Re: Re: Question for Paolo

August 6, 2001

Paolo's reply to Becky.

Hi Paolo,, I have these shocks in my hands and forearms. Its due to nerve

damage. Theres nothing to remove that is causing them. I have had them down

my legs, its not just the feet. And I'm not the only person on this list

to have them in other areas than the feet. And we all have different types

of CMT, so its not a " type " thing. And carpol tunnel has been ruled out, its

CMT all the way. <<<<<<<<<<<

THEY MIGHT BE DUE TO THE INVOLVEMENT OF THE CENTRAL NERVOUS SYSTEM. IT MAY

HAPPEN IN CMT2 (CMT PLUS). I'D NEED TO VISIT YOU TO REPLY BETTER.

>

> >>>>But Scoliosis is more prominent in CMT. And that can cause the above

conditions. <<<<<

SCOLIOSIS IS NOT A PRIMARY CONSEQUENCE OF THE NEUROPATHY.

>

> >>>>>>>>Cramps can be caused by contracture of muscles and tendons. And

Over use. And in some cases, surgery will not help contracture, or

stretching exercises, it depends on the degree of contracture, where its at

etc.

IT IS NOT JUST AN ISSUE OF SURGERY OR STRETCHING. IT IS A COMPREHENSIVE

REHABILITATION MANAGEMENT.

And for Over use, rest is the only therapy to help.

I AGREE WITH YOU. BUT NOBODY SHOULD ARRIVE AT THAT.

I take Baclofen for spasms.

IF BACLOFEN HAS BEEN PRESCRIBED, YOU PROBABLY HAVE A COMPLEX FORM OF CMT, AS

I TOLD YOU BEFORE.

pAOLO

>

August 6, 2001

-----Original Message-----

From: Paolo Vinci <p.vinci@...>

< >

Date: Monday, August 06, 2001 6:46 AM

Subject: Re: [] Re: Question for Paolo

>>>>We are going to have to chat about this CNS involvement, very interesting,

as I have some. Some Bulbar Palsy symptoms, plus partial hearing loss right

ear. ~>Becky M.