Re: update on Aundrea/'Beth

December 15, 2007

Beth:

That would be what I would wish for Christmas...that the both of you find

answers for your daughters....

how's the weather there?

Ice is coming down here...

and Rob 18 JAS

update on Aundrea

>

> Hello All,

>

> I have been pretty hit and miss lately with posting but thought

> I'd

> give an update.

>

> Aundrea enjoyed and awesome summer and early fall. Rarely had

> any

> pain and was able to do all the things that she loves. Lots of

> bike

> rides, swimming, hiking etc.

>

> The school year started off so much better than last year. She

> wasn't having any absences and she was excited about making

> honor

> roll and totally enjoying her new 7th grade teachers.

>

> November came and the signs of joint pain returned along with

> fatigue. By December she has begun to miss lots of school. 3

> days

> last week and hasn't been able to go at all this week. The joint

> pain has returned to her fingers, wrists, knees, ankles and

> toes.

> She is taking lots of hot baths, heat pad, and sleeping. Sore

> throat

> and swollen lymph nodes again.

>

> I have a 504 meeting planned for Monday morning. Aundrea was

> kind of

> depressed yesterday and angry about being in pain. She is

> adamant

> that she is done with drugs and said they have never helped and

> only

> make her feel worse. (same story for 5 years now)

>

> So, it leaves me at a quandry as to what to do. We can always do

> the

> the therapeutic options but of course that is unlikely to ever

> take

> away the flare. So, at this point I am just hoping that it wont

> be

> as long-lasting as it was last year.

>

> I know there are so many others that I have followed on this

> list

> that have children with similar issues and few answers. If

> anyone

> ever comes across a specialist that helps children who have

> chronic

> joint and muscle pain with limited inflammation please let me

> know.

> Also if anyone comes across other diagnosis/treatment

> considerations

> I would love to hear it.

>

> Blessings,

>

> (Aundrea age 12 systemic jra/gerd for lack of a more

> conclusive

> dx. this is the one that we stick with)

>

December 15, 2007

Hi :

It's cold. The " ice storm " they talked up so greatly on Tuesday here was not

nearly as much ice as it was snow. We got about a 1/4 inch of ice before it

turned to all snow. And snow it did. I think the bullseye was right over us.

We got over 7 inches from 9 a.m. until it stopped at 2 p.m. That's a lot of

snow in a short time. They are predicting more snow for the weekend. I guess

the snowplow Mike bought a few weeks ago will pay itself off at this rate!

Hannah was supposed to go to Children's that day to see her allergy/immunology

doctor, but there was no way I driving the freeway in that. I got her

rescheduled for next week. I'm hoping maybe she will consider food allergy

testing for Hannah, not only for her asthma, but maybe as a migraine trigger

too.

How are you feeling? I had the stomach yuck going around on Thursday and it

sent my joints into a huge tizzy. Makes all the things I have left to do quite

challenging..grrr When does Rob come home for break?

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)