose

plans with all bedrooms upstairs. Yet, if they look they will see that most

people as they age have trouble with steps. To be aware of the possibility

can often make life easier down the road.

I will use an illustration I used in my HIV classes about condoms. It can

be applied to many things in life. Answer the following questions:

1. Do you drive or ride in a car?

2. Do you plan on having a flat tire?

3. Do you have a spare tire and a jack or a means of getting assistance?

Being prepared for the worst is not being pessimistic. Preparing to cope

should it happen is being optimistic. I loved to climb mountains. I can no

longer climb regular mountains, yet CMT has given me another mountain to

climb. The peak is out there. Sometimes I loose sight of it. At other

times I get a glimpse of it. But I KNOW it is there and I will keep

stumbling along until I get there. I may fall a few times and I will take

the wrong pathway at times, but it won't stop me.

I will share something that has helped pull me through many depressed days.

It is a song by Bolton (yes some men like him too) on the album Soul

Provider-- " When I'm Back on My Feet Again. " That song combined with R.

's " I Believe I Can Fly " . have picked me up many times. If you are

not familiar with them I recommend them. (And that's from a country music

fan!!!)

" Do you consider it a tragedy that rose bushes have thorns, or a miracle

that thorn bushes have roses? "

" Do you consider it a tragedy that life has CMT or a miracle that CMT has

life? "

Now I will get off my soapbox. Just remember that we make our own negatives

and positives. It is not the cards that are dealt but the way they are

played that determines the winner.

----- Original Message -----

From: Maxwell

Sent: Tuesday, August 07, 2001 03:19 PM

Subject: [] Positive Veruse Negative & Reality

Question, what defines a negative post?

When a person is having pain or finds they cannot do a certain thing that

2 months ago they could do etc. and they come here and state that and ask a

questiion of others, those responding who have been there done that, respond

to help that person. To let them know they know how they feel, which helps

that person, is this negative?

If a person writes about the use of a wheelchair or scooter, is that

negative? Or reality, it happens to some, so its reality.

If a person writes that his Dr. said he/she or their child will be in a

wheelchair and another writes thats not so won't ever happen, and others

respond never say never, is that negative or reality?

Staying in a positive frame of mind is great. Not aways possible.

Mind over matter is great. However reality sets in sometimes and no matter

how positive a person is mind over matter staying positive doesn't make a

person walk if there is a disease or condition that is going to prevent them

from walking. CMT is a disease of the body, not our minds, altho a good

frame of mind, staying positive helps, it does not cure CMT . Staying as

active as one can, staying as positive as one can does help.

I have noticed that some (only a few) of the milder cases of CMT just

don't get it when it comes to the more severe cases of CMT. They think that

if they (more severe) post of their CMT and post responses of their problems

with CMT its deemed negative or stressful or distressing. Why? Its what

we deal with, its reality. So why is it negative? Stressful/distressing to

some, yes, but its reality.

Now for my being positive, heres a tidbit, my Dr. said he was

surprised that I am still walking with my braces, he thought I would be in a

wheel chair by now, he asked how did I do it? My answer, shere

determination to not let CMT put me down. As I stated in another post, walk

a mile in my braces, deal with what I do 24/7, then call me negative,

stressful distressful, LOL, or walk a mile in anothers shoes and then pass

judgement, until you've been there done that, you may find that that person

is very upbeat very positve under the conditions that they have to deal with

So what defines a negative post? ~>Becky M.

[Guest guest]

-----Original Message-----

From: Lamar son <lls@...>

< >

Date: Tuesday, August 07, 2001 3:21 PM

Subject: Re: [] Positive Veruse Negative & Reality

>>>>> Bolton!!!!!!! Ah yes theres a positive thought, positivly

DeLightFul! LOL, Thanks, Lamar, ~>Becky M.

Becky and all

Lamar here,

Just want to say that I fully agree with what you have said. Mild or

" severe " , to know we are not alone in the world is a BIG part. Methods that

work for others may also help us. I had a poster in my office at work.

" Yesterday is history, Tomorrow is mystery, TODAY is all that is

certain---Make the best of it!! " MY telephone answering machine does not

say " Have a nice day " it says " CREATE a good day " . We can not make all

problems disappear, but we can ALWAYS do something to improve things.

After all, every human starts dying the day they are born. Each day is one

less remaining. We all know this but we do not dwell on it. The wise

person is aware death will come. They make preparations in some ways to

prepare both themselves and their family. Personal faith, savings, wills,

insurance, even selecting a burial plot is often a part of preparation. It

is not depressing, there is comfort in knowing that when the day comes you

have eased the burden on others.

Many do not look at all possibilities. For instance many make wills, but

few wills include what is to happen to the children IF something happened to

both mother and father at once. It's too frightening to even think of and

they push it aside. Yet, every day, children are left without parents due

to unexpected accidents.

Not all of us will eventually require wheelchairs. Some will. Yet, amongst

those without CMT some may eventually need a wheelchair. I often wonder

when I see young adults (without CMT) buying their dream home. Many choose

plans with all bedrooms upstairs. Yet, if they look they will see that most

people as they age have trouble with steps. To be aware of the possibility

can often make life easier down the road.

I will use an illustration I used in my HIV classes about condoms. It can

be applied to many things in life. Answer the following questions:

1. Do you drive or ride in a car?

2. Do you plan on having a flat tire?

3. Do you have a spare tire and a jack or a means of getting assistance?

Being prepared for the worst is not being pessimistic. Preparing to cope

should it happen is being optimistic. I loved to climb mountains. I can no

longer climb regular mountains, yet CMT has given me another mountain to

climb. The peak is out there. Sometimes I loose sight of it. At other

times I get a glimpse of it. But I KNOW it is there and I will keep

stumbling along until I get there. I may fall a few times and I will take

the wrong pathway at times, but it won't stop me.

I will share something that has helped pull me through many depressed days.

It is a song by Bolton (yes some men like him too) on the album Soul

Provider-- " When I'm Back on My Feet Again. " That song combined with R.

's " I Believe I Can Fly " . have picked me up many times. If you are

not familiar with them I recommend them. (And that's from a country music

fan!!!)

" Do you consider it a tragedy that rose bushes have thorns, or a miracle

that thorn bushes have roses? "

" Do you consider it a tragedy that life has CMT or a miracle that CMT has

life? "

Now I will get off my soapbox. Just remember that we make our own negatives

and positives. It is not the cards that are dealt but the way they are

played that determines the winner.

----- Original Message -----

From: Maxwell

Sent: Tuesday, August 07, 2001 03:19 PM

Subject: [] Positive Veruse Negative & Reality

Question, what defines a negative post?

When a person is having pain or finds they cannot do a certain thing that

2 months ago they could do etc. and they come here and state that and ask a

questiion of others, those responding who have been there done that, respond

to help that person. To let them know they know how they feel, which helps

that person, is this negative?

If a person writes about the use of a wheelchair or scooter, is that

negative? Or reality, it happens to some, so its reality.

If a person writes that his Dr. said he/she or their child will be in a

wheelchair and another writes thats not so won't ever happen, and others

respond never say never, is that negative or reality?

Staying in a positive frame of mind is great. Not aways possible.

Mind over matter is great. However reality sets in sometimes and no matter

how positive a person is mind over matter staying positive doesn't make a

person walk if there is a disease or condition that is going to prevent them

from walking. CMT is a disease of the body, not our minds, altho a good

frame of mind, staying positive helps, it does not cure CMT . Staying as

active as one can, staying as positive as one can does help.

I have noticed that some (only a few) of the milder cases of CMT just

don't get it when it comes to the more severe cases of CMT. They think that

if they (more severe) post of their CMT and post responses of their problems

with CMT its deemed negative or stressful or distressing. Why? Its what

we deal with, its reality. So why is it negative? Stressful/distressing to

some, yes, but its reality.

Now for my being positive, heres a tidbit, my Dr. said he was

surprised that I am still walking with my braces, he thought I would be in a

wheel chair by now, he asked how did I do it? My answer, shere

determination to not let CMT put me down. As I stated in another post, walk

a mile in my braces, deal with what I do 24/7, then call me negative,

stressful distressful, LOL, or walk a mile in anothers shoes and then pass

judgement, until you've been there done that, you may find that that person

is very upbeat very positve under the conditions that they have to deal with

So what defines a negative post? ~>Becky M.

[Guest guest]

Lamar

You're a very wise man - thank you.

Love

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

----- Original Message -----

From: Lamar son

Sent: Tuesday, August 07, 2001 9:27 PM

Subject: Re: [] Positive Veruse Negative & Reality

Becky and all

Lamar here,

Just want to say that I fully agree with what you have said. Mild or

" severe " , to know we are not alone in the world is a BIG part. Methods that

work for others may also help us. I had a poster in my office at work.

" Yesterday is history, Tomorrow is mystery, TODAY is all that is

certain---Make the best of it!! " MY telephone answering machine does not

say " Have a nice day " it says " CREATE a good day " . We can not make all

problems disappear, but we can ALWAYS do something to improve things.

After all, every human starts dying the day they are born. Each day is one

less remaining. We all know this but we do not dwell on it. The wise

person is aware death will come. They make preparations in some ways to

prepare both themselves and their family. Personal faith, savings, wills,

insurance, even selecting a burial plot is often a part of preparation. It

is not depressing, there is comfort in knowing that when the day comes you

have eased the burden on others.

Many do not look at all possibilities. For instance many make wills, but

few wills include what is to happen to the children IF something happened to

both mother and father at once. It's too frightening to even think of and

they push it aside. Yet, every day, children are left without parents due

to unexpected accidents.

Not all of us will eventually require wheelchairs. Some will. Yet, amongst

those without CMT some may eventually need a wheelchair. I often wonder

when I see young adults (without CMT) buying their dream home. Many choose

plans with all bedrooms upstairs. Yet, if they look they will see that most

people as they age have trouble with steps. To be aware of the possibility

can often make life easier down the road.

I will use an illustration I used in my HIV classes about condoms. It can

be applied to many things in life. Answer the following questions:

1. Do you drive or ride in a car?

2. Do you plan on having a flat tire?

3. Do you have a spare tire and a jack or a means of getting assistance?

Being prepared for the worst is not being pessimistic. Preparing to cope

should it happen is being optimistic. I loved to climb mountains. I can no

longer climb regular mountains, yet CMT has given me another mountain to

climb. The peak is out there. Sometimes I loose sight of it. At other

times I get a glimpse of it. But I KNOW it is there and I will keep

stumbling along until I get there. I may fall a few times and I will take

the wrong pathway at times, but it won't stop me.

I will share something that has helped pull me through many depressed days.

It is a song by Bolton (yes some men like him too) on the album Soul

Provider-- " When I'm Back on My Feet Again. " That song combined with R.

's " I Believe I Can Fly " . have picked me up many times. If you are

not familiar with them I recommend them. (And that's from a country music

fan!!!)

" Do you consider it a tragedy that rose bushes have thorns, or a miracle

that thorn bushes have roses? "

" Do you consider it a tragedy that life has CMT or a miracle that CMT has

life? "

Now I will get off my soapbox. Just remember that we make our own negatives

and positives. It is not the cards that are dealt but the way they are

played that determines the winner.

----- Original Message -----

From: Maxwell

Sent: Tuesday, August 07, 2001 03:19 PM

Subject: [] Positive Veruse Negative & Reality

Question, what defines a negative post?

When a person is having pain or finds they cannot do a certain thing that

2 months ago they could do etc. and they come here and state that and ask a

questiion of others, those responding who have been there done that, respond

to help that person. To let them know they know how they feel, which helps

that person, is this negative?

If a person writes about the use of a wheelchair or scooter, is that

negative? Or reality, it happens to some, so its reality.

If a person writes that his Dr. said he/she or their child will be in a

wheelchair and another writes thats not so won't ever happen, and others

respond never say never, is that negative or reality?

Staying in a positive frame of mind is great. Not aways possible.

Mind over matter is great. However reality sets in sometimes and no matter

how positive a person is mind over matter staying positive doesn't make a

person walk if there is a disease or condition that is going to prevent them

from walking. CMT is a disease of the body, not our minds, altho a good

frame of mind, staying positive helps, it does not cure CMT . Staying as

active as one can, staying as positive as one can does help.

I have noticed that some (only a few) of the milder cases of CMT just

don't get it when it comes to the more severe cases of CMT. They think that

if they (more severe) post of their CMT and post responses of their problems

with CMT its deemed negative or stressful or distressing. Why? Its what

we deal with, its reality. So why is it negative? Stressful/distressing to

some, yes, but its reality.

Now for my being positive, heres a tidbit, my Dr. said he was

surprised that I am still walking with my braces, he thought I would be in a

wheel chair by now, he asked how did I do it? My answer, shere

determination to not let CMT put me down. As I stated in another post, walk

a mile in my braces, deal with what I do 24/7, then call me negative,

stressful distressful, LOL, or walk a mile in anothers shoes and then pass

judgement, until you've been there done that, you may find that that person

is very upbeat very positve under the conditions that they have to deal with

So what defines a negative post? ~>Becky M.

[Guest guest]

Amen Lamar! I remember when I first learned I had CMT, I was absolutely

terrified. The neurologist scared me to death. I will never forget his

presentation of CMT. I then found this group and everyone was so kind and

answered my questions. I did not necessarily agree with some of the answers

or advise, but I took it all in.

I can see how some postings might be depressing to some. Perhaps they deal

with CMT in a different manner from others. I choose to be a realist, and

prefer to gather all of the information I can. To each his own.

----- Original Message -----

From: " Lamar son " <lls@...>

< >

Sent: Tuesday, August 07, 2001 1:27 PM

Subject: Re: [] Positive Veruse Negative & Reality

> Becky and all

> Lamar here,

>

> Just want to say that I fully agree with what you have said. Mild or

> " severe " , to know we are not alone in the world is a BIG part. Methods

that

> work for others may also help us. I had a poster in my office at work.

> " Yesterday is history, Tomorrow is mystery, TODAY is all that is

> certain---Make the best of it!! " MY telephone answering machine does not

> say " Have a nice day " it says " CREATE a good day " . We can not make all

> problems disappear, but we can ALWAYS do something to improve things.

>

> After all, every human starts dying the day they are born. Each day is

one

> less remaining. We all know this but we do not dwell on it. The wise

> person is aware death will come. They make preparations in some ways to

> prepare both themselves and their family. Personal faith, savings,

wills,

> insurance, even selecting a burial plot is often a part of preparation.

It

> is not depressing, there is comfort in knowing that when the day comes you

> have eased the burden on others.

>

> Many do not look at all possibilities. For instance many make wills, but

> few wills include what is to happen to the children IF something happened

to

> both mother and father at once. It's too frightening to even think of and

> they push it aside. Yet, every day, children are left without parents due

> to unexpected accidents.

>

> Not all of us will eventually require wheelchairs. Some will. Yet,

amongst

> those without CMT some may eventually need a wheelchair. I often wonder

> when I see young adults (without CMT) buying their dream home. Many

choose

> plans with all bedrooms upstairs. Yet, if they look they will see that

most

> people as they age have trouble with steps. To be aware of the

possibility

> can often make life easier down the road.

>

> I will use an illustration I used in my HIV classes about condoms. It can

> be applied to many things in life. Answer the following questions:

> 1. Do you drive or ride in a car?

> 2. Do you plan on having a flat tire?

> 3. Do you have a spare tire and a jack or a means of getting assistance?

>

> Being prepared for the worst is not being pessimistic. Preparing to cope

> should it happen is being optimistic. I loved to climb mountains. I can

no

> longer climb regular mountains, yet CMT has given me another mountain to

> climb. The peak is out there. Sometimes I loose sight of it. At other

> times I get a glimpse of it. But I KNOW it is there and I will keep

> stumbling along until I get there. I may fall a few times and I will take

> the wrong pathway at times, but it won't stop me.

>

> I will share something that has helped pull me through many depressed

days.

> It is a song by Bolton (yes some men like him too) on the album

Soul

> Provider-- " When I'm Back on My Feet Again. " That song combined with R.

> 's " I Believe I Can Fly " . have picked me up many times. If you are

> not familiar with them I recommend them. (And that's from a country music

> fan!!!)

>

> " Do you consider it a tragedy that rose bushes have thorns, or a miracle

> that thorn bushes have roses? "

> " Do you consider it a tragedy that life has CMT or a miracle that CMT has

> life? "

>

> Now I will get off my soapbox. Just remember that we make our own

negatives

> and positives. It is not the cards that are dealt but the way they are

> played that determines the winner.

> ----- Original Message -----

> From: Maxwell

>

> Sent: Tuesday, August 07, 2001 03:19 PM

> Subject: [] Positive Veruse Negative & Reality

>

>

> Question, what defines a negative post?

>

> When a person is having pain or finds they cannot do a certain thing

that

> 2 months ago they could do etc. and they come here and state that and ask

a

> questiion of others, those responding who have been there done that,

respond

> to help that person. To let them know they know how they feel, which

helps

> that person, is this negative?

> If a person writes about the use of a wheelchair or scooter, is that

> negative? Or reality, it happens to some, so its reality.

> If a person writes that his Dr. said he/she or their child will be in

a

> wheelchair and another writes thats not so won't ever happen, and others

> respond never say never, is that negative or reality?

>

> Staying in a positive frame of mind is great. Not aways possible.

> Mind over matter is great. However reality sets in sometimes and no

matter

> how positive a person is mind over matter staying positive doesn't make a

> person walk if there is a disease or condition that is going to prevent

them

> from walking. CMT is a disease of the body, not our minds, altho a good

> frame of mind, staying positive helps, it does not cure CMT . Staying as

> active as one can, staying as positive as one can does help.

> I have noticed that some (only a few) of the milder cases of CMT just

> don't get it when it comes to the more severe cases of CMT. They think

that

> if they (more severe) post of their CMT and post responses of their

problems

> with CMT its deemed negative or stressful or distressing. Why? Its what

> we deal with, its reality. So why is it negative? Stressful/distressing

to

> some, yes, but its reality.

> Now for my being positive, heres a tidbit, my Dr. said he was

> surprised that I am still walking with my braces, he thought I would be in

a

> wheel chair by now, he asked how did I do it? My answer, shere

> determination to not let CMT put me down. As I stated in another post,

walk

> a mile in my braces, deal with what I do 24/7, then call me negative,

> stressful distressful, LOL, or walk a mile in anothers shoes and then pass

> judgement, until you've been there done that, you may find that that

person

> is very upbeat very positve under the conditions that they have to deal

with

> So what defines a negative post? ~>Becky M.

>

>

>