Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Tracey, Did you tell me that you are seeing Dr. Hoeltzel, or that you have seen him yet? Dr. J. seems to think he is a very good doctor and was quite alright with me leaving Dr. L. in the dust. I had talked with a about Dr. L. telling me that the ped could just take care of Jaye from now on the last time we saw her and a did not think to highly of that. When I talked with Dr. J. yesterday he told me that if he felt comfortable treating Jaye for the JRA then he would not have sent me to a specialist in the first place. He said he most certainly wants a rheumy on board. I am just wondering what to expect from him. Will he give us more then five minutes of his time or will he be in a hurry to get out the door? It is easier to prepare for a Dr. visit when you know how to approach them. I guess I will just go in and ask all my questions and hope to not irritate him. Jaye's knees are still swollen and have fluid all around, the right knee is the worst and a friend of mine that is an RN said it is warm. I feel the two and they feel basically the same to me I can not feel the difference in them. She assured me that there is a definate difference. Dr. J. did not want to run any tests or blood work and did not see any reason for me to take Jaye in to see him between now and then appointment unless she has other issues. He said that if he ran any tests he figured they would not be what the rheumy would want and no need to do an excess of stuff or have to stick her twice. So one week from tomorrow and we will be off and running to Kansas City for a day of fun filled excitement. Well we hope to be able to afford the gas and a stop at Mcs for lunch. I am going to have to put new tires on my van between now and then also and not sure where that $$ will come from either. Veri & Jaye Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Veri, We haven't met Dr. Hoeltzel yet, Madi has been seeing Dr. Lasky. I guess we were kind of blunt at her first appt. We shared with him how we felt about Dr. L and basically told him we were " shopping for a rheumy. " He spent about an hour and a half with us her first appt., and answered all the questions we had, told us what his approach would have been from the beginning, etc., and we figured out a treatment plan. If I were you, I'd have all your questions written down that you for sure want to cover-even the little things, and make sure they do a full exam of all her joints. Don't worry about irritating them-if your personalities clash, you'd want to know right away and you could see another doctor there the next time. At Madi's last appt. we saw a PA? first-can't remember her name, but she did what Dr. Lasky normally does and then he came in and did it again. We have been getting labs done after her appts. in the outpatient lab at the hospital so we haven't been to Dr. J in a looooong time! (And by the way, at least you talked to Dr. J first about seeing a different rheumy. I just got fed up and switched and told him after the fact.) Another thought-their cafeteria has some decent food- we've eaten there several times, and if you have to make a follow-up appt. for Jaye in Nov., Madi has one 11/19 at 2pm., you are welcome to ride along with us that day-I can't save you the hours, but I could save you the gas $$. ;-) I'm really hoping Jaye's joints are an easy fix. Is she taking any meds now? Thinking of you, Tracey and Madi > > Tracey, > > Did you tell me that you are seeing Dr. Hoeltzel, or that you have seen him yet? Dr. J. seems to think he is a very good doctor and was quite alright with me leaving Dr. L. in the dust. I had talked with a about Dr. L. telling me that the ped could just take care of Jaye from now on the last time we saw her and a did not think to highly of that. When I talked with Dr. J. yesterday he told me that if he felt comfortable treating Jaye for the JRA then he would not have sent me to a specialist in the first place. He said he most certainly wants a rheumy on board.? I am just wondering what to expect from him. Will he give us more then five minutes of his time or will he be in a hurry to get out the door? It is easier to prepare for a Dr. visit when you know how to approach them. I guess I will just go in and ask all my questions and hope to not irritate him.? Jaye's knees are still swollen and have fluid all around, the right knee is the worst and a friend of mine that is an RN said it is warm. I feel the two and they feel basically the same to me I can not feel the difference in them. She assured me that there is a definate difference. Dr. J. did not want to run any tests or blood work and did not see any reason for me to take Jaye in to see him between now and then appointment unless she has other issues. He said that if he ran any tests he figured they would not be what the rheumy would want and no need to do an excess of stuff or have to stick her twice. So one week from tomorrow and we will be off and running to Kansas City for a day of fun filled excitement. Well we hope to be able to afford the gas and a stop at Mcs for lunch. I am going to have to put new tires on my van between now and then also and not sure where that $$ will come from either. > > Veri & Jaye > > > ______________________________________________________________________ __ > Email and AIM finally together. You've gotta check out free AOL Mail! - http://mail.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Tracey, That is right, now I remember the name of the Dr. that you said you had seen. I just could not remember. I am not really worried about making him mad, I just prefer to have an idea of what I am walking into before I get there. But since I don't we will do fine. I would love the chance to travel up there with someone else but we will not be able to do it in November. November is the last day for our Operation Christmas Child Relay Center here at the church. And I am in charge of that again this year and will have to close everything out. Also we are leaving on the 20th to go to San for Thanksgiving. There is a young couple here in our church that will be going to see their family in San for Thanksgiving also and we are going to travel together to save money for that. My brother is stationed at Lackland Airforce Base and so we will go to see him. Without someone helping me with the gas $$$ I certainly would not be making that trip. When I read your posts I am glad to see that Madi is improving. Jaye is not on any med's right now other then tylenol & naproxin. Veri & Jaye 13 poly Re: Tracey & Madi Veri, We haven't met Dr. Hoeltzel yet, Madi has been seeing Dr. Lasky. I guess we were kind of blunt at her first appt. We shared with him how we felt about Dr. L and basically told him we were "shopping for a rheumy." He spent about an hour and a half with us her first appt., and answered all the questions we had, told us what his approach would have been from the beginning, etc., and we figured out a treatment plan. If I were you, I'd have all your questions written down that you for sure want to cover-even the little things, and make sure they do a full exam of all her joints. Don't worry about irritating them-if your personalities clash, you'd want to know right away and you could see another doctor there the next time. At Madi's last appt. we saw a PA? first-can't remember her name, but she did what Dr. Lasky normally does and then he came in and did it again. We have been getting labs done after her appts. in the outpatient lab at the hospital so we haven't been to Dr. J in a looooong time! (And by the way, at least you talked to Dr. J first about seeing a different rheumy. I just got fed up and switched and told him after the fact.) Another thought-their cafeteria has some decent food- we've eaten there several times, and if you have to make a follow-up appt. for Jaye in Nov., Madi has one 11/19 at 2pm., you are welcome to ride along with us that day-I can't save you the hours, but I could save you the gas $$. ;-) I'm really hoping Jaye's joints are an easy fix. Is she taking any meds now? Thinking of you, Tracey and Madi > > Tracey, > > Did you tell me that you are seeing Dr. Hoeltzel, or that you have seen him yet? Dr. J. seems to think he is a very good doctor and was quite alright with me leaving Dr. L. in the dust. I had talked with a about Dr. L. telling me that the ped could just take care of Jaye from now on the last time we saw her and a did not think to highly of that. When I talked with Dr. J. yesterday he told me that if he felt comfortable treating Jaye for the JRA then he would not have sent me to a specialist in the first place. He said he most certainly wants a rheumy on board.? I am just wondering what to expect from him. Will he give us more then five minutes of his time or will he be in a hurry to get out the door? It is easier to prepare for a Dr. visit when you know how to approach them. I guess I will just go in and ask all my questions and hope to not irritate him.? Jaye's knees are still swollen and have fluid all around, the right knee is the worst and a friend of mine that is an RN said it is warm. I feel the two and they feel basically the same to me I can not feel the difference in them. She assured me that there is a definate difference. Dr. J. did not want to run any tests or blood work and did not see any reason for me to take Jaye in to see him between now and then appointment unless she has other issues. He said that if he ran any tests he figured they would not be what the rheumy would want and no need to do an excess of stuff or have to stick her twice. So one week from tomorrow and we will be off and running to Kansas City for a day of fun filled excitement. Well we hope to be able to afford the gas and a stop at Mcs for lunch. I am going to have to put new tires on my van between now and then also and not sure where that $$ will come from either. > > Veri & Jaye > > > __________________________________________________________ __ > Email and AIM finally together. You've gotta check out free AOL Mail! - http://mail.aol.com > Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Veri- We just made our haul there and back on Thursday-well, actually we spent the night and took the kids to Science City on friday since it was their spring break. We were supposed to meet Dr. Hoeltzel (I'm having such a hard time with his name...) at this appt., but they had a few patients show up that weren't on the schedule and things got busy really quick. Madi's next appt. is in May with Dr. Hoeltzel at the south campus though. I'm not sure what type of resource he's talking about, but Madi qualified for medicaid as a secondary-until this year, and now we have something called services for children with special health care needs. (Hence the reason we are starting to see Dr. Hoeltzel, they'll only cover KS doctors since it's a state program.) Anyway, they cover medications, doctor visits, labs and I think x-rays-specifically tied to the jra diagnosis. We haven't really used it yet, so I'm not sure how it works, but it might be something you could look into also. I could give you the name of the lady I've spoken with and the # to reach her if you'd like. I don't recall if I've asked if they help cover the travel expenses for appts-something to look into for next time. So how is Jaye doing these days? Madi seems to be doing pretty well. I always hate to say that because I don't want to jinx it. We are having some serious issues getting her shots in her each week, but I know she'd be in pain if we didn't continue. We try to explain to her that she'd have lots of owies if she didn't take her shots, and she tells us no, it's you who give me owies. Breaks my heart to hear her say that, but in a way it's kind of a blessing to think she may not remember being in so much pain. Hoping Jaye is doing better. ((hugs)) Tracey and Madi 3 systemic --- In , veristroud@... wrote: > > Tracey, > > Just wondering if you have made your trip to Kansas City this month yet. We were up there on Monday last week and had a good appointment. I did learn that they have some sort of resources to help pay for expenses of the trip. I am not sure what the resources are and what it takes to qualify but I intend to find out. > While we were visiting with Dr. Hoetzel he asked about our trip up and wondered if insurance would help pay for any of the?expenses. Of course I said no. He asked if it would be ok to have a social worker from the hospital to contact me about the resources they have to help with meals, lodging and travel expenses. I told him that I would be glad to talk to them but I did not know if I would qualify since I only travel 180 miles to get there. He just kind of laughed at me and said that he appreciated that I was not complaining about having to travel that far. I explained to him that I know of many parents to travel much further then 3 hours to their rheumy. He said well he understood that since he has patients that come in from Colorado as well. But he also said that he has many parents that whine about the inconvenience of having to trave 30 miles to see him. He said he really liked my attitude. I told him that if I could just find a motel close to the hospital with a indoor pool that might give a discounted rate I would be thrilled. They have not contacted me yet but I will be interested to hear what they might have available to help. > > Veri & Jaye 14 poly > > > Quote Link to comment Share on other sites More sharing options...
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