Re: is' rheumy appt.

[Guest guest]

Raquel - I might be wrong but isn't amtriptyline an anti depressant? I would go for a second opinion. Sandi Ken Hunter (9 Systemic)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

She didn't do blood work??? The amplified pain syndrome is Reflex Sympathetic Dystrophy.... or RSD which can cause A LOT of pain and that might be why it hurts her SO bad to stand and so badly to do so many activities. I had mentioned Fibromyalgia earlier because of something you had mentioned with is but I can't remember what at this point. RSD and FMS are often .... well they aren't the same but they are similar in presentation. Only thing thats odd is that RSD is ussualy caused from an initial injury that for one reason or another turns into a nerve pain amplification syndrome. Physical therapy is often one of the best treatments for it along with good sleep and massage therapy. I guess they use PT if regular exercise doesn't help. You can read about it online of course.

The amitriptyline is commonly used for fibro people to help sleep which of course can improve the pain... If she has RSD, it does tend to be treatable which is great. On the other hand, I'm really bothered that this doctor didn't even do lab test and just did an exam, said no arthritis and than left it like that...... the end. That's very.... sounds a lot like my ped rheumy I had.. .lol. Naprosyn can still help with the pain even without inflammation and that is likely why she said to stay on that. If it's possible, get a 2nd opinion... it just doesn't seem that this doctor (wonderful reputation aside) was through.... seems she just did an exam and didn't find any of the 'typical text book signs' and than concluded, she has RSD..... which also ussualy only affects one particular area too..... sometimes it spreads but it will ussualy start with an injury and than focus intense nerve pain to that area until the person holds the area frozen... and sometimes the pain will begin to spread out after that.... I don't see how she could just conclude that.... in one visit... Anyways.. good fortune....IssadoraOn 10/10/07, raquels_cakes <raquels_cakes@...> wrote:

Her drs appt went rather strange. I'm not quite sure to be happy or

not.

1st the heel pain is from the tendons on the bottom of her foot.

basically her foot is growing too fast and the tendons just need to

catch up.

2nd She had 2 ear infections during the summer and that is what

caused an arthritic type reaction to start about 4-6 weeks later.

The prednisone helped with that.

3rd She has Amplified Musculoskeletal or Refles Neurovascular

Dystrophy

with this she says exercise that will increase her breathing and

heart rate (to produce more endorphens) and sleeping pill to help her

sleep.

I'm not sure what to think about this cause all she did was praise

this dr david sherry like he was a saint and she bowed to him.

The dr said is showed no signs of arthritis, don't do any labs or

x-rays or mri or anything. She barely agreed to see her again in 1

month. I asked 3 different ways how long to see this get better and

no straight answer. Physical therapy....... no. Join the YMCA or

take dance. The sleeping pill is 10mg amitriptyline. Continue with

the Naproxen, why? She said there was no inflamation.

I'm just not sure what to think. Right now I guess we will try to

exercise daily and get better sleep and then go from there.

Raquel & is

-- " I am not sick. I am broken. But I am happy as long as I can paint. " --Frida Kahlo

[Guest guest]

Raquel

It sound like they are saying she had a reactive arthritis, which they attribute to the infection. Many of our kids started with that diagnosis. Rheumatologists are reluctant to assign an arthritis diagnosis when there could be a reactive arthritis going on. They tend to watch the children over time, and if symptoms do not abate, throw out the reactive arthritis diagnosis only when enough time has elapsed (whatever their own personal interpretation of that is).

I think the main reason is that many are reluctant to prescribe the more powerful medications (i.e, methotrexate) if they may be dealing with a reactive arthritis, which usually runs its course and then goes away. Unfortunately, it is a waiting game, waiting to see if your child will get better, with the horrible, gut-wrenching, seemingly forever length of time watching your child in pain. It stinks!The amitriptyline is generic Elavil. It used to be prescribed primarily for depression, but they have since found it useful for all kinds of pain syndromes, neuropathy, as well as assisting with sleep.

I would do as you said, increase her exercise, hopefully she will get more sleep, and keep a diary of her daily pain and how she is doing, also keep a record of her exercise so when you go back you can show your doctor what has been going on and what worked and what didnt. It is a process, unfortunately, but we can only pray that she is right and all these things will help is get better!!

PS There are some wonderful heel stretches she can do that are easy, they helped Rob a lot with his heel pain...

We are here for you!! and Rob 18 Spondy is' rheumy appt. > Her drs appt went rather strange. I'm not quite sure to be > happy or > not.> > 1st the heel pain is from the tendons on the bottom of her > foot. > basically her foot is growing too fast and the tendons just need > to > catch up.> > 2nd She had 2 ear infections during the summer and that is what > caused an arthritic type reaction to start about 4-6 weeks > later. > The prednisone helped with that.> > 3rd She has Amplified Musculoskeletal > or Refles Neurovascular > Dystrophy > with this she says exercise that will increase her breathing and > heart rate (to produce more endorphens) and sleeping pill to > help her > sleep.> > I'm not sure what to think about this cause all she did was > praise > this dr david sherry like he was a saint and she bowed to > him. > > The dr said is showed no signs of arthritis, don't do any > labs or > x-rays or mri or anything. She barely agreed to see her > again in 1 > month. I asked 3 different ways how long to see this get > better and > no straight answer. Physical therapy....... no. Join > the YMCA or > take dance. The sleeping pill is 10mg amitriptyline. > Continue with > the Naproxen, why? She said there was no inflamation.> > I'm just not sure what to think. Right now I guess we will > try to > exercise daily and get better sleep and then go from there.> > Raquel & is> >

[Guest guest]

amitiptyline (elevil) is a trycyclic antidepressant.... it is commonly used with pain amplification syndromes such as RSD, FMS, etc...It is used to help with sleep and can sometimes help increase pain relief particularly in pain amplification disorders due to the neurotransmitters that are all soo intertwined with pain, and things like depression. So yes, it is a antidepressant but just wanted to emphasize that it is commonly used esp in the diagnosis is got although I think a second opinion is needed as well. Issadora

On 10/11/07, deerhuntert6@... <deerhuntert6@...> wrote:

Raquel - I might be wrong but isn't amtriptyline an anti depressant? I would go for a second opinion. Sandi Ken Hunter (9 Systemic)

See what's new at AOL.com and Make AOL Your Homepage

..

-- " I am not sick. I am broken. But I am happy as long as I can paint. " --Frida Kahlo

[Guest guest]

Raquel,

When I read your first email on the Dr visit. I seen the amtriptyline as what the Dr gave is. I knew had been on it but not as a sleep Drug. It is used for someone with Nerve Issues or as a Anti Depressant. was on it due to her Headaches from the Psuedo Tumor Celebri . Didn't do to much good for her. As I save all the medication bottles she has taken pills in which she could not take have pill in the bottles meaning she had a reaction to them or the medication didn't work.

A lot of Drs will not give kid's under 14 anything to help them sleep. They will tell you to use Benedryl as a sleep agent. I would go for a second opinion.

RobbinSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Thank You so much for the advice. I was thinking of keeping the

journals and waiting to see what happens but it took soooo long to

get the first opinion that I believe I will go ahead and get a visit

with someone different and when the time comes decide then if she

needs to go. She didn't sleep any longer today (schools out today).

Not sure yet if she got good sleep yet. Right now she is just laying

around watching tv. I'm ok with this diagnosis and the sleep pill as

long as I see a differance soon. I'm not waiting for long though.

I have read about how very painful this thing can be. The dr thinks

that this was brought on cause we moved and she had to change

schools. But is was totally OK with it. We did live in the

country and she had no one to play with and visit. Now she has

friends right next door and around the block, a community pool she

went to with her friends and her school offers so much more. She is

happy and trying so hard in school. This shouldn't be the problem.

Thanks for the feed-back. Even though she doesn't have an arthritis

diagnosis I hope I'm still welcome here.

Raquel

>

> Raquel,

> When I read your first email on the Dr visit. I seen the

amtriptyline as

> what the Dr gave is. I knew had been on it but not as

a sleep

> Drug. It is used for someone with Nerve Issues or as a Anti

Depressant.

> was on it due to her Headaches from the Psuedo Tumor Celebri .

Didn't do to

> much good for her. As I save all the medication bottles she has

taken pills in

> which she could not take have pill in the bottles meaning she had

a reaction

> to them or the medication didn't work.

> A lot of Drs will not give kid's under 14 anything to help

them sleep.

> They will tell you to use Benedryl as a sleep agent. I would go

for a second

> opinion.

> Robbin

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

Just thought I would share that this drug is used in lower dosages for people who have trouble sleeping. My hubby takes it everynight due to tension headaches. He used to have them every day all day long and since being on this med for over a year he has not had a single one.

Sending prayers & happy thoughts,

Beth :-)

Re: is' rheumy appt.

Raquel - I might be wrong but isn't amtriptyline an anti depressant? I would go for a second opinion. Sandi Ken Hunter (9 Systemic)

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Raquel, you are definitely welcome here. We have been at this with Hannah for 20 months and are finally going to a new rheumy hopefully by Thanksgiving. Everyone here has support Hannah and I even though we don't have a real diagnosis.

Let us know how is does.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

Re: is' rheumy appt.

Thank You so much for the advice. I was thinking of keeping the journals and waiting to see what happens but it took soooo long to get the first opinion that I believe I will go ahead and get a visit with someone different and when the time comes decide then if she needs to go. She didn't sleep any longer today (schools out today). Not sure yet if she got good sleep yet. Right now she is just laying around watching tv. I'm ok with this diagnosis and the sleep pill as long as I see a differance soon. I'm not waiting for long though. I have read about how very painful this thing can be. The dr thinks that this was brought on cause we moved and she had to change schools. But is was totally OK with it. We did live in the country and she had no one to play with and visit. Now she has friends right next door and around the block, a community pool she went to with her friends and her school offers

so much more. She is happy and trying so hard in school. This shouldn't be the problem.Thanks for the feed-back. Even though she doesn't have an arthritis diagnosis I hope I'm still welcome here.Raquel>> Raquel,> When I read your first email on the Dr visit. I seen the amtriptyline as > what the Dr gave is. I knew had been on it but not as a sleep > Drug. It is used for someone with Nerve Issues or as a Anti Depressant. > was on it due to her Headaches from the Psuedo Tumor Celebri . Didn't do to > much good for her. As I save all the medication bottles she has taken pills in > which she could not take have pill in the bottles meaning she had a reaction > to them or the medication didn't work.

> A lot of Drs will not give kid's under 14 anything to help them sleep. > They will tell you to use Benedryl as a sleep agent. I would go for a second > opinion. > Robbin> > > > ************ ********* ********* ******** See what's new at http://www.aol. com>

[Guest guest]

Yes, amitryptyline is an antidepressant but it is a wonder drug for sleep and for nerve pain. It is used by many for these reasons.--edeerhuntert6@... wrote: Raquel - I might be wrong but isn't amtriptyline an anti depressant? I would go for a second opinion. Sandi Ken Hunter (9 Systemic) See what's new at AOL.com and Make AOL Your Homepage.

Pinpoint customers who are looking for what you sell.

[Guest guest]

Sorry your appointment was not more helpful. Not sure why the random comment about Dr. Sherry but he is a wonderful doctor and a big one on the forefront of JRA. The Seattle area lost an excellent doctor when he moved away. Has she seen Dr. Sherry? If not and you can I would recommend him. If you have seen him and had bad luck, that is really too bad because he is an excellent doctor.--e

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[Guest guest]

No she has not seen dr sherry we live in nashville tn. is' dr

just talked so highly of him almost obsesively.

After reading on the internet more about this disease I feel more

comfortable with this diagnosis. I am still concidering a 2nd

opinion. But just after having 1 better night of sleep she was doing

cartwheels yesterday. Her sleeping pills made her drowsy all day on

friday. But I'm hoping she will get used to that.

Thanks

Raquel

>

> Sorry your appointment was not more helpful. Not sure why the

random comment about Dr. Sherry but he is a wonderful doctor and a

big one on the forefront of JRA. The Seattle area lost an excellent

doctor when he moved away. Has she seen Dr. Sherry? If not and you

can I would recommend him. If you have seen him and had bad luck,

that is really too bad because he is an excellent doctor.--e

>

>

>

> ---------------------------------

> Take the Internet to Go: Go puts the Internet in your pocket:

mail, news, photos & more.

>