Guest guest Posted November 13, 2010 Report Share Posted November 13, 2010 I hope the new antibiodic works quickly and she starts to feel better. Amy - Avery 17 systemic ________________________________ From: " Tepper, Michele " <MTepper@...> " " < > Sent: Fri, November 12, 2010 1:30:10 PM Subject: RE: Jaye I hope the meds work and she is feeling better by Monday. It would be nice to be able to comfort our " big kids " in the same way as when they were smaller than us, but just your being there, giving a hug, means a lot you know. Hugs, Michele (23,spondy) From: [mailto: ] On Behalf Of veristroud@... Sent: Friday, November 12, 2010 1:25 PM Subject: Jaye Well we went to the clinic today and as I had about figured out on my own, the antibiotic Jaye is on for her sinus infection is not working. So she got a shot of Rocephin to try and get through. Her ears are now infected, and her sinuses are still very swollen. She has been on Cedax for 15 days and not getting any better. Of course this is probably a good part of why her joints are giving her so many fits. She is just miserable. They said to go ahead and continue the Cedax and hopefully along with the injection and some steroidal nasal spray it should help. She is still coughing and just achy. They talked about hitting her hard with steroids but since the rheumy just took her off of oral steroids they hesitated. I guess depending on where she is on Monday will determine our next step. If better then great if not we are back to the ped's office to see what next. I hate the changing of meds and not knowing what is going adversly affect her. Between the meds she is on and the ones she is allergic to it often takes a bit for the doctor to determine what should work that will not cause adverse reactions by mixing meds. I remember the so many trips to the doctor when she was younger and she would just curl up in my lap and sleep while we were waiting for the doctor or nurse. Now she is taller then I am and I know she still wishes she could curl up in my lap, and I do too. At least then it would be easier to comfort her. Veri & Jaye 16 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 Thinking of you Veri, and hoping Jaye is feeling better very soon. nn (, 9, systemic) > > > Well we went to the clinic today and as I had about figured out on my own, the antibiotic Jaye is on for her sinus infection is not working. So she got a shot of Rocephin to try and get through. Her ears are now infected, and her sinuses are still very swollen. She has been on Cedax for 15 days and not getting any better. Of course this is probably a good part of why her joints are giving her so many fits. She is just miserable. They said to go ahead and continue the Cedax and hopefully along with the injection and some steroidal nasal spray it should help. She is still coughing and just achy. They talked about hitting her hard with steroids but since the rheumy just took her off of oral steroids they hesitated. I guess depending on where she is on Monday will determine our next step. If better then great if not we are back to the ped's office to see what next. I hate the changing of meds and not knowing what is going adversly affect her. Between the meds she is on and the ones she is allergic to it often takes a bit for the doctor to determine what should work that will not cause adverse reactions by mixing meds. I remember the so many trips to the doctor when she was younger and she would just curl up in my lap and sleep while we were waiting for the doctor or nurse. Now she is taller then I am and I know she still wishes she could curl up in my lap, and I do too. At least then it would be easier to comfort her. > > Veri & Jaye 16 poly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 Thanks for all the encouraging words. Jaye is doing better then she was by far but still not at the top. She did not make it on time for school but she made it late and should make it through the day. She decided to tell me today that she is having a tough time getting to sleep at night that her mind just wont shut down. She seems to think that started about the time she started on this antibiotic she on. Now we are on day 16 or 17, I have no idea if that could be a reaction to the med or if that med could be reacting with one of her other meds. She had her first dose of the increased MTX this weekend on Friday night, slept til 1:30 on Saturday and was nauscious. I wonder if that was from the mtx. She is now on 25mg per week. We will see how she does this week. I told her no missing school or her weekend is out. Last week she missed three days. Today, she really wanted to stay home and used the fact that I now have pneumonia as " well I could help take care of you " and " I am worried about you being home alone. " Re: Jaye Thinking of you Veri, and hoping Jaye is feeling better very soon. nn (, 9, systemic) > > > Well we went to the clinic today and as I had about figured out on my own, the antibiotic Jaye is on for her sinus infection is not working. So she got a shot of Rocephin to try and get through. Her ears are now infected, and her sinuses are still very swollen. She has been on Cedax for 15 days and not getting any better. Of course this is probably a good part of why her joints are giving her so many fits. She is just miserable. They said to go ahead and continue the Cedax and hopefully along with the injection and some steroidal nasal spray it should help. She is still coughing and just achy. They talked about hitting her hard with steroids but since the rheumy just took her off of oral steroids they hesitated. I guess depending on where she is on Monday will determine our next step. If better then great if not we are back to the ped's office to see what next. I hate the changing of meds and not knowing what is going adversly affect her. Between the meds she is on and the ones she is allergic to it often takes a bit for the doctor to determine what should work that will not cause adverse reactions by mixing meds. I remember the so many trips to the doctor when she was younger and she would just curl up in my lap and sleep while we were waiting for the doctor or nurse. Now she is taller then I am and I know she still wishes she could curl up in my lap, and I do too. At least then it would be easier to comfort her. > > Veri & Jaye 16 poly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 Pneumonia? Oh, Veri, I hope you are feeling better soon! I'm glad that Jaye felt well enough to get off to school. Take good care. nn (, 9, systemic) > > > > > > Well we went to the clinic today and as I had about figured out on my own, the antibiotic Jaye is on for her sinus infection is not working. So she got a shot of Rocephin to try and get through. Her ears are now infected, and her sinuses are still very swollen. She has been on Cedax for 15 days and not getting any better. Of course this is probably a good part of why her joints are giving her so many fits. She is just miserable. They said to go ahead and continue the Cedax and hopefully along with the injection and some steroidal nasal spray it should help. She is still coughing and just achy. They talked about hitting her hard with steroids but since the rheumy just took her off of oral steroids they hesitated. I guess depending on where she is on Monday will determine our next step. If better then great if not we are back to the ped's office to see what next. I hate the changing of meds and not knowing what is going adversly affect her. Between the meds she is on and the ones she is allergic to it often takes a bit for the doctor to determine what should work that will not cause adverse reactions by mixing meds. I remember the so many trips to the doctor when she was younger and she would just curl up in my lap and sleep while we were waiting for the doctor or nurse. Now she is taller then I am and I know she still wishes she could curl up in my lap, and I do too. At least then it would be easier to comfort her. > > > > Veri & Jaye 16 poly > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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