UPDATE ON CALEB

[Guest guest]

Well since I was last on here our rheumy had called back and wanted

us to give Caleb a warm bath and another dose of mortin, and call

back in 1 hour with report. Well we did that and his pain went from

10 to 9 and he still could not walk and was c/o headache and

multiple joint pains. When I talked to the nurse for like the 4th

time she was like well we think he will be ok and just come in on

wed for an appt. I was like ok how do you know even you dont even

know what his dx is and when is things too bad and he needs to go to

the ED. We talked for about 1/2 hour and she was like if you think

that he needs to go to ED then by all means take him, but from what

you have told us we think he is going to be ok.....I am a nurse as

you can see by my screen name I was thinking to myself if I would of

just told a parent that I would of had to kick myself first of all

we do not know for sure what we are dealing with so how do we know

if this is *typical* of his condition...We hung up and left it at me

and my husband were going to discuss the ED but we will see them at

the clinic on wed. Well about 1 hour later my phone rang and it was

DR Passo he wanted to know what I thought and my opinion on how he

looks since I was the one here with Caleb. And after him listening

to my story of sx he said well I have been done seeing pts for about

an hour now but how long will it take you to get here I told him a

little over an hour He said ok come on and come into the clinic and

we will see him tonight but keep in mind we are here waiting on him

we have no other pts at this time. I think that was a ok come on but

hurry! We met my husband in a town on the way and went to see our

rheumy Caleb for once had a temp and they could see that he was very

sick but a littlw through the visit he perked up alot but our rheumy

seems to bring that out in people. LOL He started him on naprosyn

to help quiet he sx for now. He also did x rays and blood work. I

seen that they had called us before we got home but didnt leave a

message, that worries me. I thought no time like the present so

when I was at the appt I asked the rheumy what is holding us up on a

dx he said he rash isnt the classic JIA rash and we really havent

seen true arthraliga because he is usually feeling ok when he is

there. But today he had some artheralgia but he wasnt sure if it

was true arth. or something brewing so he wasnt ready to rule on

that tonight but did say that everything else screams JIA but its

just those 2 things that are holding us up but he thinks that in

time these will show through that is what we are waiting on and the

xrays should tell us more.