eye pain

[Guest guest]

I have had eye pain and pressure the whole 5 years I've had CFS. My eyes get

so tired very quickly that I always need to rest them. I have a

vestibular/balance problem so maybe that's why, but just wondering about

others.

[Guest guest]

Tom, Iritis pain is pretty much the same in most people. The symptoms in the

very beginning

are a slight scratchy feeling, like you have a hair in your eye? Your eye

ball gets red, but usually not overwhelmingly red. You start to tear (like

you've

been crying). You can become very sensitive to light. Your vision starts to

fade, as if you are looking through a cloud. At this point if you don't get to

a doctors office within a day or so (some of us need to start treatment within

hours) the pain will progressively get worst until you start some kind of

treatment. It can then start to have a dull ache behind, in front, on the side,

on forehead...or all of these. The first attacks can be the worst because you

don't know to get to the doctors office right away. Most of us that have had

chronic iritis...have our meds at home and the doctor trusts us to start

treatment and come into the office as soon as possible. The pred forte helps the

inflammatory cells. The dilation drops help to prevent scar tissue and relieves

the pain. It causes the pupil to dilate and become paralized. At first it is a

little hard to adjust, but you get used to it and your dominate, good eye will

take over so you can drive and watch TV and find your sweetie. TeeHee. If you

have a few flare-ups of iritis, you will learn to feel an iritis attack come

on. A touch to your closed eyelid will cause slight pain. Sometimes the doctor

doesn't see it in the slit lamp for another week. You will learn to trust your

own body's signals. Don't treat it yourself longer than necessary. Always try

to get into your ophthalmologists ASAP.

If it is iritis, it more than likely will not get better on its own. It

usually effects one eye at a time, unlike conjunctivitis. However, it can effect

both eyes at the same time. I've had that happen only 2-3 times. Almost always,

mine effects just the one eye. Iritis usually doesn't have any thick mucus and

doesn't itch like conjunctivitis. My first attack was my worst I was so light

sensitive I made the room completely dark and when I went outside, I wore an

eye patch. The pain was enough to curl up in a fetal position and cry.

literally. This is why it is important to keep on hand a dilating drops/pred

forte on

hand. Warm compresses may make you more comfortable if it is a bad attack.

Your oral Nsaid will help to bring down the inflammation. Conjunctivitis and dry

eyes are more common with ReA, but many do get iritis. It probably would be a

good idea to get a good dry eye preparation OTC when you have these feelings.

See if that might help. My doctor told me to use them whenever I thought

about it. It has helped. Hope this helps.

[Guest guest]

In a message dated 4/10/2004 9:13:13 PM Pacific Standard Time,

thomaslambirth@... writes:

So does this sound

like anything to those who have had the more serious eye problems?

It sounds like what Adrienne describes prior to her eyes swelling. Have your

eye lids, eye area swelled?

She has special drops to use when this happens.

Have you seen an opthamologist? We were fortunate in living next door to

one, so when Adrienne's eye swelled, she walked over, he took a look, and was

able to see it when it was happening. We then went in later that week and saw

him in his office.

Good luck! And yes, Adrienne's eye condition is related to or part of the

arthritis.

K

Adrienne's Mom

[Guest guest]

Usually (in all the literature on-line) we read only two eye conditions

connected with the spondy diseases (conjunctivitis and uveitis.) I've listed a

few

more that are common to us. All of these are different conditions concerning

different areas of the eyes, but they may have similar symptoms. Each condition

is treated a little differently. Some use steroids, some use

anti-inflammatories (nsaid), some use a combination of these two drugs, some use

antibiotics

or anti-viral drops. Still others will use no treatment at all, or just

artificial tears. I purposefully did not show the symptoms because some symptoms

are

exactly the same and can only be diagnosed for sure with a slit lamp exam.

Only an opthalmalogist can tell the difference and order the drops you will need

and the right dosage. Some of these conditions are more prevalent with one

type of spondy disease, but can show up with all types of spondy. I know for

some

of us that have chronic uveitis, our doctors have said we can start

treatments on a weekend until we can see the doctor, but for others it is

important to

have an opthalmalogist do the diagnosing.

Blepharitis: Inflammation of the eyelid(s), typically around the eyelashes.

Various types of dermatitis, rosacea and allergic reactions can cause

blepharitis. Symptoms include a red or pink eyelid, a crusty lid or lashes,

burning,

foreign body sensation, eye or eyelid pain or discomfort, a dry eyelid, a dry

eye, eyelash loss, grittiness, stickiness, eyelid swelling and tears.

Dry Eyes: Is a chronic lack of sufficient lubrication and moisture in the

eye. Its consequences range from subtle but constant irritation to ocular

inflammation of the anterior (front) tissues of the eye. Persistent dryness,

scratching and burning in your eyes are signs of dry eye syndrome. These

symptoms

alone may be enough for your eye doctor to diagnose dry eye syndrome. Sometimes

he

or she may want to measure the amount of tears in your eyes. A thin strip of

filter paper placed at the edge of the eye, called a Schirmer test, is one way

of measuring this.

Conjunctivitis: The conjunctiva is the thin, clear membrane over the white

part of the eye; it also lines the eyelids. Inflammation of this membrane is

called conjunctivitis. Its common name, pink eye, can refer to all forms of

conjunctivitis, or just to its contagious forms. The most obvious symptom of

pink

eye is, of course, a pink eye. The pink or red color is due to inflammation.

Your eye may also hurt or itch.

Scleritis: Is an inflammatory disease that affects the conjunctiva sclera,

and episclera (the connective tissue between the conjunctiva and sclera). It is

associated with underlying systemic diseases in about half of the cases. The

diagnosis of scleritis may lead to the detection of underlying systemic

disease. Scleritis affects women more frequently then men. It most frequently

occurs in those who are in their 40's and 50's. The problem is usually confined

to one eye, but may affect both. 12% of scleritis is associated with Reiter's

Syndrome.

Episcleritis is an inflammatory condition of the connective tissue between

the conjunctiva and sclera known as the episclera.

Uveitis: is a general term that refers to inflammation or swelling of the

eye's structures responsible for its blood supply. These structures are

collectively known as the uveal tract, and include the iris,ciliary body, and

choroid.

Uveitis is classified by the structures it affects, the underlying cause,

and whether it is chronic (lasting more than 6 weeks), or acute in nature.

There are four main categories of uveitis. Anterior uveitis (also known as

iritis) involves the iris and ciliary body and is the most common type;

intermediate

uveitis affects the ciliary body, vitreous and retina; posterior uveitis

involves the retina, choroid and optic nerve; and diffuse uveitis affects

structures both in the front and back of the eye.

Keratitis: irritation and inflammation of the cornea.

Cataracts: clouding of the lens in the eye that affects vision. Can happen

when there is inflammation or from the use of steroid drops or oral steroids.

However, the underlying disease must be treated even though it causes cataracts.

Glaucoma: is a disease caused by increased intraocular pressure (IOP)

resulting either from a malformation or malfunction of the eye’s drainage

structures.

This can be cause by inflammation from uveitis and the use of steroid drops.

However, even if you have glaucoma, the uveitis must be treated.

[Guest guest]

I have to thank you for your post! I have had uveitis on and off for several

years and several times I have started the drops and still have pain and then

go into the doctor and she says she can't see anything. So I stopped going

after the first couple of times she told me that. Thought I was losing my

mind, but as soon as I stopped the drops each time it came back full force.

I think I would know when the symptoms have started and I certainly don't

want to have that full blown pain back, but I don't want to go back and be

embarassed at the Dr's office. The Dr was rather mean the last time and I've

been

in a flare treating in on my own for about three weeks with the pred forte

drops, starting out at the highest dose and then tapering as it started to feel

better, but its not perfect yet since I've been off the drops for several days

this time. My Dr has not used the dialating drops since the first few flares

that I had, but I keep hearing people mention them. How does it help the

treatment? Thanks for your post--I really feel better, but think I need to

check

out another Dr. Thanks for any info you can provide. Kathy from WI

[Guest guest]

Hello Connie,

It's a funny thing but I read your response to Tom about iritis and the

symptoms that you experience when it comes on. And that is exactly the

feeling that I get on some occasions.

I've never been able to decribe the symptoms properly to my doc' and I doubt

that he would have known them anyhow. But that's definitely what I get.

It's even stranger that after reading your posting about it, I started to

feel similar symptoms coming on, in my left eye.

At the moment it's not doing anything, but earlier I had that scratchy

sensation, with slight tearing and the blurred vision. Along with the

feeling that my left eyeball did not want to move normally.

(My eyes are also quite dry when I wake up in the morning, but not too bad

for the rest of the day.)

I haven't received any bad pain this time as yet, but occasionally it starts

the way you have described and becomes a headache and/or sinus ache.

(Then the pain can get quite bad and may last a day or two.)

I guess that before it reaches the point of pain I should be using some form

of medication, but my doc' has never told me this, nor has he offered me

anything for it.....Not even painkillers.

So, am I to understand that this could be doing some serious damage to my

eyes, when this pain really comes on?..........Because I've been getting

this sort of thing quite often, and occasionally much worse, since last

August, when I got the food poisoning.

And not even my opthalmologist informed me about this, when I asked her

about iritis and its associated problems.

I'm beginning to wonder what kind of people we have, looking after us over

here?

Anyhow, thanks very much for that description Connie.....I'm obliged to you

for that.

Anything you could add to that last posting, that's in line with what I've

mentioned here, would be greatly appreciated.

Thanks again and best regards!

Mal.

[Guest guest]

I have been diagnosed with AS since 1992 and I know what that type of

eye pain feels like. After a couple of years of frequent ( every 2 -3

months) eye flair ups my optomologist said I was developing a cataract

from the AS and the prednisone drops.

Fortunately my rhematologist recomended that I take salmon oil as a

daily supplement. While I still get bouts of iritis, the episodes are

less frequent (every 2 to 3 years)and are of much shorter duration.

My current optomologist says there is not even a sign that there was a

cataract or damage due to the earlier and frquent bouts of iritis.

Vioxx has never really worked for me either. I do much better on voltaren.

[Guest guest]

Ray, I know exactly what you are talking about. I go into the optha dr and

she tells me there is no inflammation that she can see, but I still have the

pain and yes, it is unbearable at times. If I use the pred forte drops the pain

goes away temporarily, but I have to keep using them. I never had the

chronic problem before, it usually went away after treatment for a month or two.

This has gone on since November. The optha dr wasn't very nice the last time I

was in and made me feel like I shouldn't have been wasting her time. I

really don't want to go in again, but I'm running out of eye drops and patience.

I

haven't had ear problems, but I wonder if the drops couldn't cause some type

of problem after using them for years. You never know. Well, you're not

alone Ray. But I have no answers for you. Kathy from WI

[Guest guest]

For years I've had a terrible periodic pain behind the left eye (the one most

affected by the ReA/RS). Xrays, MRI's, etc., never turn up anything. Sometimes

the pain is dibilitating and goes on for weeks before calming down. Does anyone

else experience such pain? Right behind (or so it seems to me) the eyeball,

though I've been told that it could be the eye itself and referred pain feeling

like it is behind the eye. Also have temple pain though have not had diagnosis

big cell artereitis of temple. Left ear is affected and painful, too, with

considerable loss of hearing recently.

Ray, moderator

[Guest guest]

Hi Satya,

My five year old daughter also complains of eye pain. On occasion it

lasts for a little while and she will wear sunglasses and request the lights

and T.V. off. Most frequently though ’s eye pain is shooting and she

suddenly has her hand go flying towards her right eye in shock from the pain

and she will wince or cry out. The shooting pain tends to go away fairly

quickly, but at times comes in bouts of several pains right after the other.

I’m not certain when the eye pain began for , but she has been

vocalizing it is an issue for just a little over a year, and the frequency

has increased significantly over the past year.

Hope this helps a little, even if knowing your child is not alone. Best

wishes.

Walton

(5)

Nanaimo BC Canada

Introduction

I am 34 year old father for 2 and 1/2 year old daughter. My daughter

is getting fever for every 5 weeks with seizure in some episodes. Her

pediatritian is saying fever as viral all the time and did not do any

tests. Since last episodes, On few occasions my daughter is

complining about pain in her eyes, I am not sure whether she is

playing with me or it is real. please give any advise. Thanks!

[Guest guest]

> Hi Satya,

> My five year old daughter also complains of eye pain. On

occasion it

> lasts for a little while and she will wear sunglasses and request

the lights

> and T.V. off. Most frequently though 's eye pain is shooting

and she

> suddenly has her hand go flying towards her right eye in shock

from the pain

> and she will wince or cry out. >>

Hi and Beverly,

I mentioned before that the eye pain and sensitivity you describe is

one of the defining characteristics of TRAPS. Kenny's periodic need

for sugnlasses and sudden, shooting pain is as you describe with

. Have either of you had your children tested for TRAPS yet?

Charyn, mom to Kenny, 4,

diagnosis changed from Pfapa to TRAPS, age 2

[Guest guest]

Thank you Charyn, This is very valuable information. My duaghter did

not go through any tests. This information is good to know when I see

pediatretion next time. This is the end of 5th week without any

fever, But Hasrhu had two vomittings since yesterday, I am keeping my

fingures crossed. One thing I noticed is she makes noices with her

teeth (like chewing) in the sleep. I dont know whether this is syptom

for any thing. Thanks again.

Satya

> > Hi Satya,

> > My five year old daughter also complains of eye pain. On

> occasion it

> > lasts for a little while and she will wear sunglasses and request

> the lights

> > and T.V. off. Most frequently though 's eye pain is shooting

> and she

> > suddenly has her hand go flying towards her right eye in shock

> from the pain

> > and she will wince or cry out. >>

>

> Hi and Beverly,

>

> I mentioned before that the eye pain and sensitivity you describe

is

> one of the defining characteristics of TRAPS. Kenny's periodic

need

> for sugnlasses and sudden, shooting pain is as you describe with

> . Have either of you had your children tested for TRAPS yet?

>

> Charyn, mom to Kenny, 4,

> diagnosis changed from Pfapa to TRAPS, age 2

[Guest guest]

Hi Charyn,

Yes, my son has been tested for TRAPS, and it came back negative. However,

I don't think he has typical symptoms. He now gets rashes (new this

year) and has eye pain (not every time). I hope that one day we will get to

the bottom of it.

Thanks for your advice. Does Kenny have TRAPS? And if he does, did he test

positive for it?

Thanks.

Beverly

Mom to Nick(10), Shane (7) and Maddy (5)

Re: Eye pain

>

>

>

>> Hi Satya,

>> My five year old daughter also complains of eye pain. On

> occasion it

>> lasts for a little while and she will wear sunglasses and request

> the lights

>> and T.V. off. Most frequently though 's eye pain is shooting

> and she

>> suddenly has her hand go flying towards her right eye in shock

> from the pain

>> and she will wince or cry out. >>

>

> Hi and Beverly,

>

> I mentioned before that the eye pain and sensitivity you describe is

> one of the defining characteristics of TRAPS. Kenny's periodic need

> for sugnlasses and sudden, shooting pain is as you describe with

> . Have either of you had your children tested for TRAPS yet?

>

> Charyn, mom to Kenny, 4,

> diagnosis changed from Pfapa to TRAPS, age 2

>

>

>

>

>

>

>

>

[Guest guest]

Irititis is NOT a symptom of .

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

Hello everyone,

I was wondering if eye pain or iritis is a symptom of ? I

believe it is for TRAPS and JRA. But is it a symptom of ? We

just came back from the opthamologist. Shane was complaining that

his eyes hurt. They are photophobic and at times get short stabbing

pain. He is not fevering right now and he is also complaining of

joint pain (elbows, knees).

Last July when Shane was getting his eyes checked, he had iritis. He

was not fevering at the time. Today, when I took him in they didn't

see any signs of iritis, however, I gave him Motrin earlier and that

could have covered the iritis. The doctor did say that his eyes are

dry and to get the natural tears over the counter.

I was just wondering if anyone else with has experienced any

of this?

[Guest guest]

I've had eye pain for a long time.

I read something about mico circulation.

Bilberry extract is suppose to help that. And right on the bottle it says its

nutrition for the eyes. Its an herb and cost about $6 at the local health food

store.

I now know I need to switch my meals. I don't eat the thing for breakfast every

day. But evey 4th day is ok. I wonder for how long I can take Bilberry.

Its a big help and if I need to I'll take it once every 4th day to. But its been

a week and I take it every day. And I have lots of body aches that its helping

with too.

But I know its carpet and the heater that gets me bad. The better I feel the

more I do carpet and heater I do.

IVIG seems to help much more. But since I moved a few weeks ago I'm having

trouble finding a doctor who will give it too me. Even though its FDA approved

for people with immune-system problems.

I hope to have my R-Nase checked it seems every one with CFS as one that is

fragmented, but some with CFS have one that weights the normal amount. And for

those people they think its something with the inner workings or the

communication with the surroundings.

Hope this helps,

Ron

There are 25 messages in this issue.

Topics in this digest:

1. eye pain

From: " Laurel Bertrand "

2. glutathione/p choline/dr kane

From: " Laurel Bertrand "

3. Blastocystis Hominis/Paromycin/hearing loss

From: cfs@...

4. Re: Suggestions on organizing supplements? What to take, how much, etc?

From: " Barb Peck "

5. Re: Arnold Peckerman - MIA

From: cort johnson

6. Re: Blastocystis Hominis/Paromycin/hearing loss

From: " yakcamp22 "

7. Re: Re: Rich V.-Glutathione Encoding Gene

From: Funnyb1331

8. Leg pain-Salt??

From: " yakcamp22 "

9. Re: Blastocystis Hominis/Paromycin/hearing loss

From: " tensevern "

10. Unpublished Medical Reports

From: " pnutts27 "

11. Re: Leg pain-Salt??

From: " Adrienne "

12. Re: Leg pain-Salt??

From: " yakcamp22 "

13. Re: Leg pain-Salt?? Well...

From: " kdrbrill "

14. Topc change: Babesiosis and big stomach

From: " Doris Brown "

15. Re: Re: Zopiclone (was: New sleep med-Lunesta)

From: " Doris Brown "

16. Re: Re: benzos

From: " Doris Brown "

17. Re: Rich V.-Glutathione Encoding Gene

From: " rvankonynen "

18. Re: Rich - catalase/SOD - Glutathione

From: " rvankonynen "

19. Re: Re: Leg pain-Salt??

From: " Adrienne "

20. Re: cea

From: " yakcamp22 "

21. Re: Re: Leg pain-Salt?? Well...

From: " Adrienne "

22. Re: benzos

From: " helen9jora "

23. Re: Rich - catalase/SOD - Glutathione

From: " winsomme "

24. Re: Rich - catalase/SOD - Glutathione

From: " winsomme "

25. Re: Rich - catalase/SOD - Glutathione

From: " winsomme "

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Sun, 05 Jun 2005 05:43:45

From: " Laurel Bertrand "

Subject: eye pain

I've started to experience eye pain when reading, sometimes even just a couple

sentences. I've had trouble reading at any length for some time, but I now

actually exprience pain in each eye, and sometimes the pain lingers for the

remainder of the day.

Has anyone else experienced this? I do not think it is related to needing an

adjustment in my eye prescrption, as i had an extensive eye exam about 2 years

ago and my eyesight had not changed in 10 years.

I have also had problems being unable to watch TV for several years now. Just a

few secnds can cause crash.

Any ideas as to what the problem may be? I took Dr Shoemakers visual

acuity/neurotoxicity test online before and was negative. I also had an MRI

recently and it was normal.

Any ideas/suggestions would be helpful.

Thanks,

Laurel

laurelb1@...

---------------------------------

Discover

Find restaurants, movies, travel & more fun for the weekend. Check it out!

[Guest guest]

>

> Anyone ever experience eye pain while on tx? I've been doing the

combo

> therapy for 3 wks and this morning I had a lot of eye twitching and

> muscle spasms in the lower eye... you can even see it spasming. I

feel

> like I have a stye. It is painful. Should I call the dr? Or is this

> unrelated? (I guess I could actually be getting a stye...) I was in a

> panic earlier... but feel better now after I took some anti-anxiety

> med. Anyone ever experienced this?

>

hi kerri, joyce here,i have experienced that way before tx

to me it is just a spasm and still get them once in a great while and u

can see it twitch lol personally i don't think its alot to worry about

but im no doctor and the pain could be like what u said as far as a

stye and that maybe should be looked at. im not sure if i have ever had

a stye i know i've had pink eye. contact me sometime and we'll chat.

take care and god bless

joyce

[Guest guest]

now that I am on treatment, I find that my muscles from weight lifting or

exursions can make my nake ache and teeth ache and sometimes eye will twitch.

If a sleeping pill and lots of mental and physical rest doesnt do it, definately

see the doctor. I heard that we should all see an eye doctor before and during

and after treatment, because one of the meds can cause eye damage--but I looked

it up in the specs of the drug and it was like .02% of the cases that eye

troubles occurred.

JOYCE <tskjak@...> wrote:

>

> Anyone ever experience eye pain while on tx? I've been doing the

combo

> therapy for 3 wks and this morning I had a lot of eye twitching and

> muscle spasms in the lower eye... you can even see it spasming. I

feel

> like I have a stye. It is painful. Should I call the dr? Or is this

> unrelated? (I guess I could actually be getting a stye...) I was in a

> panic earlier... but feel better now after I took some anti-anxiety

> med. Anyone ever experienced this?

>

hi kerri, joyce here,i have experienced that way before tx

to me it is just a spasm and still get them once in a great while and u

can see it twitch lol personally i don't think its alot to worry about

but im no doctor and the pain could be like what u said as far as a

stye and that maybe should be looked at. im not sure if i have ever had

a stye i know i've had pink eye. contact me sometime and we'll chat.

take care and god bless

joyce

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Hey, thanks for your replies. I think I am getting a stye. Today my eye is

swollen but less painful than yesterday and the spasms are less. I had the eye

spasms before tx, too. Is that from HCV? My next dr. appt. is on Tuesday, so I

will talk to him about it then. He has perscribed my alprozalam and serax to

help with panic/ anxiety and sleep. It does seem to help, though I hate taking

meds and only take it rarely.

edward wrangler <ewranglerasc@...> wrote: now that I am on

treatment, I find that my muscles from weight lifting or exursions can make my

nake ache and teeth ache and sometimes eye will twitch. If a sleeping pill and

lots of mental and physical rest doesnt do it, definately see the doctor. I

heard that we should all see an eye doctor before and during and after

treatment, because one of the meds can cause eye damage--but I looked it up in

the specs of the drug and it was like .02% of the cases that eye troubles

occurred.

JOYCE <tskjak@...> wrote:

>

> Anyone ever experience eye pain while on tx? I've been doing the

combo

> therapy for 3 wks and this morning I had a lot of eye twitching and

> muscle spasms in the lower eye... you can even see it spasming. I

feel

> like I have a stye. It is painful. Should I call the dr? Or is this

> unrelated? (I guess I could actually be getting a stye...) I was in a

> panic earlier... but feel better now after I took some anti-anxiety

> med. Anyone ever experienced this?

>

hi kerri, joyce here,i have experienced that way before tx

to me it is just a spasm and still get them once in a great while and u

can see it twitch lol personally i don't think its alot to worry about

but im no doctor and the pain could be like what u said as far as a

stye and that maybe should be looked at. im not sure if i have ever had

a stye i know i've had pink eye. contact me sometime and we'll chat.

take care and god bless

joyce

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Kerri, Call the doctor, eye pain can be a sign of other problems. Remember when it comes to our eyes and other things it is best to refer to your doctor. Love Janetkerrilandress <kerrilandress@...> wrote: Hey, Has anyone experienced eye pain while on tx? I've been doing Pegasys + Ribavarin for three weeks and today I have eye pain in my right eye. It

feels like stye, but I don't see anything. It's not red either, but it twitching alot... you can see muscle spasms on the lower part. I'm experiencing quite a bit of anxiety... panic about this. Should I call the Dr.? or is this unrelated to tx and I should just relax? Take the ordinary things of life, and make them your own. Do the impossible with a smile

[Guest guest]

Call your eye doc immediately as this tx really can cause bad problems with your eyes,, I developed sarcoidosis in my right eye from INF.. dont wait! dont stop your tx but call the eye doc!kerrilandress <kerrilandress@...> wrote: Hey, Has anyone experienced eye pain while on tx? I've been doing Pegasys + Ribavarin for three weeks and today I have eye pain in my right eye. It feels like stye, but I don't see anything. It's not red either, but it twitching alot... you can see muscle spasms on the lower part.

I'm experiencing quite a bit of anxiety... panic about this. Should I call the Dr.? or is this unrelated to tx and I should just relax? Jackie

[Guest guest]

I have dr. appt. tomorrow. My eye feels better today, though. What is sarcoidosis?Jackie on <redjaxjm@...> wrote: Call your eye doc immediately as this tx really can cause bad problems with your eyes,, I developed sarcoidosis in my right eye from INF.. dont wait! dont stop your tx but call the eye doc!kerrilandress <kerrilandress > wrote: Hey, Has anyone

experienced eye pain while on tx? I've been doing Pegasys + Ribavarin for three weeks and today I have eye pain in my right eye. It feels like stye, but I don't see anything. It's not red either, but it twitching alot... you can see muscle spasms on the lower part. I'm experiencing quite a bit of anxiety... panic about this. Should I call the Dr.? or is this unrelated to tx and I should just relax? Jackie

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[Guest guest]

its an autoimmune disease that is caused from the Interferon,, it usually attacks the lungs but I got it in my eye..Kerri Landress <kerrilandress@...> wrote: I have dr. appt. tomorrow. My eye feels better today, though. What is sarcoidosis?Jackie on <redjaxjm > wrote: Call your eye doc immediately as this tx really can cause bad problems with your eyes,, I

developed sarcoidosis in my right eye from INF.. dont wait! dont stop your tx but call the eye doc!kerrilandress <kerrilandress > wrote: Hey, Has anyone experienced eye pain while on tx? I've been doing Pegasys + Ribavarin for three weeks and today I have eye pain in my right eye. It feels like stye, but I don't see anything. It's not red either, but it twitching alot... you can see muscle spasms on the lower part. I'm experiencing quite a bit of anxiety... panic about this. Should I call the Dr.? or is this unrelated to tx and I should just relax? Jackie Sponsored LinkMortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo -

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[Guest guest]

Hi ,

Could you tell me how you were diagnosed with Sjogrens syndrome? I

ask as I have been in the eye infirmiry this week with eye problems

that I have been having for ages, it turns out I have very dry eyes

which is causing my eyelids to pull the surface of my cornea off when

I wake in the morning, and it gets very sore (recurrent corneal

erosion).

I am a bit worried, as I also experience a dry mouth quite

frequently, I did mention it to the nurse, but she kind of looked at

me blankly and I felt a bit of a hypochondriac so shut up sharpish!

I know they hate us self diagnosing...

I've also had a lasting issue with blurred vision ever since this

last bout, and spent 2 hours at the eye infirmiry to find out why -

only for them to say it must be the dilating drops they ised (still?

I'm not so sure)...because they can't see anything else that can be

causing it...

Thanks

Leah x

>

> I now have the delight of having Sjogrens Syndrome... which is a ,

well, a pain in the eye (and mouth)... but this is probably due to

not being on enough Armour.

>  

> I suggest you have a check up at the eye dept just to make sure

it's nothing else. And yes... I had the blurred vision and all dat

stuff.

[Guest guest]

I took Lucy to an optometrist since there is no opthamologist (sp?) in our

small town. He did the slit lamp test and he said that he thought he saw a

few cells and that this may be the beginnings of uveitis. He wants to see

her back in 10 days. Does this sound reasonable? I have a call in to the

rheumy to see what she thinks.

Amy and Lucy, 7, poly

[Guest guest]

Wow, that's too bad that the prednisone does that to her. My daughter has

been on the pred. drops for 2 months now, hopefully she can get off them

soon! Good luck to you guys, I'll say a little prayer for you both!!!

Lori

On Mon, Jun 1, 2009 at 2:03 PM, Amy Hendrickson <ahendrickson68@...>wrote:

>

>

> No, there's really nothing to do for her except put her back on prednisone

> which everyone is hesitant to do unless it's REALLY necessary. Prednisone

> changes her personality from sunny and sweet to aggressive and hostile.

> It's not good. Better than eye and joint damage of course.

>

> Amy

>

>

> On Mon, Jun 1, 2009 at 11:46 AM, L Legnon

<momof2sillies@...<momof2sillies%40gmail.com>>

> wrote:

>

> >

> >

> > Did he suggest any treatment in the meantime? I don't know that I'd want

> to

> > wait 10 days!!!!!

> > Lori and Elena, 7, psoriatic

> >

> > On Mon, Jun 1, 2009 at 12:58 PM, Amy Hendrickson

> > <ahendrickson68@... <ahendrickson68%40gmail.com> <ahendrickson68%

> 40gmail.com>>wrote:

> >

> >

> > >

> > >

> > > I took Lucy to an optometrist since there is no opthamologist (sp?) in

> > our

> > > small town. He did the slit lamp test and he said that he thought he

> saw

> > a

> > > few cells and that this may be the beginnings of uveitis. He wants to

> see

> > > her back in 10 days. Does this sound reasonable? I have a call in to

> the

> > > rheumy to see what she thinks.

> > >

> > >

> > > Amy and Lucy, 7, poly

> > >

> > >