Chase's IVIG

[Guest guest]

Hello everyone. How was your holidays? Chase had his first IVIG on December

27th. All went well for that one. We returned on the 28th and he was fine for

the treatment, then about 2-3 hours later complained of a headache. Dr.

had mentioned that some of the side effects of having the wrong dose, or getting

too much too soon was cranial pressure, cardiac arrest, and other horrible

things. My husband I were so scared that Chase was having a negative reaction,

especially when he complained of how bad his head hurt him in the back. We ended

up rushing him down to his pediatrician where Chase got sick 3 times. His doctor

was watching my son retch into the garbage can to make sure there was no blood

in his vomit. ( How degrading.) He told us that since Chase had no reaction at

the time of the infusion, that he thought it was a virus. His pedi rheumy told

us the same thing when we contacted her about Chase's symptoms before heading

down to his pediatrician. Chase proceeded

to be sick in the car on the way home (thank god we had the forsight to bring a

wastebasket) and then he was sick all night and the following day. He cried from

his head hurting so much, he couldn't even lift it to throw up. By Saturday

night he was feeling a little better, however he had a huge bloody nose. On

Sunday he felt a little better, but still had 3 more nose bleeds. He went back

down today for his third dose and there were no after effects, so my husband and

I are breathing a huge sigh of relief. He is on 1.5kg/kilo of body weight. He

has his next dose Feb. 1st and 2nd. His pedi rheumy called today to see how he

was and said that they would try to get the following IVIG's done at home with a

home health nurse. We are keeping our fingers crossed that this will work for

Chase's arthritis and uveitis.

Deadra and Chase 8 pauci and uveitis

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