RE: Arthritis in the spine?

[Guest guest]

Hello

I find this interesting although I don't know if what I have to say i significant. Of course there are the spondyloarthropapies (Sp?) that can exhibit themselves in spine pain.

Anyways, some things I can share is this... My arthritis started out with a lot of spine/back pain. It has always been a problem for me and my biggest complaint since I was around 4ish-5. I do have a mild curvature in my thorasic spine.. only 5-6 degrees I believe I was last told. I also have had sorta flat arches and while this is not ussualy painful, it has been for me. It's possible that this is why I have had so much concentration of spine pain.

My doctors and latter pedi rheumy's just chalked it up to the JRA/FMS but still.. im 29 now and my spine is still the worse most persistant area of pain for me. Nothing seem's to relieve it and despite meeting so many others with JRA.... this doesn't seem to be a common primary issue. At least I haven't heard anyone talk about spine pain being their number 1 complaint besides those with AS.

So not sure if this helps and have to see what others have to add but just thought i would add that I can relate ofr sure! One thing that they did try and help me with is mobilization to my spine as well as strenghtening the muscles in the stomach and other areas that support posture to try and decrease spine pain. Most chairs cause me pain including my wheelchair and the straighter the chair, the better but needs to be pressure relieving. Sleeping is a major issue with the spine as well.

I know that it is my earlier and most persistant memory of pain and I found backpacks very frustrating over the years as well as playing the cello.... the positioning was hard on me with my spine as well.

So i suggest bugging the doctors about it.. even with their.. it's 'extremely rare' in kids.. the point is your child says her back is hurting... something needs to be done.. rare or not!

Okay... good fortune

Issadora

On 7/11/07, Sheryl <taylorsmomma@...> wrote:

Hello all,I have been lurking, but not posting much. The kids and other issueskeep me rather busy!I do have a question. Does anyone have a child that has arthritis intheir spine? The reason I am asking is that my daughter (3) complains

of her back hurting often. This has been going on for some time. Sheis uncomfortable in the car seat, will cry if she is slouching a bitfor some reason, and generally complains of her back hurting her.

At her last rheumy appointment, I asked about it and was told that itwas very rare for kids to have arthritis in their backs. Yet this isone of her only common complaints, leading me to believe that itreally is an issue. I am already concerned because her right knee is

bothering her again and we just had a steroid injection in that kneein March. She is taking Naproxen and I just hate to think we need tomove her to Methotrexate, but she just seems to be getting worse,rather than better.

We do plan to talk to our new chiropractor about her and her issues,and maybe that will shed some light on things, but do I need to pushthis issue with the rheumy? Any insight? Thanks,Sheryl

( - 3 (pauci JRA), - 8 months) -- " I am not sick. I am broken. But I am happy as long as I can paint. " --Frida Kahlo

[Guest guest]

Hi there

complains of backpain all the time, we took her to a

chiropractor and he helped reesolve some of her pain issues but we

stopped after she was diagnosed with Arthritis. Ed our Chiropractor

was wonderful and spotted the arthritis long before the doctors did.

I havent taken her back yet as she is recieving treatment from

Occupational Therapy and Physiotherapy so i felt that one may

contradict the other. If your child is complaining then the doctors

HAVE to listen, you are her only means of a voice.

s arthritis is in her neck, spine, hips, knees, arms, hands,

feet and ankles and she has fluid pockets on her ribcage and shoulder

blades. this i have been told is unusual but for its becoming

her normal.

If she is complaining then its real huni..... i am mid debate with

one of s Paed Rhumeys.... he wants her to continue with her

methotrexate by mouth but she vomits for 2 days afterwards with it.

I want her changed to injections which although worse because of the

needle would stop her being physically ill for 2 days afterwards as

it would bypass her tummy.

Being a mum with one of our special children isnt easy BUT we are

blessed to be given the chance to look after them and help them grow

up

Blessings

and who is now 11

Enthesitis Related Arthritis HLA B27 positive or Spondy as its know

outside of the UK.

SW Scotland

>

> Hello all,

>

> I have been lurking, but not posting much. The kids and other issues

> keep me rather busy!

>

> I do have a question. Does anyone have a child that has arthritis in

> their spine? The reason I am asking is that my daughter (3)

complains

> of her back hurting often. This has been going on for some time. She

> is uncomfortable in the car seat, will cry if she is slouching a bit

> for some reason, and generally complains of her back hurting her.

>

> At her last rheumy appointment, I asked about it and was told that

it

> was very rare for kids to have arthritis in their backs. Yet this is

> one of her only common complaints, leading me to believe that it

> really is an issue. I am already concerned because her right knee is

> bothering her again and we just had a steroid injection in that knee

> in March. She is taking Naproxen and I just hate to think we need to

> move her to Methotrexate, but she just seems to be getting worse,

> rather than better.

>

> We do plan to talk to our new chiropractor about her and her issues,

> and maybe that will shed some light on things, but do I need to push

> this issue with the rheumy? Any insight?

>

> Thanks,

> Sheryl

> ( - 3 (pauci JRA), - 8 months)

>

[Guest guest]

Hi,

I am new to posting but my daughters primary complaint for the past

year has been lower back pain. She currently takes MTX injections

weekly (in addition to sulfasalazine, celebrex, folic acid, prevacid

and muscle relaxers as needed for her back) I was told that the MTX

does not work well in the back. (The Methotrexate has been great for

her knees, hands, elbows and hips) She just recently had another MRI

and the problems is in her sacroiliac joint (SI joint) w/inflammation.

I think we will be going on Enbrel here shortly....Maybe it is

uncommon in someone as young as your daughter I don't know, but no one

ever questioned a when she complained or told us that it was rare.

Is it her upper back or lower back??? a's rib often goes out

causing upper back/shoulder blade pain..that is easily put back in

place by her physical therapist and her pelvis is often out which

causes more lower back pain again we love the therapist and she

straightens it out. I have never offered anyone advice let alone

talked about my problems, so I hope this helps a bit.

(a 13 poly JRA)

>

> Hello all,

>

> I have been lurking, but not posting much. The kids and other issues

> keep me rather busy!

>

> I do have a question. Does anyone have a child that has arthritis in

> their spine? The reason I am asking is that my daughter (3) complains

> of her back hurting often. This has been going on for some time. She

> is uncomfortable in the car seat, will cry if she is slouching a bit

> for some reason, and generally complains of her back hurting her.

>

> At her last rheumy appointment, I asked about it and was told that it

> was very rare for kids to have arthritis in their backs. Yet this is

> one of her only common complaints, leading me to believe that it

> really is an issue. I am already concerned because her right knee is

> bothering her again and we just had a steroid injection in that knee

> in March. She is taking Naproxen and I just hate to think we need to

> move her to Methotrexate, but she just seems to be getting worse,

> rather than better.

>

> We do plan to talk to our new chiropractor about her and her issues,

> and maybe that will shed some light on things, but do I need to push

> this issue with the rheumy? Any insight?

>

> Thanks,

> Sheryl

> ( - 3 (pauci JRA), - 8 months)

>

[Guest guest]

Arthritis in the spine/back is possible.

My son complained of pain in his lower back and hips, which actually turned out

to be the tendons of his pelvic rim. They were inflamed and that is when the

diagnosis of spondylitis was made. It was originally pauci jra, but as often

happens over time, the dr will find different areas of inflammation and a more

definitive diagnosis can be made. It is possible that your daughter is complaining

of her back hurting and on examination the rheumy may find a related area of

inflammation.  Michele ( 20, spondy)

From: [mailto: ] On Behalf Of Sheryl

Sent: Thursday, July 12, 2007

12:59 AM

Subject: Arthritis in the

spine?

Hello all,

I have been lurking, but not posting much. The kids and other issues

keep me rather busy!

I do have a question. Does anyone have a child that has arthritis in

their spine? The reason I am asking is that my daughter (3) complains

of her back hurting often. This has been going on for some time. She

is uncomfortable in the car seat, will cry if she is slouching a bit

for some reason, and generally complains of her back hurting her.

At her last rheumy appointment, I asked about it and was told that it

was very rare for kids to have arthritis in their backs. Yet this is

one of her only common complaints, leading me to believe that it

really is an issue. I am already concerned because her right knee is

bothering her again and we just had a steroid injection in that knee

in March. She is taking Naproxen and I just hate to think we need to

move her to Methotrexate, but she just seems to be getting worse,

rather than better.

We do plan to talk to our new chiropractor about her and her issues,

and maybe that will shed some light on things, but do I need to push

this issue with the rheumy? Any insight?

Thanks,

Sheryl

( - 3 (pauci JRA), - 8 months)