Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 I hope everyone had a wonderful holiday. Thanks everyone for all your advice on my last post...it was very helpful. MC's toe was always swollen for 7 weeks but now it's more like it comes and goes. One day it will look pretty good and then the next day she wakes up and it's swollen again. Same with her finger. She doesn't complain about it as much as she did at first. Is this normal? I guess in my mind I thought if it was swollen to start with then it would stay that way... Thanks! Micah Mom to 2.5 PFS?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 Yes that is normal. They do not always have the swelling. Some days my son's toes (or fingers) would be swollen, sometimes not. That is why people say to keep a journal or take pictures of the symptoms you can see, because some days when you go to dr the swelling is minimal. Hope this helps, Michele (20, spondy) ________________________________ From: [mailto: ] On Behalf Of Micah Barton Sent: Wednesday, December 26, 2007 7:40 AM Subject: Swelling Question I hope everyone had a wonderful holiday. Thanks everyone for all your advice on my last post...it was very helpful. MC's toe was always swollen for 7 weeks but now it's more like it comes and goes. One day it will look pretty good and then the next day she wakes up and it's swollen again. Same with her finger. She doesn't complain about it as much as she did at first. Is this normal? I guess in my mind I thought if it was swollen to start with then it would stay that way... Thanks! Micah Mom to 2.5 PFS?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Hi Robbin, Video camera is a GREAT idea!! You're right...it seems like everytime I take her to the doctor...no fever, rash, etc. I start to wonder if they think I'm crazy!! > > Micah, > is going on her 18th year with JA. All these years with the > swelling issue. can flare with swelling or she can flare without > swelling. I do remember that when she was younger she would have to write in school > and within 10 or 15 minutes her hand would swell so bad. It would take a few > hours for it to go down. When she swells now it is there for several days. > When she had her worse flare she stayed swelled up for Months as her left leg > was 3 times the size of her right leg. Swelling can come and go with JA. They > can flare with or without swelling. > I tell everyone to take measurements of the joints as this can help when > swelling is not seen good with the eye. This also helps when talking with the > Dr over the phone. As he can tell by the Measurement how much swelling is > going on. You can actually give the Dr a measurement to keep in the childs file > so if you have to call him he can look at it. Taking pictures helps as well. > With this day and time of Technology. Take a picture and send to the Dr via > email lololol. Saves a trip to the office most of the time. Taking a picture > of a rash and sending it to him will help as well. If you have a Video Camera > take some Video and date it. This can help you as well. How you may ask? If > you Video how the child is at home and you visit the Dr take this with you so > he can see what is going on at home. Since a Doctor is never around when > thing's happen the next best thing to being there is video. :-). > Always date the Documents such as Video and Pictures. Always keep the > originals with you and let the Dr have a copy. > Robbin > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
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