Re: Anyone have any insight on a Low S-TSH in blood draws?

[Guest guest]

I have autoimmune thyroid disease - I've had it for years. It sounds like it

might be Hashimoto's, which is exactly what I have. Once the level is stable,

it's just a matter of blood tests to check your levels. I've been on thyroid

medication for years, and have had no problems with it. The pill is tiny, too,

so it's not really a big deal to take. I wouldn't say that the thyroid problem

is involved with the JA - but once you have one autoimmune problem you're just

more likely to have another.

Hope that helps,

D.

-------------- Original message --------------

From: Diane Wiederholt <hockeytough@...>

Hi Everyone,

Yesterday when Maggie was in for her infusion, they did more bloodwork. Because

she has had such a large weight gain, which they have attributed to the large

daily dose of oral steroids, no one has ever mentioned anything about her

Thyroid to me.

Today her Primary doctor told us that she has an underactive Thyroid. The test

they took yesterday was a S-TSH test or a Sensitive Thyroid Stimulating Hormone

enzyme. The normal high cut off is 4.82

The normal low cut off is 0.34

Maggie's is 0.25

They drew more blood for tests today with the T-3 and T-4 markers for an

autoimmune disease that causes the immune system to attack the Thyroid gland.

Has anyone heard of this or have this?

They could not get an accurate antibody in her blood because of her IVIg

infusion, so this is the route they took.

As always, we are learning something new every day. But this is something I must

have skipped over when reading and researching because I definately do not

remember the Thyroid being involved with JIA.

Any insight would be greatly appreciated!

Thanks!

Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis, PIDD)

[Guest guest]

Hi ,

Thanks for the info.

One pill more a day she can handle and the little ones are a bonus!!

I will have to read up on that one. It doesn't sound like it will change

anything except help her lose some of the extra fluid she has built up over the

last year. She has doubled her weight between the steroids and whatever this is.

Thanks again!

Diane

> From: newmom2003@... <newmom2003@...>

> Subject: Re: Anyone have any insight on a Low S-TSH in blood draws?

>

> Date: Wednesday, July 23, 2008, 10:01 PM

> I have autoimmune thyroid disease - I've had it for

> years. It sounds like it might be Hashimoto's, which is

> exactly what I have. Once the level is stable, it's

> just a matter of blood tests to check your levels. I've

> been on thyroid medication for years, and have had no

> problems with it. The pill is tiny, too, so it's not

> really a big deal to take. I wouldn't say that the

> thyroid problem is involved with the JA - but once you have

> one autoimmune problem you're just more likely to have

> another.

>

> Hope that helps,

> D.

> -------------- Original message --------------

> From: Diane Wiederholt <hockeytough@...>

> Hi Everyone,

>

> Yesterday when Maggie was in for her infusion, they did

> more bloodwork. Because she has had such a large weight

> gain, which they have attributed to the large daily dose of

> oral steroids, no one has ever mentioned anything about her

> Thyroid to me.

> Today her Primary doctor told us that she has an

> underactive Thyroid. The test they took yesterday was a

> S-TSH test or a Sensitive Thyroid Stimulating Hormone

> enzyme. The normal high cut off is 4.82

> The normal low cut off is 0.34

> Maggie's is 0.25

>

> They drew more blood for tests today with the T-3 and T-4

> markers for an autoimmune disease that causes the immune

> system to attack the Thyroid gland. Has anyone heard of this

> or have this?

> They could not get an accurate antibody in her blood

> because of her IVIg infusion, so this is the route they

> took.

>

> As always, we are learning something new every day. But

> this is something I must have skipped over when reading and

> researching because I definately do not remember the Thyroid

> being involved with JIA.

>

> Any insight would be greatly appreciated!

>

> Thanks!

>

>

> Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis, PIDD)

>

>

>

>

>

[Guest guest]

Diane:

At the roundtable discussion I attended at conference the doctor talked about

thyroid.  He suggested Hannah get tested for thyroid and parathyroiid, which

when I researched (and too) I found really interesting.

 

This is a really interesting article about parathyroid (also really long):

http://www.parathyroid-gland.com/

 

Hope this helps some.

 

Beth & Hannah, 11, the mystery patient; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth

Anyone have any insight on a Low S-TSH in blood draws?

Hi Everyone,

Yesterday when Maggie was in for her infusion, they did more bloodwork. Because

she has had such a large weight gain, which they have attributed to the large

daily dose of oral steroids, no one has ever mentioned anything about her

Thyroid to me.

Today her Primary doctor told us that she has an underactive Thyroid. The test

they took yesterday was a S-TSH test or a Sensitive Thyroid Stimulating Hormone

enzyme. The normal high cut off is 4.82

The normal low cut off is 0.34

Maggie's is 0.25

They drew more blood for tests today with the T-3 and T-4 markers for an

autoimmune disease that causes the immune system to attack the Thyroid gland.

Has anyone heard of this or have this?

They could not get an accurate antibody in her blood because of her IVIg

infusion, so this is the route they took.

As always, we are learning something new every day. But this is something I must

have skipped over when reading and researching because I definately do not

remember the Thyroid being involved with JIA.

Any insight would be greatly appreciated!

Thanks!

Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis, PIDD)

[Guest guest]

Thanks Beth!

I will continue to read! All that I know for sure is that her Thyroid levels

are low, it is not working right. At least as far as her blood tests show!

I think it might be a wonderful investment for us to come to the conference

next year, there is just so much information and the human body is just so

complicated.......nothing is ever easy!

Diane

> From: Beth Yohnk <yohnkmom@...>

> Subject: Re: Anyone have any insight on a Low S-TSH in blood draws?

>

> Date: Wednesday, July 23, 2008, 11:16 PM

> Diane:

> At the roundtable discussion I attended at conference

> the doctor talked about thyroid. 

> He suggested Hannah get tested for thyroid and

> parathyroiid, which when I researched (and too) I

> found really interesting.

>  

> This is a really interesting article about parathyroid

> (also really long):

> http://www.parathyroid-gland.com/

>  

> Hope this helps some.

>  

> Beth & Hannah, 11, the mystery patient; asthma; gerd;

> migraines

> Sending prayers & happy thoughts,

> Beth

>

>

>

> Anyone have any insight on a Low S-TSH in

> blood draws?

>

>

> Hi Everyone,

>

> Yesterday when Maggie was in for her infusion, they did

> more bloodwork. Because she has had such a large weight

> gain, which they have attributed to the large daily dose of

> oral steroids, no one has ever mentioned anything about her

> Thyroid to me.

> Today her Primary doctor told us that she has an

> underactive Thyroid. The test they took yesterday was a

> S-TSH test or a Sensitive Thyroid Stimulating Hormone

> enzyme. The normal high cut off is 4.82

> The normal low cut off is 0.34

> Maggie's is 0.25

>

> They drew more blood for tests today with the T-3 and T-4

> markers for an autoimmune disease that causes the immune

> system to attack the Thyroid gland. Has anyone heard of this

> or have this?

> They could not get an accurate antibody in her blood

> because of her IVIg infusion, so this is the route they

> took.

>

> As always, we are learning something new every day. But

> this is something I must have skipped over when reading and

> researching because I definately do not remember the Thyroid

> being involved with JIA.

>

> Any insight would be greatly appreciated!

>

> Thanks!

>

>

> Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis, PIDD)

>

>

>

>

[Guest guest]

Hi Diane:

All three of my daughters have Hashimoto Thyroiditis and my twins each have

additional autoimmune disorders (different from each other). Sounds like

your Maggie may be hypo too. Like another member said....small pill. Just

have

to have it monitored and doses changed as needed. Mine are all on different

doses, but have done great on the meds. Good luck.

Take care.

Patty

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

[Guest guest]

Hi Patty,

Did any of your daughters have a significant amount of weight gain?

One year ago when put on massive doses of steroids (120 mgs daily) when her

organs were being attacked horribly, she then started to gain weight. This was

all attributed to the amount of steroids. She is now on 28 mgs per day and still

continues to gain weight. In fact in the last year she has doubled her weight

from 84 lbs to 163 lbs, regardless of how many steroids she is on. Not too easy

to deal with for a little girl at 11, others who do not know what is going on

can be quite cruel.

She also has this wake up in the middle of the night scream that she cannot

catch her breath or swallow. Apparently we were told today that the Thyroid

Gland can flare just like a joint. It makes her heart race and she feels like

her throat is closing and cutting off her air. I never thought to check for

swelling in her Thyroid, I was totally unaware that this was even something that

could happen. I just have always put it off to the arthritis that is in her

sternum, right at the top by the base of her neck. I will pay much closer

attention if and when this should happen again. It happens at night and is

usually short lived ( a few hours or so) and gone by morning.

Thanks for the information, I am actually a little relieved that there is a

reason for this weight gain, it will be much easier on her bones and joints to

weigh what a normal child at 4 feet 11 inches should weigh or at least a little

closer to that amount.

Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis,PIDD)

> From: ThreeMayEmeralds@... <ThreeMayEmeralds@...>

> Subject: Re: Anyone have any insight on a Low S-TSH in blood draws?

>

> Date: Thursday, July 24, 2008, 10:34 PM

> Hi Diane:

>

> All three of my daughters have Hashimoto Thyroiditis and my

> twins each have

> additional autoimmune disorders (different from each

> other). Sounds like

> your Maggie may be hypo too. Like another member

> said....small pill. Just have

> to have it monitored and doses changed as needed. Mine are

> all on different

> doses, but have done great on the meds. Good luck.

>

> Take care.

> Patty

>

>

>

>

> **************Get fantasy football with free live scoring.

> Sign up for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

>

[Guest guest]

Diane:

I was just talking to friend tonight who was recently diagnosed with Hashimotos

Thyroid and had trouble with weight gain.  She said she is now on the right dose

of medication and is slowly starting to lose the weight she gained while waiting

for a diagnosis.  Hopefully this will be the case for Maggie too!

Beth & Hannah, 11, the complicated mystery patient

 

Sending prayers & happy thoughts,

Beth

Re: Anyone have any insight on a Low S-TSH in blood draws?

> @group s.com

> Date: Thursday, July 24, 2008, 10:34 PM

> Hi Diane:

>

> All three of my daughters have Hashimoto Thyroiditis and my

> twins each have

> additional autoimmune disorders (different from each

> other). Sounds like

> your Maggie may be hypo too. Like another member

> said....small pill. Just have

> to have it monitored and doses changed as needed. Mine are

> all on different

> doses, but have done great on the meds. Good luck.

>

> Take care.

> Patty

>

>

>

>

> ************ **Get fantasy football with free live scoring.

> Sign up for

> FanHouse Fantasy Football today.

> (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

>

>

>

[Guest guest]

Hi Beth,

Well that will be wonderful for Maggie if that is how things go!!

Kids can be so cruel and quite honestly so can adults.

Maggie walks when she can with fore arm crutches( this is a huge deal to her

as she also has CP). The other day she wanted to walk with me just inside of the

mall so that I could get a SD card for my cell phone from the sprint store. The

little store is right inside the door by the food court and if she needed to she

could sit down so I thought what the heck, why not!

while standing at the counter,Maggie was just to my right and there were two

older ladies sitting in the food court eating some lunch, on my left. I

overheard their conversation which was a bit louder than it needed to be but I

am guessing by their age they did not realize how loud they actually were.

I heard them say that poor child can't even make it from the door to the

store without having to sit down, what a shame it is that she is so heavy, what

is wrong with the mother for letting her get that big. It is no wonder she needs

the crutches to hold her up. GRRRR!!

Now, I did not even acknowledge that I heard that conversation, other than to

flash them both a dirty look. Maggie had no clue that they had said this and was

more interested in the pretty colors of cell phones in the display case. Thank

God!

Had she heard this conversation I might have had to take one of her beautiful

bright neon pink crutches and show them another way that this MOM can use them.

It broke my heart. Because she did not hear what it was that they were saying,

we just continued on and I let it go. Saying something to them would have only

caused Maggie pain, about something she just did not even need to know was said

in the first place.

We are so lucky to even have her with us today because of all of her health

problems. What 11 year old little girl do you know, would like to have her body

balloon up so big that she cannot even fit into little girl clothes any longer.

It is hard on her bones, hard on her joints but more than anything hard on her

emotionally.

The pay off for this weight gain...... is her life.

So anyhow, for Maggie's sake I hope and pray that this was one diagnosis that

will actually help us to help Maggie get her little girl body back.

As her mom, just like you would, you love your child regardless of the way

that they look. When they hurt, you hurt. When they are sad you are sad.Best of

all, when they are happy you are happy too!(those are my favorite moments!)

Thank you so much for the email, now we just have to wait until everyone is

on the same page once again (her doctors) so we can get her started on meds that

will help!!

Diane and Maggie age 11 (OI,CP,Systemic JIA,Uveitis,PIDD)

>

> > From: ThreeMayEmeralds@ aol.com <ThreeMayEmeralds@

> aol.com>

> > Subject: Re: Anyone have any insight on a Low

> S-TSH in blood draws?

> > @group s.com

> > Date: Thursday, July 24, 2008, 10:34 PM

> > Hi Diane:

> >

> > All three of my daughters have Hashimoto Thyroiditis

> and my

> > twins each have

> > additional autoimmune disorders (different from each

> > other). Sounds like

> > your Maggie may be hypo too. Like another member

> > said....small pill. Just have

> > to have it monitored and doses changed as needed. Mine

> are

> > all on different

> > doses, but have done great on the meds. Good luck.

> >

> > Take care.

> > Patty

> >

> >

> >

> >

> > ************ **Get fantasy football with free live

> scoring.

> > Sign up for

> > FanHouse Fantasy Football today.

> > (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00

> 050000000020)

> >

> >

> >

[Guest guest]

Hi Diane:

My oldest daughter, Alyssa, did gain weight around her middle area. All of

a sudden a child who could wear clothes out before needing to go up a size

had no pants to wear because they were all to tight in the waist. She also

complained of being cold all the time and was exhausted for no apparent reason.

She also stopped developing. Once she was on the meds she wasn't constantly

cold (though she still gets cold easily) or tired, fit back into her pants

and started developing. All okay now, though I do keep check on her because

she could need an increase at any time. As a matter of fact I just had her

levels checked because she has been such a crab lately. Figured the thyroid

levels were out of whack or a teenage attitude thing. Turns out it's

teenagerhood! No small pill for that syndrome.

I agree.........others can be so cruel, especially teenage girls!

Apparently older people too. Shame on those two ladies thinking she was heavy

from

eating! I am glad she didn't hear their mean and spiteful comment. It would

be nice if they could walk a mile in someone else's shoes sometimes.

None of my daughters had problems with the thyroid interfering with

breathing. However, Alyssa's thyroid was huge. This is what initially cued me

in.

She just one day looked like she had a baseball sitting under her

throat.....scary! It is still noticeable under her skin.

Take care.

Patty

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)