Re: Welcome Brady!

[Guest guest]

Hi Gretchen,

Thank you for the encouraging words. But please

explain more on the fins for swimming. I know this is

going to be short - we are getting ready to go to

church Anyway, is it normal after being diagnosed

for my symptoms to compound like they have - or is

this just in my head - or is this because of the

stress of being diagnosed. I find myself constantly

working my fingers and now they feel stiff along with

a slight little bit of numbness in my forearm and I

think there is a little in my right leg. What I have

been told is that when you are stressed the CMT flairs

up - so you are not to be stressed (easier said than

done). I keep telling myself " hey I have had this all

my life and the only different is that I have a name

for it. I was also told that my hands will probably

heal (with time) and the numbness should go away - I

have found that if I stay cool the numbness subsides

alot - until I start thinking about it again...that is

my main problem BUT hopefully that will pass to. I

know it is a part of my life and God made me this way

(But at that I also think of 29:11). I just

need to relax and realize that my life may or may not

change too much. Or is this wrong to think this way

and should I prepare myself for the worse...sorry to

ramble on - it's kinda how my mind is working right

now. Your thoughts would be appreciated.

Brady

--- Gretchen Glick <liliwigg@...> wrote:

> Welcome Brady!

>

> Finally you're here! And I appreciated your

> introduction. Getting your

> CMT news indeed was a shock...I DO encourage you to

> get on with your

> life, you may have to adjust to a few things now and

> then, maybe not.

> Since I have had CMT since childhood I just let life

> sort of happen and

> work around or with my CMT, although I didn't fully

> accept it until I

> was 27. I encourage you to find comfort in your

> faith and if I may

> suggest, pray for acceptance of CMT. Your wife and

> sister and pastor and

> the 515 of us are all here for you!

>

> Yes swim! Are you wearing fins? May I suggest some

> Zoomers? They are a

> shorter fin, work the foot/ankle/leg even better but

> with less stress. I

> use em, haven't been swimming since snorkeling last

> April. A coral

> infection is still healing and I have to wait -

>

> Brady, EVERYONE, OK almost everyone, is scared of

> the 'unknown' just ask

> your Pastor that!!! And there's an answer to that

> too!

>

> So, go to your job, mow the yard, hold the wife's

> hand - live! I had

> more awful CMT symptoms when I was a teen than I do

> now.

>

> Brady, have you had the DNA test for CMT?

>

> Again welcome, Finally!

> ~ Gretchen

>

__________________________________________________

[Guest guest]

-----Original Message-----

From: Brady Lamp <Bradylamp@...>

< >

Date: Sunday, August 19, 2001 7:50 AM

Subject: Re: [] Welcome Brady!

I was also told that my hands will probably

heal (with time) and the numbness should go away -

Brady

.

>>Hi Brady, who told you this about your hands? Did you have surgery on them

and they think your problems will go away after the healing time from that?

~>Becky M>