e

[Guest guest]

Hi e,

I remember YOU! Tell us about your first post op baby. I remember you were

pregnant but what did you have and how old now? Can't help you with the

vitamin question as I am MUCH too old for that. Would love to hear more

about how you are doing. Didn't your mom have the MGB too.

V

Re: vitamins and pregnancy after MGB

Hi Everyone:

I am 4 1/2 years out and doing great. I've already had one healthy

post-MGB baby and am preparing for a second. However, I cannot remember

what I did last time regarding my vitamins!! I know you can't take the

regular regimen (3 multiples a day) because of the possibility of too much

Vitamin A. But, I cannot remember how i modified it during my last

pregnancy. For those of you who have had post-MGB babies, how did you

modify your vitamins? I THINK I took one prenatal, one regular

multivitamin, a B complex, and iron.

Thanks in advance!

e

5/25/00 260/130 (got back to original weight after pregnancy too!)

[Guest guest]

Hee-hee! I could put one of my recent pics in Cancun on the fridge

for my 'heavy' encouragement. I banned the camera from the pool area

but we still have some pics from Chichen Itza!

Congrats on making it to week 8 Crystal! The first time I did BFL

(yeah, yeah, I know....its SUPPOSE to be for life, not 12weeks then

back to burritos!)I didn't have too much difficulty (I started on 9-

10-2001 yep, the day before THE 9-11), but all the OTHER times I

started I couldn't make it to week 3. Good for you on being over

half way through! I agree with you, at 5'9 1/2 " a size 1 or 3 would

look sickly on you. Even a size 5 may be pushing it. At my 5' 3 " , on

a good Texas hair day , and being small boned (3 1/2 wedding ring

size) when I get up to a 7 I look down-right matronly! I don't care

how many pounds I lose I just want to have muscle definition, a

flatter stomach and smaller rounder fanny that fits into my size 3's

if not 1's (I have to work too hard for the 1's unless my sluggish

metabolism decides to kick in for a change). I have never had a 6

pack but its been flat with the three vertical lines. No matter how

much I get down I will always be curvy and my legs will always be

big. Fine with me as long as they are muscular!

So far today, so good! I did my cardio and then an hour of yoga. I

have a gym membership but I do my UB weights at home and some cardio

& pilates. Hope your day is going well!

e

(PS: I have a great Aunt that lives in Wichita but haven't been

there for years)

> > > >

> > > > Well, here it is 2005 and .....oh my! What happened to my

BFL

> > body

> > > > from back in fall of 2001?!?!?!? My old pics are in Album 5

in

> > > size

> > > > 3 jeans. From that point I lost down to a size 1. At 'this'

> > point

> > > > my 'fat jeans' laugh at me (the size 1's hid in terror)!

> That's

> > > what

> > > > happens when you eat mucho Burrito Supremes! I started BFL

on

> > > Sunday

> > > > and took pics in swimsuit and my size 1 jeans...well, what I

> > could

> > > > fit into them which was only a little way up my thighs. (Ha!)

> It

> > is

> > > a

> > > > sad, sad sight to be sure but I have faith! I am now in my

> late

> > > 30's

> > > > and having hormone issues so it might take me longer but I

> WILL

> > DO

> > > > IT!!! I am a little sore today but so far, so good! I have

> > > approx.

> > > > 20-25lbs to get rid of (depending on muscle gain). I am in

> Texas

> > > and

> > > > it is already getting warm so I have GOT to get back into

> > swimsuit

> > > > shape!

> > > >

> > > > Good luck to everyone!

> > > > e

[Guest guest]

Glad to hear your BFL day went well. I had UBWO today, and did well,

my bicep curls went up(starting weight went up 4 lbs.) That's a good

thing:)I've started using a stability ball to do my DB flyes on and

various other exercises, and I absolutely love it. I was noticing

today, when I sit down on the bed to get dressed that my tummy

doesn't look like I'm a snowman, MELTING!! That's the only

description that comes to mind *giggle* I've lost the " top " roll,

and now just have one more(the lower abs) to go. Which, I'm sure

will be the hardest. I've also been doing the Ab Boot

Camp....woooweeee....talk about burn baby burn!!Anyway....it's time

to eat, hope tomorrow goes well for you:)

Crystal

> > > > >

> > > > > Well, here it is 2005 and .....oh my! What happened to my

> BFL

> > > body

> > > > > from back in fall of 2001?!?!?!? My old pics are in Album

5

> in

> > > > size

> > > > > 3 jeans. From that point I lost down to a size 1.

At 'this'

> > > point

> > > > > my 'fat jeans' laugh at me (the size 1's hid in terror)!

> > That's

> > > > what

> > > > > happens when you eat mucho Burrito Supremes! I started BFL

> on

> > > > Sunday

> > > > > and took pics in swimsuit and my size 1 jeans...well, what

I

> > > could

> > > > > fit into them which was only a little way up my thighs.

(Ha!)

> > It

> > > is

> > > > a

> > > > > sad, sad sight to be sure but I have faith! I am now in my

> > late

> > > > 30's

> > > > > and having hormone issues so it might take me longer but I

> > WILL

> > > DO

> > > > > IT!!! I am a little sore today but so far, so good! I

have

> > > > approx.

> > > > > 20-25lbs to get rid of (depending on muscle gain). I am in

> > Texas

> > > > and

> > > > > it is already getting warm so I have GOT to get back into

> > > swimsuit

> > > > > shape!

> > > > >

> > > > > Good luck to everyone!

> > > > > e

[Guest guest]

I think people feel insulted when they think their disability was given to

them by God, as a part of his plan. Looking through their point of view, a

God they believe in who is loving and merciful would never give out

diseases. I think that's the reasoning behind it.

But, as always, we each choose to believe what we want.

God Bless,

Meg.

Re: A thought/question regarding religion & SMA

I find it really interesting how many of the religious people on this list

find the idea offensive that a disability could be part of God's plan. I

don't

understand what sort of a plan it would be, if it didn't have adversity?

Personally, I find it much more reassuring and empowering to believe that it

all

fit into his plan. If my disability were just randomly thrown at me, I'd

always be asking myself, " Why me? This isn't fair! What if I'm not strong

enough

to handle this? What if I just can't do it? Why doesn't God make it go

away? "

My belief system tells me that God already decided this was right for me a

long time ago, and that I agreed to it, and that I was given the

preparation I

needed for the challenges I was going to face. It gives me a lot of peace

of

mind and confidence that I can deal with whatever life throws at me.

I hope I don't sound like I'm insulting anybody's

beliefs/disbeliefs/whatever, it's definitely not my intention. I just always

find these sorts of

discussions interesting and like to hear different points of view.

-e

[Guest guest]

In a message dated 9/10/2006 1:58:48 PM Mountain Daylight Time,

Brettsmom@... writes:

> I know this was addressed to Jeni but I just wanted to say thanks and I

> agree- yes SMA is very individual and I do truly appreciate hearing everyones'

> thoughts and experiences on subjects. It is interesting to hear so many points

> of views. Thanks

> Kristal

I think you're a great mom and that Brett's a lucky boy too.

Let me be more universal: I love all the parents who come onto this list and

take the time to learn from both those who parented and those who have

actually experienced SMA. I think my own parents could have benefitted a lot

from

these sorts of discussions when they were raising my brother and I. Hearing

everyone's experiencing can only do good for your own children.

e

[Guest guest]

I know this was addressed to Jeni but I just wanted to say thanks and I agree-

yes SMA is very individual and I do truly appreciate hearing everyones' thoughts

and experiences on subjects. It is interesting to hear so many points of views.

Thanks

Kristal

Mom to Brett- SMA II- 6-1/2 years old

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

Learn more about SMA:

www.fsma.org

www.smasupport.com

Re: Good point e re: SMA students w/assistants/

parent perspective

I'm not attacking ANYONE or any particular idea that has been expressed. I

just want to point out a few things that I don't think are occuring to most

people.

First, I'd like to point out that MANY (not all) of you who have a diagnosis

of type 2 walked (or at least stood) independently for some of your younger

years. Even just 10 years ago, children as weak as Brett, h, B. and the

other children who have parents on this list... well, to be blunt, they just

didn't live long enough to get to jr. high or high school. Remember that the

classification system has changed a bit and now anyone who has stood or walked

independently is diagnosed as a type 3. Many of the type 3 children do NOT

require or have one on one aids. They have more strength, especially upper body,

and don't require as much assistance. h can't even get a notebook out of her

desk without assistance. She also requires a suction machine at school which

must be kept in the one bathroom that is accessible. A student can't possibly

help her with that!

Our experience: h has always had a one on one aide since pre-K (in ECIP at

3 there was a classroom aide that spent most of her time with h) and to be

blunt, could probably not have survived in school without one. h can write

some, but she tires easily and needs someone to scribe for her. She can't manage

her books, papers or other supplies. She can't open doors or her locker. h

sometimes even requires assistance to eat.

This year the school board decided that h didn't need a one on one aide.

She went to school a total of 7 days before she left for her spinal fusion (Aug

11 was her last day) and after those 7 days h's teachers and the students

(her friends) who were expected to help her were obviously frustrated which made

h feel terrible. h and the friends who were helping her were getting in

trouble for being late to classes because not only did the girls have to go to

their own lockers, but then to h's and then getting through the halls takes

longer because of h's chair... you get the point. The faculty is expecting

the girls to be able to accomplish doing twice as much in the same amount of

time! It's not fair to put that kind of responsibility on a 10 year old. It's

also not fair that h's friends are so overwhelmed and frustrated by the

situation that they don't really WANT to help anymore. These are the same girls

that have been in class with h for 2

years and have JUMPED to help whenever h's aide was busy or out of the

room for a moment. The difference is that before they were helping because they

WANTED to and now they are EXPECTED to.

I don't feel like it's fair to say that our kids are going to grow up with

" expectations " or to imply that they won't be as productive or independent as

adults because we are babying them now. Just about everyone here who has known

me for anytime at all should know that I encourage h to do everything she

can to the best of her ability. Her best just may not be the same as y'alls

best! She's one of the weaker type 2's and does well within HER bounderies. I

believe Brett and are also weaker type 2's (correct me if I'm wrong moms!)

and like h, probably couldn't survive and succeed in the school system.

Maybe I'm just cranky because we've spent the past almost 4 weeks in the

hospital, but I kind of feel like y'all are questioning our judgement in making

sure our kids have assistance in school. I seriously hope I've misinterpreted

the entire thread.

Love and Hugs

Jeni

[Guest guest]

Thanks, . You're right about my dynamic range being small at

this point. That's what my audiologist told me too. She sounded a long

way off when she first spoke to me, but I'm wearing both implants all

day long and listening to as much as I can before the next mapping.

I agree, it is better to leave the Dry & Store at home. The less I

have to haul through security, the better off I'll be.

Hope you enjoy your holidays too.

e

[Guest guest]

e:

I am so glad that you shared Joe's journey in college with the group. It is refreshing to hear that she has grown through this experience and is becoming more self-reliant. Gives me hope for Rob!! How wonderful that Joe has such a great roomie. I am praying for a great one for Rob. Move in date is August 19. Can you think of anything in particular to take to college that was a big help to her, arthritis wise? I've already thought of a heated mattress pad and rice buddies for the microwave. I have already bought a used dorm size refridgerator too. This one has a lock, because he will have to keep his Enbrel and syringes locked up.

How is she doing managing her daily meds? We use the weekly planner pill boxes but I still have to remind him that he is supposed to take his meds! He will learn I hope!!Thank you so much for sharing. I know that Joe is an amazing young woman and she sounds like she is getting a good handle on things...

Take care

and Rob 18 Spondy

,

You whine all you need to. I am sorry to hear of this. How awful for him and for you. It is so frustrating that when they should be concentrating on other things they have to worry about health issues. Sounds like a very painful procedure, but he is an amazing young man and will come through it strong. College will do him good, even though it is hard on us mom's. Our daughter joe has grown so much while there, and learned that mom knows a few things too. For instance, she has had a stubborn ankle since last week (and only 2 weeks out on Remcaide which is very frustrating). She has been taking Tylenol, then mentioned that she wasn't able to particate with her Institute group at church because of pain. I told her to take her Ultram. She did. Still hurting for about 6 days. Called the rheumy for her and left a message for on call to call her, he said up pred and try her cream that we had made (can't remember name). So, she tries cream and the others and says it is doing better. Tonight though she is dying in pain and calls, I ask her again what doc said, and she realized she needs to follow his advice about the pred to get through the week. It is good for her to deal with the docs and have to make choices. She did try the home remedies of ice, rest etc without success. When she first went to university I had to go up and take care of her a few times, but her roomie is good and helps her and she calls and asks and listens now (before was not and I had to take this crying out of control child to clinic, now a young woman calls and we manage it-the maturation is coming even though it can be hard). Rob will be closer distance than joe is but still a good one, close enough to come home if needed or for you to go his way. What is he planning on majoring in? Glad to hear you are doing better.

Sorry a little long winded there. My poor inbox has been spammed so bad it is hard to find my messages anymore so I am trying to make up-lol

e

[Guest guest]

eI am so sorry about your foot. RSD is such a terrible disease. Is the prednisone helping? I hope that it works and works quickly!! And, that you are managing to get some rest, as well...let us know how it is going.

Your daughter is amazing! She has really gone after her goals and dreams...I hope that they work out her class scheduling issue and she can move on with things...sometimes, those college course offerings can be so ridiculous. I remember in nursing school with the way they offered classes, it really stretched out my time in college when I could have finished much faster.

Rob is a new man since he was able to drop the offending math class. So he is down to 9 hours, but we found a loophole in the insurance policy...he is covered until the day he turns 19 (which is April, 2008). So next semester he will have to be full time, but this semester he was 'safe'. He is going to take 3 - 3 hour credit classes and retake that math class, making him have 12 hours next semester. Hopefully, this will be a load that he can handle, since the math will be a 'review'. He had a really horrible instructor who is having to drop the first several quizzes and tests, the students all were doing so horribly!!!

We have an appointment with FSSA next wednesday to start the medicaid application...which I hate, but I was going through our med bills in preparation and this year has been ridiculous. We are nearing $15,000 out of pocket!!!

and Rob 18 JAS

[Guest guest]

Hey e

Sounds like it needs to be soaked...or use a wet to dry dressing to debride.

You could soak in epsom salts, or use a normal saline or even 1/2 strength

hydrogen peroxide wet to dry dressing. But I'd call them first to check...

Good luck...what a terrible thing to have to deal with.

and Rob 18 JAS

Yet another skin infection

>

>

> > In the past 3 months she has been to the doctor for 2

> thumb

> > infections with heavy dose antibiotics, a trip to the

> ER, a

> > splint; a lump full of gunk behind her ear that the doc

> cut out;

> > a finger infection; a huge cut on her finger and now

> this one.

> > She called yesterday said it was hot and red on her leg.

> I told

> > her to call the clinic and see if they would order

> something

> > over the phone. They called today and said they want to

> see her

> > because this doc hasn't see her with an infection (just

> changed

> > docs) so she had an appt for 5 tonight. I came home when

> she got

> > in from university and she showed it to me. This was not

> a

> > typical cellulitis for her but a huge circle with purple

> core,

> > elevated, red bullseye hot inflamed. So glad she had an

> appt or

> > I would have taken her to the ER. Her regular doc wasn't

> there

> > but this one was good, kind, funny. He looked at it and

> said we

> > need to cut that out. So they numbed her with spray and

> cut it

> > open. It was disgusting--tons of ooze came out

> > (I won't describe it further because it would make

> you

> > sick). He was shocked at how much came out. There was a

> ton of

> > it and he kept milking it out to make sure it all came

> out. He

> > cultured it and said he expected it to come back MRSA so

> he put

> > her on Clindamycin four times a day.

> >

> > She has a huge hole but he decided not to pack it to

> allow the

> > ooze to flow. She has to hot pack it and let it ooze

> several

> > times a day. Like I said, it was quite nasty! EWW!!! I

> am just

> > so frustrated on how to prevent these. She has a sore on

> her

> > finger that won't heal either. I am going to call her

> rheumy

> > tomorrow to let her know what happened and to check

> about taking

> > her MTX this week.

> >

> > She takes Prednisone, MTX and the big gun Remicaide. I

> just wish

> > we could find a way to stop this from happening. This

> one is

> > beyond gross. Any suggestions?

> >

> > e, mom to joe 20 poly/lupus (aka rheupus)

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

[Guest guest]

e:

We are going to repeat labs in 2 weeks. I will be sure and ask the rheumy if

waiting for the antibodies to be positive is a reasonable thing...thanks for

your input.

I was thinking about joe today as it took 4 tries for the iv to be started for

my Orencia infusion. What has she decided to do? Have you thought about a

therapist working with her on imaging and relaxation techniques? Of course, with

her heavy courseload I'm sure that her time is at a premium. My heart just

breaks for her...

and Rob 18 JAS

Re: Arthritis stinks!

> ,

>

> It sure does!!! As for the antibodies, Rob may never make them.

> My daughter has had chicken pox twice, been exposed multiple

> times, has no antibodies. So, I guess I would be asking if that

> is a real issue with the meds.

>

> As for you, I am so sorry to hear this. Flexeril knocks me on my

> rear for days. I have found another muscle relaxant--Durabac,

> that works but doesn't have the hangover effect. I don't know

> how expensive it is because I have a ton of free samples.

>

> Vent away--I'll share my vent that I put on another list--just

> so others know it is okay to vent. Sometimes we just need to do

> this. And yes, Arthritis stinks. I pray for a cure for all

> daily. Here is my vent from the beginning of the month.

>

> e, mom to joe 21 poly/lupus

>

> Sometimes it is just so painful.....

>

> ...to take my child to the clinic and watch them poke her and

> torment her. I know that it is for her own good and that it is

> vital and I know that the staff is wonderful and they do their

> best and they don't want to hurt her. But I also know my child

> has had enough and doesn't want to do this any more even though

> she needs to. We had to give her anti-anxiety meds today. She

> was uncontrollable. It was awful she sobbed, I held her and

> cried. And I hate it. I hate having to do this for her. I hate

> having to watch it. I hate not being able to change what is

> happening. I hate that it has no cure. I hate that as her mother

> I can't relieve her pain. I hate that people are rude and do not

> understand. I hate that she does not have the ability to do what

> she desires when she desires. To get the IV out we had to call

> the doctor again and get more medicine and then order her some

> for home. It was awful. It was terrible watching her curl up in

> a ball and sob and know that I could do

> nothing to take away the pain. I have prayed more for that

> child than anything else in my life. I have pleaded for this to

> go away. I willed that the patriarch would say it would go away--

> he didn't. And I go to every temple that I ever near and put her

> name in hoping that this one will be better, that somehow the

> faithfulness of those saints will make this nightmare go away.

> And yet it doesn't. And she suffers. And I can't fix it.

> So the nurse suggested that we see about putting in a port under

> her skin so she won't have any more ivs being placed. And that

> it will hurt less and no more bruising. And I don't know what to

> do. I don't know what is best. I just know I want this to go

> away forever. And I just want to make her all better and I can't .

> I don't know what else to do. I just know that we can't do this

> again. Her doctor is out of town and so we will have to wait and

> see what comes next. I want a cure and I want it today and I

> don't want to have to do this to her anymore.

> Sometimes it is just so painful watching your child and knowing

> that there is absolutely nothing you can do to make her better.

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast

> with Search.

>

>

[Guest guest]

Well, e, did everyone survive the Memorial Day celebration? PK

frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!

Praying for all of you

Frazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Hi, Pat...Yes we did Thanks for the prayers....how was yours?

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Monday, May 25, 2009 8:40:22 PMSubject: Re: e

Well, e, did everyone survive the Memorial Day celebration? PK frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!Praying for all of youFrazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

it was very enjoyable; however, Kali, (Karac's sister and mother of Ayden) got sick and DH had to take her to the emergency room. Kali has just one kidney and has gotten it infected. She is in the hospital today and I have Ayden. Between Karac and Ayden my life has gotten even more complicated. LOL,LOL, I'm sure with the antibiotics she will be fine in a couple of days. Fortunately, she is still on her mother's insurance.

Ayden and karac both have been very good. Karac is very proud of being Uncle Karac; he thinks it is kind of funny. He was so cute yesterday when I picked him up; he had a pacifier for Ayden and shared his blanket with him. They are so precious; I feel like my life is so blessed. I must be masochistic. LOL, LOL, Pat K

frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!

Praying for all of you

Frazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

LOL -- I am too. LOL

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Tuesday, May 26, 2009 11:53:42 AMSubject: Re: e

it was very enjoyable; however, Kali, (Karac's sister and mother of Ayden) got sick and DH had to take her to the emergency room. Kali has just one kidney and has gotten it infected. She is in the hospital today and I have Ayden. Between Karac and Ayden my life has gotten even more complicated. LOL,LOL, I'm sure with the antibiotics she will be fine in a couple of days. Fortunately, she is still on her mother's insurance.Ayden and karac both have been very good. Karac is very proud of being Uncle Karac; he thinks it is kind of funny. He was so cute yesterday when I picked him up; he had a pacifier for Ayden and shared his blanket with him. They are so precious; I feel like my life is so blessed. I must be masochistic. LOL, LOL, Pat K frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!Praying for all of youFrazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

It's time to go get Karac. I have his snacks ready. I always look forward to

seeing him every day.

Does "woove you today?"

You think you are masochistic too? funny. LOL, LOL Pat K

frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!

Praying for all of you

Frazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

All autism mom's are. LOL, LOL...it's hard work. does love me today --- He copies Lily now and when she kisses me he does too...I'm finally getting kisses on my skin instead of through the air.....better 30 months than never.

Treasure you day with Karac.....

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Tuesday, May 26, 2009 2:24:30 PMSubject: Re: e

It's time to go get Karac. I have his snacks ready. I always look forward to seeing him every day.Does "woove you today?" You think you are masochistic too? funny. LOL, LOL Pat K frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!Praying for all of youFrazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

Oh, I'm so glad that is giving you kisses. That makes me smile.

I hope everyone on the list has had a good day too. Love and blessings, Pat K

frazz checking in

just wanted to say I got 3 hugs last thursday from the little girl that I take care of.(she came to ME, I didnt ask her to hug me) Guess shes trusting me now. COOL!

Praying for all of you

Frazz

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

[Guest guest]

Or maybe I should say very good at expressing your empathy. LOL

: Re: ASD and ADD: now "A cure"

Hi, ...You sound like a wonderful mommy --- is too ---I should have answered Frazz in a second email --- an email just to Frazz....after all, Frazz, was asking and I butted in.....I will think next time...

I truly believe that is finding a way to help her daughter feel better, and for her it is working -- doesn't feel bad, I can guarantee it, LOL....he's the happiest little thing around, until he has panic, but even that will get better ....we each are trying to the best of our ability, with limited knowledge, to make our kids the best they can be. This group is a warm nurturing group....there are those among us who are looking for a cure, others, like who truly know that their children don't feel well, others like me, like you, other mom's who been there done that and still have a child with Autism ---- Thank God for all of us, as we are the ones, with all our differing views, who are making a way for gaining more and more knowledge... doctors can't dare rest with all of our mommy bear opinions... LOL, LOL

I like what you say when you say, "I accept his limits" --- this is good...I know that even had thorns in his side, that prayer would not take away this side of heaven....God allowed them to stay for a purpose unknown to , and to us....

Hugs

e

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[Guest guest]

You do Pat K ---

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Saturday, May 30, 2009 4:16:23 PMSubject: Re: e

..

[Guest guest]

Tobie, this makes me cry! if I could only tell you HOW MUCH JOHN DAVID WANTS TO BE LOVED!!!!!!!!!!!! Oh, Tobie, he does, he does... is affectionate, and loving...loves his sister, love me, and even tells me so...sweetie this is called a spectrum for a reason....we each have a different story...our frustrations and days are hard, but we each have a different story --- I am so sorry if I was harsh...It is the social work in me I can tell that you work hard, and God is going to bless that praying of yours...I so want you to know that I know...it IS OK to be angry with her, with him --- I never want it to sound like it's NOT OK...it is!!!!!! I just couldn't read through your words like Rhonda could, and I'm sorry for that. I will try

harder next time....your email means the world to me, and is a testimony of how Awesomely God is working through our prayers.....I love peace, believe it or not. I will pray for you with you whatever If you have not signed up for, some of us get the Children of Destiny prayers...they really are wonderful --

This child will be a blessing to you Tobie...you are equipped...God has already prepared you. Thank you for reaching out to me...

e

From: Tobie Pless <tobieluvsdalejr@...>autism Sent: Friday, June 12, 2009 7:00:48 PMSubject: e

e,

Thank you for your note! I have been praying for the last 32 weeks that God will give me the

strength to deal with what ever comes my way this baby. I have been really emotional and

depressed ever since a fight between my husband and I,when I was about 8 weeks along.

He was angry with and blurted out to me "that this baby could just like her or worse".

I was totally devistated!! Not because he may have autism,but that he might "not want to be loved". I really dont want people to think I hate ,I dont. I just cant stand to see her dad

so hurt and frustrated,he has done so much for her these past 12 years. I am going to step back and take a breather from trying to change the way they interact with each other. I am not giving up on them but right now this whole situation is putting the babys health at risk.

But, I really wanted to let you know that I do not harbor hard feelings for you!! I really am greatful for your input!!

Luv ya, Tobie

From: Kellie <folkangelymail (DOT) com>Subject: Re: ReTobieAutismBehaviorProbl emsgroups (DOT) comDate: Wednesday, June 10, 2009, 8:12 AM

Sorry I should have made this to her directly as it is more personal and not about abilify.

From: Kellie <folkangelymail (DOT) com>AutismBehaviorProbl emsgroups (DOT) comSent: Wednesday, June 10, 2009 9:10:48 AMSubject: Re: Re: abilify

Tobie,

Somehow you have to try and understand that your stepdaughter has a disability and that your anger at her is misdirected. I'm sorry if you get upset but please for her sake look at the warning signs and see that she may be 19 years old physically but you have said she is only 9 or so developmentally and not getting the structure or guidance she needs. At her developmental age should she be regulating her own meds? Is she mature and capable enough to make smart, safe choices? If she is over medicating herself she is in danger of harming or even killing herself accidentally and something needs to be done about it. I'm sorry you feel you need to wash your hands of her and cannot do anything to help her. I will pray that she gets the help she needs and deserves so she can become the best she can be. She is a person with a disability who needs help and understanding just like my . He has tantrums, he

hits and he struggles everyday but he loves,smiles, laughs tells jokes and melts my heart every day as well. He needs my love, strength and all the consistency and structure I can provide for him. I don't want to think about how hard it would be for him if he didn't have these things. He has them and he still struggles. Have you read books on autism and do you understand what this disability is? She is a child with a disability and she needs help and structure. I do know it would be harder to come in so late when she is so much older but you signed up for this when you married her father... I am sorry if this upsets you or makes you feel judged. I really wish you the best and I hope you can work this out, Kellie

From: tobieluvsdalejr <tobieluvsdalejr>AutismBehaviorProbl emsgroups (DOT) comSent: Tuesday, June 9, 2009 8:47:06 PMSubject: Re: abilify

Hi, my step daughter takes it along with Seroquel at night. It knocks her out!! (Which after dealing with her ALL day I am greatful!!!) My prob is that she is allowed to self medicate and when she is not getting her "way" she will and does take to much,which ends us up in the ER at least 2x a month. But my husband refuses to let me handle this so I have "washed my hands of her". I hope this works our for your son!! I dont know how parents cope with this prob,I am just a step parent and I am totally done with her and her horrible behavoirs!! So again,I really and truly wish you the best!!!

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[Guest guest]

I'm sorry Lily is sick; bless her heart. I know what you mean about

2.5. I don't know what we will do with Ayden when he gets that age

if we still have to help Kali. LOL, LOL,

Yes, thank you God for therapists and naps. PK

prayers

> >

> >

> >

> > DIL has decided to take karac to his younger brothers baseball game for the first time.? They never take karac because younger brother is ashamed of him.? Please pray that karac enjoys being with the family and that he behaves appropriately; so that Karac will be able to go again and be part of the family.? Thank you for your prayers. Love and blessings, Pat K

> >

> >

> > An Excellent Credit Score is 750... See Yours in Just 2 Easy Steps!

> >

>

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

wow this is lovely, and so true at the time of havin trouble eating

swallowing etc we might still have a moan lol but its so very true

there is alot worse out there, and since i have lost lots of loved ones to

worse things like cancer, i know there is worse than what we have

> it could be worse. Someone, somewhere, went to the Doctor today and

> found out that they have a terminal illness.

>

> Someone else found out that they have a disease which will erase every

> memory of every thing that is important to them over the next few years.

>

> Another person is sitting at home right now, grappling with having just

> been told their nervous system will degenerate over time leading them to

> becoming an invalid.

>

> In some ways we are lucky, we have a disease, but it isn't going to kill

> us. It will not conquer us. It will not spread to those we love. It may

> inconvenience us. It may cause us terrific pain and recovery time. But

> that's ok. As we said in the Army, PAIN MEANS YOUR ALIVE. In the end, WE

> will master IT. Not the other way around.

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