Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi my name is ann and I live in Dixon IL.. My daughter is 7 years old and has jra. Jennelle has the poly type. Jennelle has had this since she was 11 months old. It has been a long hard road for us. It never seems to end. It probbly will never end. I have given up hope she will grow out of it, as I was told long ago from her doctor. Jennelle's doctor is dr. spencer in chicago. We see him at shrinners is chicago. Jennelle takes Enbrel .08, prednisolone for her eyes (she has iritis for 3 years now) Cyclosporine 1.0 ml. for her eyes, eye drops every hour two kinds. If the cyclosporine does not work she will then be switched to remacaid, which she will have infussins every six weeks. This will need to be done in chicago, which is 2 hours away. My husband grew up in St. Louis and we are thinking of moving there because there are 2 childrens hospitals we could go to. And there are more doctors to see. Where I live there are hardly no specialists to see for her or no services such as ot or pt. Even in the school. The only insurance we have on my daughter is medicaid. I was hoping if there was someone out there who was around the st. louis area that could help me if this would be a good idea to move there and what advice you could tell me about what I need to do to get things set up for her.Also if anyone who wants to ask me questions or need help please let me know. I will love to help. Thank you so much for your help. Ann Quote Link to comment Share on other sites More sharing options...
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